
08/28/2025
Hi everyone! Sorry for the delay in updates but we have been quite busy! We traveled to North Carolina this past weekend to lay my beautiful cousin Leah to rest. It was good to see family I haven't seen in over 25 years although the reason for our reunion was so sad. I am finally healed from my surgery and beginning to feel somewhat better. Doctors have me on a few new medicines to help with my symptoms, but the side effects are hard to deal with at times. Any improvement is good though! We are in the process of having me become Mason's paid caretaker full time now. The process has taken over a year and I still have quite a bit of CPR and first aid training to complete before I am able to become his full time caretaker. Things are going well for Mason for now. At his last appointment with the urologist this past week, they checked his skin grafts and amount of scar tissue he has in the area. The disease that originally caused all of his issues has caused really extensive scarring all throughout his body making surgeries and complete healing rather difficult. Two of his skin grafts on his private area are looking great, but the one on the bottom hasn't done as well. His private area is open right now to allow the skin grafts to take and to be able to make a new channel for his soon to be new urethra. Doctors have us applying steroid cream a few times a day to soften the scarring in order to hopefully make his next surgery more successful. His next surgery is scheduled for December 15th of this year. They will be attempting to replace the bad skin graft with a new one using skin from his bottom lip. Also during the surgery they will be making a new urethra for him using the good skin grafts and closing the area. He has what's called a urethrostomy that he currently is able to urinate through. They will also be closing that as well so he will be able to urinate normally again. We are PRAYING they will be able to do all of this at once and successfully, but they may only be able to do the new skin graft this time with the rebuild of his urethra and closure of the area at a later date. This is a painfully long and drawn out procesa, but will ultimately be worth it in the end! He has some increased phantom pains lately as well as new pain in his knees. We will be visiting the prosthetist next week to have his legs recasted for new prosthetics in hopes of helping his pain some. He will also be switching from his myoelectric hands to myoelectric hooks. This is because they allow him to have more grip and are just better for him. The hands are more for a cosmetic look whereas the hooks allow to him live life a little easier and be able to use his hands in a more functional way. As far as our financial situation right now, it's not the best. Traveling lately and doctors appointments have completely drained us. We had to borrow money to attend the funeral, but I couldn't live with myself if I hadn't gone. Leah was not only my cousin, but my BEST friend. We do continue to struggle financially and trying to get back on our feet has proved our biggest challenge. As soon as we get ahead, something comes and knocks us right back down. We pray daily that God will continue to provide and bring us through the storm. Life is so much harder with the constant added stress of worrying whether I'll be able to keep the lights and water on or pay our rent monthly. Things are improving some, but we are drowning while we try to recover from what these past few years have thrown at us. We ask that you please continue to pray for Mason and our family. Please share our GoFundMe or donate if you're able. Even the smallest amount helps in the biggest ways. I will continue to update as we go along and we can't thank everyone enough for their continued prayers and support.
God bless,
The McMillan Family ❤️
❤️ GoFundMe:
https://gofund.me/b24a3d9e
❤️ CashApp: $chardizzle88
❤️PayPal: paypal.me/themomster88
❤️We also have Zelle and checks are great too! Please just message me for the info!