The Donor Diaries Podcast

07/09/2025

Sue Rees returns to Donor Diaries to discuss donor protections
offered by the Alliance for Paired Kidney Donation (APKD) that are
making kidney donation more accessible and equitable for
everyone. As Chief Operating Officer with over 25 years of
transplant experience, Sue walks us through the comprehensive
"Donor Protect" program designed to eliminate financial barriers
while safeguarding donors' futures.

We explore how the Alliance reimburses lost wages (up to
$10,000), covers travel expenses for both donors and their support
persons, and even provides dependent and pet care assistance.
Sue explains their innovative "Home Advantage" program, which
allows donors to donate and recover locally while their kidneys are shipped to
recipients across the country. Most fascinating are the various
pledge programs that protect donors and their loved ones: the
Advanced Donation Pledge, the Family Pledge, the Friend Pledge,
and the Kidney Promise.

The conversation takes a global turn as Sue reveals how APKD's
international initiatives are creating life-saving matches across
borders. "Our differences can save our lives," she explains,
sharing the remarkable story of a Mexican poet with 94%
antibodies who found her match in Wisconsin. This global kidney
exchange program demonstrates how genetic diversity across
populations can be the key to finding matches for highly sensitized
patients.

Sue's personal journey into transplant care adds emotional depth
to the discussion. After losing her father to glioblastoma, she was
profoundly moved by his nurse's compassion: "I want to be that for
somebody," she decided. Today, through her work with the
Alliance, Sue helps give second chances to patients and families
facing medical crises.

Whether you're considering donation or simply curious about
advances in transplant care, this episode offers invaluable insights
into the protections that make kidney donation safer and more
accessible than ever before.

Link to Episode: https://donordiaries.com/kidney-pledges-pet-care-and-paychecks-the-unexpected-support-system-for-living-donors-with-the-apkd-episode35

07/08/2025

What happens when a transplant surgeon, a Nobel Prize-winning economist, and a willingness to trust strangers come together? A revolution in kidney donation that has saved 20,000 lives and counting.

Meet Dr. Michael Rees and Sue Rees, the power couple behind the Alliance for Paired Kidney Donation. In this captivating first installment of our two-part season finale, we journey back to 2007 when kidney paired exchange was in its infancy and most surgeons believed all transplant surgeries had to happen simultaneously to prevent donors from backing out.

Dr. Rees takes us behind the scenes of his radical experiment: what if we trusted donors to follow through on their promises even after their loved ones received kidneys? The medical establishment warned this trust-based approach could collapse the entire system. Undeterred, Mike vetted the first chain participant over a steak dinner, separated surgeries by weeks instead of performing them simultaneously, and created what would become what is now a common practice- NonSimultaneous Extended Altruistic-Donor chains.

Sue shares the heartbreaking reality that confronted her as a transplant coordinator: watching patients remain on dialysis despite having willing but incompatible donors.

Through their pioneering work with the Alliance's sophisticated matching algorithm, they have transformed how we think about organ donation, proving that human goodness and trust can overcome medical skepticism and logistical challenges.

Whether you're curious about organ donation, inspired by medical innovation, or simply love stories of human connection, this episode reminds us that our differences—even incompatible blood types—can ultimately save each other's lives.

Link to Episode: https://donordiaries.com/building-a-legacy-of-life-the-origins-of-the-alliance-for-paired-kidney-donation-episode-34

06/03/2025

A spiritual calling, a kidney voucher, and two pastors reconnecting after decades apart—this is no ordinary transplant story.

When Jim Pearl was diagnosed with Fabry's disease in 2004, he had no idea his journey would lead him back to Jeff Barker, a seminary friend from the 90s. After five years on dialysis, Jim clung to his mantra: "In the waiting, God is working". Meanwhile, Jeff saw Jim's Facebook post and felt a spiritual nudge to step forward, despite knowing little about kidney donation.

Though not a direct match, Jeff became a voucher donor donating at NYU Langone. His kidney went to someone in the NKR system, and Jim received a kidney voucher due to Jeff’s donation. Just three months later, Jim received his transplant at University of Utah Health.

