Matilda, Mito & MELAS

Matilda, Mito & MELAS This page is to keep everyone who loves Matilda up to date on her battle against MELAS.

Little photo dump and updates! Tillie’s back in school- 2nd grade! She loves school and has had the same amazing teacher...
10/10/2025

Little photo dump and updates! Tillie’s back in school- 2nd grade! She loves school and has had the same amazing teacher for 3 years now. And we got a puppy!

She’s been stable as far as we can tell. No strokes or SLEs but still having daily breakthrough seizures. Nothing slows her down! We’ve added a new specialist (urology) and adding podiatry next. Fighting for an activity chair for home has been a blast 🙄. Here’s some pics!

DOUBLE VOTES TODAY! Let’s get Bella out of 4th place!
08/11/2025

DOUBLE VOTES TODAY! Let’s get Bella out of 4th place!

This Sweet, Smart, Spicy, Silly HLHS Heart Warrior Is The BEST Little Sister To Disabled Big Sis! Fierce. Feisty. Resilient. Overcomer!

Tillie’s sister Bella’s Bravery Battle: A war against HLHS and more is still in the running! Go cast your free vote for ...
07/28/2025

Tillie’s sister Bella’s Bravery Battle: A war against HLHS and more is still in the running! Go cast your free vote for the day 🙏

This Sweet, Smart, Spicy, Silly HLHS Heart Warrior Is The BEST Little Sister To Disabled Big Sis! Fierce. Feisty. Resilient. Overcomer!

Five days left in round 1 to change these girls lives! One free vite a day for Tillie’s little sister!
07/26/2025

Five days left in round 1 to change these girls lives! One free vite a day for Tillie’s little sister!

This Sweet, Smart, Spicy, Silly HLHS Heart Warrior Is The BEST Little Sister To Disabled Big Sis! Fierce. Feisty. Resilient. Overcomer!

Ok guys, yesterday was kinda rough! A few things to clear up: This is a contest, yes, so ONE vote per day is FREE. It is...
07/23/2025

Ok guys, yesterday was kinda rough! A few things to clear up: This is a contest, yes, so ONE vote per day is FREE. It is ALSO a fundraiser for Toys for Tots, so if you want to vote more than once PER DAY, yes, it asks for a donation. I do not expect anyone to pay to vote! My girls were recipients of TFTs when things were really hard a few years ago, so this charity is near and dear to my heart, but we are not paying to participate and we do not expect others to contribute. This brings the Toys for TOTs name to the forefront so even that helps. I also thinks it’s just a fun thing to do. You can vote everyday!

This Sweet, Smart, Spicy, Silly HLHS Heart Warrior Is The BEST Little Sister To Disabled Big Sis! Fierce. Feisty. Resilient. Overcomer!

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Chesapeake, VA

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