Improving Asthma Care: Adapt-NC

Improving Asthma Care: Adapt-NC ADAPT-NC is a research study implementing a shared decision making toolkit in primary care practices to improve asthma outcomes across North Carolina.

ADAPT-NC stands for Asthma Dissemination Around Patient-centered Treatments in North Carolina. It is a state-wide dissemination project funded by the Patient-Centered Outcomes Research Institute (PCORI). In the ADAPT-NC project, the research team has leveraged partnerships between the statewide Medicaid network and the statewide consortium of research networks to identify best practices for dissem

ination of an evidence-based shared decision making (SDM) toolkit for asthma management. The asthma toolkit development was funding by the Agency for Healthcare Research and Quality (AHRQ) and tested across a regional network of pediatric, family medicine, and internal medicine ambulatory practices in Mecklenburg County, North Carolina. The initial results have showed marked improvement in patient outcomes (improved medication adherence and decreased asthma exacerbations) with increased patient involvement in the creation of the care plan. For more information and results from the asthma shared decision making toolkit development (through the Asthma Comparative Effectiveness study):
Tapp H, McWilliams A, Ludden T, Kuhn L, Taylor Y, Alkhazraji T, Halladay J, Derkowski D, Mohanan S, and Dulin M. Comparing traditional and participatory dissemination of a shared decision making intervention (ADAPT-NC). Implementation Science 2014; 9(1): 158. Mowrer L, Tapp H, Ludden T, Kuhn, L E Reeves, K, Courtlandt, Cheryl, Hege, Tami Taylor, Y McWilliams, A, Dulin, M. Patients’ and Providers’ Perceptions of Asthma and Asthma Care: 2015 A Qualitative Study. J of Asthma. 2015 May 15:1-8. During ADAPT-NC, key principles of community based participatory research were used in engaging providers and patients to develop a facilitator-led participatory approach to dissemination. This This study will test a novel method for dissemination on a larger scale by randomizing 30 practices to 1 of 3 arms:
1. Facilitator-Led Participatory Approach to Dissemination (FLOW)
2. Traditional Dissemination (one didactic session with educational material)
3. Control with no dissemination

The objective of this trial was to examine whether a facilitator-led (FLOW) approach to dissemination would result in a higher level of SDM than a traditional lunch-and-learn approach. Outcomes measured include 1) reduction in asthma exacerbations, 2) Beta agonist over use, 3) controller medication use, 4) reported practice level use of the SDM toolkit, and 5) patients’ perceptions of involvement in their asthma care decisions. The FLOW approach to dissemination may be a more effective way to incorporate SDM into practices by helping providers overcome traditional implementation barriers and has the potential for greater sustainability by considering unique practice characteristics.

Welcome! May all your proposals find funding and your studies be patient-centered 😊
07/26/2018

Welcome! May all your proposals find funding and your studies be patient-centered 😊

The WVPBRN has joined Facebook!

Follow our page for the latest project updates, events happening at our sites around the state, and to learn more about the issues faced by this beautiful state!

We are celebrating our Clinical Trials teammates and  ! Have you ever wondered what type of research is considered a cli...
05/22/2018

We are celebrating our Clinical Trials teammates and ! Have you ever wondered what type of research is considered a clinical trial? As Dr. Patel describes, "a clinical trial is a defined way to evaluate the effects of a new medication or combination of medications that haven’t been approved yet for a specific use."

We are so grateful for every patient participating in clinical research - the resulting improvements in medical care are all thanks to YOU!

Read more about clinical trials in the link below:

From new and innovative therapies not yet available to the public through Phase I clinical trials to promising immunotherapy treatments that activate your own immune system to attack your cancer cells, we're proud to celebrate and our work to advance the treatment of cancer. Curious about clinical trials? Here are 5 things to know: http://bit.ly/2IVwV7v

05/04/2018

Is yours up to date? Do you know what to do if your loved one has an attack?

Every March 5, we raise asthma awareness in honor of Lexie's birthday. Here is one of my favorite pictures from the Meck...
03/05/2018

Every March 5, we raise asthma awareness in honor of Lexie's birthday. Here is one of my favorite pictures from the Mecklenburg County Asthma Coalition - MCAC Asthma Walk with Lexie's family and friends wearing her favorite pink! The tenacity and compassion of these incredible advocates truly

11/06/2017

November is national Lung Cancer Awareness month! Smoking (and secondhand smoke!) can cause asthma flare-ups in kids and adults. Is today the day YOU quit smoking to improve your asthma?

