UNC Muenzer MPS Center

05/15/2026

The UNC Muenzer MPS Research & Treatment Center is dedicated to advancing research, supporting families, expanding access to specialized care, and helping improve the future of treatment for individuals living with MPS.

In honor of International MPS Awareness Day, please consider supporting the work of the MPS Center. 100% of donations directly support programs and initiatives at the UNC Muenzer MPS Research & Treatment Center.
https://give.unc.edu/hfdonate?f=346213&s=MEDFOT26V3UU39&p=mfno

05/15/2026

Today, on International MPS Awareness Day, we join the global rare disease community in raising awareness for Mucopolysaccharidoses (MPS) and honoring the strength of individuals and families impacted by these conditions.

At the UNC Muenzer MPS Research & Treatment Center, we remain committed to advancing research, supporting families, improving access to specialized care, and helping move the field toward earlier diagnosis and better treatment options.

Awareness leads to understanding. Research leads to progress. Community leads to hope. 💜

05/12/2026

MPS Center Public Communication Specialist Ryan Dant presented Dr. Emil Kakkis, founder and CEO of Ultragenyx, with the first-ever Legacy Achievement Award at the Bay Area Biotech Forum hosted by the San Francisco Business Times.

The award recognized Dr. Kakkis’ decades of leadership advancing rare disease therapies and advocacy, especially for the MPS community.

Ryan is the longest-treated patient in the world on Aldurazyme, the first enzyme replacement therapy approved for any MPS condition. Dr. Kakkis developed and launched the therapy.

05/12/2026

The UNC Muenzer MPS Research & Treatment Center is the first of its kind in the world dedicated to MPS research, treatment, and patient care.

This short video highlights the mission of the MPS Center and the ongoing commitment to advancing research, supporting families, improving access to specialized care, and helping move the field toward better treatment options for the MPS community.

Watch the video below to learn more.
https://youtu.be/UPTR_TO_w_g

A comprehensive home for MPS care—diagnosis, treatment, genetic counseling, infusions, research access, and family support under one roof.

05/06/2026

05/05/2026

A new company, Sangrail Biologics, has launched with a focus on developing therapies for children living with rare genetic diseases, including a program targeting MPS IIIB.

Advances like this continue to highlight the growing momentum across the rare disease space and the commitment to improving outcomes for patients and families.

At the Muenzer MPS Research & Treatment Center, we remain dedicated to supporting research, expanding access to care, and staying connected to developments that may shape the future of treatment.

Read more:
https://www.businesswire.com/news/home/20260505269322/en/Sangrail-Biologics-Launches-with-Mission-of-Restoring-Lifes-Blueprint-for-Children-with-Rare-Genetic-Diseases?fbclid=IwY2xjawRnBPZleHRuA2FlbQIxMQBicmlkETExT240SVB0OXBibTk5MjRoc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHiez0tsZHVp9dGWZIn7c9dEESPPVYEI3B9RRm5x9FEqORKLc3Ud-xHew9b5z_aem_DU4W8pebb1K1jiwvDfYtlw

Sangrail Biologics launches with SNG-101 (f.k.a. ABO-101), a clinical-stage gene therapy for patients with MPS IIIB.

04/28/2026

A great night at the ballpark for MPS Awareness at Carolina Baseball ⚾

We had an incredible turnout and it was so meaningful to see so many supporters showing up in their MPS Awareness shirts. It was also great to see the players wearing MPS Awareness wristbands during the game—such a powerful show of support.

The energy and sense of community made the night truly special.

Thank you to everyone who joined us and helped raise awareness for MPS. 💙

04/23/2026

MPS Awareness Night at Carolina Baseball continues to make an impact beyond the field, ⚾💙

This recent feature from GoHeels highlights how the UNC Baseball program used its platform to raise awareness for mucopolysaccharidoses (MPS) and the meaningful connection to the Muenzer MPS Research & Treatment Center.

From honoring longtime friend of the program JR Anton to bringing attention to rare disease research happening right here at The University of North Carolina at Chapel Hill, it was a special night for our community.

Read the full story here:

The Diamond Heels won again, this time while drawing attention to an issue important to the program.

04/22/2026

Big thanks to Carolina Baseball for helping shine a light on MPS at Boshamer Stadium last night 💙

It meant a lot to see both teams wearing MPS Awareness bands and taking time to recognize the patients, families, clinicians, and researchers who make up this community. Events like this help bring greater awareness to mucopolysaccharidoses (MPS) and the importance of continued research and support.

We’re grateful for everyone who helped make MPS Awareness Night so meaningful.

04/21/2026

The Muenzer MPS Center team is out at Bryson Field at Boshamer Stadium for MPS Awareness Night at Carolina Baseball ⚾💙

Stop by and visit us as we connect with fans, share information, and raise awareness for MPS.

Proud to be part of such a special night with our MPS community and the Carolina family.