FTD Unit Boston

02/20/2025

The Massachusetts General Hospital Frontotemporal Disorders Unit is excited to share that the first episode of From Care to Cure, a podcast exploring care for a life lived with frontotemporal disorders, Alzheimer's disease and related dementias, is now available.

Our first episode features an interview with host Katie Brandt and Dr. Brad Dickerson, Director of the MGH FTD Unit. Dr. Dickerson explains what drives his passion to care for and understand FTD, Alzheimer’s disease and related conditions. Listen to learn what inspired Dr. Dickerson to focus his clinical practice and research efforts on this young-onset and atypical population. Tune in to hear the origin story of the MGH FTD Unit as the multidisciplinary specialty clinical research team it has become. Share this episode so more families will feel connected in our FTD community!

Find From Care to Cure now on Spotify and Apple Podcasts. Listen, like and subscribe to help us raise awareness and hope that the cure of tomorrow is not so far from the care of today for Alzheimer’s disease, FTD and related conditions.



Apple Link: https://podcasts.apple.com/us/podcast/from-care-to-cure/id1794370445

Spotify Link: https://open.spotify.com/show/5J5D7EObHIHtteh3lnJH4N

07/01/2024

So proud to be a part of the Roon expert community! Check out this recent Roon blog post on the impact of dementia on family:

I was first impacted by dementia when I was a young woman and my Memere, my mother’s mother, was unable to attend my college graduation or my wedding because she was living in a skilled nursing facility with late-stage dementia due to Alzheimer’s disease. I was very close with her growing up and...

06/24/2024

This Thursday night at 7:00PM EST the FTD Unit Boston is proud to be the beneficiary of the Wall of Grass concert featuring Stu Kimball.

The in-person show is completely sold out and there will not be any tickets available at the door. Due to overwhelming demand, we have added a livestream option. In appreciation for contributing $20 or more to the FTD Unit Boston at https://because.massgeneral.org/stukimball, donors will receive a link to the livestream. Thank you so much for supporting our efforts to raise awareness, funds and hope for a cure for 's, and related conditions!

06/05/2024

https://www.bostonherald.com/2024/06/05/brandt-improving-support-care-for-dementia-caregivers/

“Overwhelming” is rarely an understatement, but for families caring for loved ones with dementia, that’s exactly what it feels like. And we need help.

03/28/2024

Movie Night and Discussion About Early-Onset Dementia and Caregiving - Presented By: MGH Frontotemporal Disorders Unit, Massachusetts Alzheimer’s Disease Research Center and Union Capital Boston. Join us for a screening of the short film Pedacito de Carne, a drama that follows a millennial Hispanic woman caregiving for her mother, who is living with FTD, followed by a live question and answer session with the filmmakers and an MGH Neurology Department Clinician to raise awareness about young-onset dementia, its impact on caregivers and brain health for all.

This event will be held at the East Boston branch of the Boston Public Library and livestreamed globally at no cost to participants. This event will be conducted in Spanish; the film will be subtitled in English and Spanish.

Register Today: Because.MassGeneral.org/NochedeCine

03/28/2024

Noche de Cine y Charla sobre la Demencia de Inicio Temprano

Presentado por: MGH Frontotemporal Disorders Unit, Massachusetts Alzheimer’s Disease Research Center y Union Capital Boston. Lo invitamos a ver la proyección del cortometraje “Pedacito de Carne”, una historia acerca de una joven hispana milenial que cuida a su madre, mientras ambas mujeres tienen que adaptarse, llorar y afrontar la incomodidad y la impotencia de sus nuevos roles. Al final habrá una sesión de preguntas y respuestas con las directoras y una doctora del Departamento de Neurología del MGH para crear conciencia sobre la demencia de inicio temprano, su impacto en los cuidadores o familiares y la salud del cerebro. Este evento se llevará a cabo en español; La película estará subtitulada en inglés y español.

Because.MassGeneral.org/NochedeCine

12/29/2021

We are proud to announce that Katie Brandt, our Director of Caregiver Support Services, will be moderating an Expert Roundtable for Bob's Last Marathon this winter. We recognize the importance of bringing expert content to our community of persons living with a diagnosis, caregivers and community professionals. Partnerships like this are a way to share information and resources that support high quality care for families walking the journey of dementia. Register today and join us next month for information, resources and hope!
https://bobsmarathon.com/events/

10/01/2021

Join us live online on Friday, October 15th @ 7:00PM EST for A Night With the Arts for FTD. We will have live music, a patient and caregiver-centered art show and a scientific presentation from Dr. Brad Dickerson!

Buy your ticket before midnight TONIGHT and we will enter you into a raffle to win a free Gala Party Box mailed to your home from Cardullo's Gourmet Shoppe!
Because.MassGeneral.org/FTDGala2021

01/25/2021

On January 19th, Katie Brandt, our Director of Caregiver Support Services, had the opportunity to interview Dr. Anthony Fauci for the January 2021 NAPA Advisory Council on Alzheimer's Research, Care and Services meeting. Katie and Dr. Fauci spoke about the impact of COVID on our dementia community and the sobering statistics about loss of loved ones due to COVID. They discussed the importance and safety of the COVID vaccine, how to safely visit loved ones living in skilled nursing care and how our community can move forward with hope.

As they wrapped up our time together, Katie asked Dr. Fauci to impart some of his wisdom to the NAPA Council as they continue their own journey to eradicate the epidemic of Alzheimer's Disease and related dementias. He said "The principle of anticipating the needs that you will have two, three, four, five years from now and start working on building the foundation for those needs, I think is the best advice I can give you."

The power of science has never been so inspiring as during this moment in time. Dr. Fauci, thank you for your dedication to the health of our nation! See the full interview here: https://youtu.be/0wlQZG7ZXlQ

10/09/2020

Many thanks to Bob Coughlin for this energetic video supporting our gala ticket sales! Join us next Friday night! Because.MassGeneral.org/FTDGala2020

10/04/2020

We are thrilled to announce that Maureen Donovan is the winner of our A Night With the Arts for FTD gala sponsor party box contest! Maureen will receive a gala sponosor party box ahead of our October 16th gala to help us celebrate and honor the work of our MGH FTD Unit Community. We look forward to seeing you all online in less than 2 weeks!!!