Find out why smoking is a bad idea - especially for people with asthma.

Thank you to all the patients, clinicians, and researchers who attended Setting the PaCE: Carolinas Symposium on Wednesd...
10/13/2017

Thank you to all the patients, clinicians, and researchers who attended Setting the PaCE: Carolinas Symposium on Wednesday! It was a wonderful opportunity to connect and learn about engaging in primary care research. One attendee inspired us with his takeaway; that hearing and incorporating the patient voice is crucial to the future of healthcare!

Thank you to Ed Bujold and Ray Haeme of Granite Falls Family Medical Care Center and Hazel Tapp of Mecklenburg Area Partnership for Primary-Care Research for hosting. Thank you to founders and funders of the Patient and Clinician Engagement initiative: Patient-Centered Outcomes Research Institute - PCORI and NAPCRG-North American Primary Care Research Group.

We are so excited to host Ray Haeme and Dr. Ed Bujold for Setting the PaCE next Wednesday! If you are a patient or clini...
10/05/2017

We are so excited to host Ray Haeme and Dr. Ed Bujold for Setting the PaCE next Wednesday! If you are a patient or clinician interested in engaging with health research, join us for this FREE event. October 11, 10a-2pm, lunch is provided if you register using this link: https://www.eventbrite.com/e/setting-the-pace-carolinas-symposium-tickets-37312789558?aff=campaign

Dr. Edward Bujold along with Dr. Hazel Tapp and Ray Haeme will present a symposium on patient and clinician engagement on October 11, 2017. The event will be held from 10am-2pm at the Carolinas Medical Center-Mercy Auditorium (2001 Vail Ave, Charlotte, NC). Symposium topics will include the PaCE concept and background, primary care research, an introduction to PCORI, advocacy, patient engagement, how to form a patient advisory council and discussions on patient engagement in primary care research.

How cool is this?? Our friends at Clean Air Carolina were at Camp Open Airways last month helping kids with asthma learn...
09/29/2017

How cool is this?? Our friends at Clean Air Carolina were at Camp Open Airways last month helping kids with asthma learn about the disease and how to cope with everyday activities. Campers learned ways to protect air quality by conserving energy, carpooling, and having parents turn off their engines when waiting in lines.

Camp Open Airways is a program of the Jeff Gordon Children's Foundation, which is part of Carolinas HealthCare System. Feeling

https://cleanaircarolina.org/2017/08/asthma-campers-learn-air-quality/

Clean Air Carolina was at Camp Open Airways in Kannapolis, NC this August leading a session on air quality education for 29 kids with asthma.

Back to School Shopping List:spiral notebooks ✅highlighters ✅Asthma Action Plan 😱⁉️Time to call your provider and schedu...
08/10/2017

Back to School Shopping List:
spiral notebooks ✅
highlighters ✅
Asthma Action Plan 😱⁉️

Time to call your provider and schedule a visit! Make sure you are prepared BEFORE September scaries.
https://community.aafa.org/blog/september-asthma-epidemic

Asthma and Allergy News and Research September Asthma Epidemic AAFA Community Services 9/26/167:39 PM Does your asthma or your child’s asthma always seem to get worse in September? If so, you’re not alone. In fact, researchers have studied this issue. Here is what they found.September is a difficu...

Is it really back to school time again?! We know that   rates spike in September when school-aged kids are exposed to ne...
08/08/2017

Is it really back to school time again?! We know that rates spike in September when school-aged kids are exposed to new allergens. One way to prepare for this kind of allergy season is to get vaccinated against the flu and pneumonia!

If your child has asthma, they should get both the flu and pneumococcal vaccines. These shots can go a long way toward keeping your child healthy this school year. Here are 5 reasons why they need these vaccines: https://community.aafa.org/blog/5-reasons-why-children-with-asthma-need-important-vaccines-before-heading-back-to-school

Need support managing your child's asthma at school? Join our online community where others will share their tips: community.aafa.org/join

This is a great visualization of asthma in the lungs - check it out!*Note: this video describes Rescue inhalers as "reli...
07/31/2017

This is a great visualization of asthma in the lungs - check it out!

*Note: this video describes Rescue inhalers as "relievers" and Controller inhalers as "preventative medications"

More than 300 million people around the world suffer from asthma, and
around 250,000 people die from it each year. But why do people get...

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