For both pastors, the experience was deeply spiritual. Jim named his kidney "Gigi" (God’s Gift). Jeff sees the donation as part of Christian incarnational theology—"We often think about giving money, but we can give our very selves."

GiftWorks supported them throughout the journey, helping Jim share his story widely and guiding Jeff through the donation process. Their experience shows how organ donation not only saves lives, but also renews connections, deepens faith, and transforms both donor and recipient.

Jim’s advice for recipients: "Share your story as broadly as possible. It only takes one set of eyes." Jeff encourages potential donors to remember: "Your first yes is not your final yes. Each step requires thought, and each decision matters."

Learn more at yourgiftworks.com and consider how making yourself available to others can be a part of something greater.

Link to Episode: https://donordiaries.com/2-pastors-and-a-kidney-voucher

04/08/2025

Could a Facebook Scroll Save Your Life?

What if a casual Sunday scroll through Facebook could save a life? In this heartfelt episode of Donor Diaries, Rich and Cali share the extraordinary story of how a social media post led to a life-saving kidney transplant and an unexpected lifelong connection.

Rich, living with polycystic kidney disease, feared the wait for a deceased donor and the possibility of having to go on dialysis, and took a leap of faith by sharing his story online. Cali, grieving the loss of her brother to the same disease, stumbled upon Rich’s post and felt an unshakable pull to help. Neither could have predicted the twist of fate that would link them even closer—Rich had once been her brother’s boss.

Their journey is one of vulnerability, determination, and the incredible power of human connection. From meticulously tracking spreadsheets to navigating emotions and medical evaluations, both Rich and Cali approached the process with equal heart and grit. In the end, their story reminds us that sharing our struggles can spark unexpected miracles—and that even the smallest connections can change lives.

Richard and Cali represent a major milestone; they were the first successful kidney transplant to come out of the GiftWorks Program pilot. The GiftWorks Program is built on three core pillars that support both transplant recipients and those who step forward as living donors: Education, Support, and Advocacy.

To learn more about the GiftWorks program that helped make this match possible, visit yourgiftworks.com and check out our show notes.

Link to Episode: https://donordiaries.com/could-a-facebook-scroll-save-your-lif

03/06/2025

One donation can change a life forever, but behind every act of giving is a powerful story waiting to be told.

The Donor Diaries podcast brings you raw, heartfelt stories from living donors and insightful interviews with transplant professionals. From the decision to donate to the joy of saving a life, these real experiences will move and inspire you.

Listen now.: www.donordiaries.com

03/04/2025

The Gift of Hope with Dr. Harry Wilkins | Episode 32​

Link to Episode: https://donordiaries.com/the-gift-of-hope-with-dr-harry-wilkins-episode-32

Join us on Donor Diaries as we welcome Dr. Harry Wilkins, CEO of Gift of Hope, who transitioned from a 36-year career as a trauma surgeon to leading an organ procurement organization in 2020. With his unique perspective as both a physician and an industry leader, Dr. Wilkins offers a rare behind-the-scenes look at the complex and deeply personal world of deceased organ donation. From the moment of injury to the life-changing decisions families face, he sheds light on the critical role OPOs play in guiding and supporting donor families through the process.

A Chicago native, Dr. Wilkins shares how his childhood fascination with car mechanics unexpectedly led him to a career in surgery, a path shaped by his family's strong values of faith and service. Now, he is driven by a bold vision: a future where no one dies waiting for an organ. He discusses the transformative potential of xenotransplantation, 3D-printed organs, living donation, and emerging advancements in organ preservation—what he calls a growing set of tools in the transplant toolbox.

Throughout our conversation, Dr. Wilkins highlights the dedication of his team at Gift of Hope and their relentless work to save lives every day. He also explores the importance of dispelling myths about organ donation, increasing public awareness, and fostering a culture where donation is the norm.

This episode is an eye-opening look at the challenges and breakthroughs shaping the future of deceased organ transplantation—and the innovative solutions that could one day eliminate transplant waitlists. Tune in for an inspiring and informative discussion with one of the field’s most passionate advocates.

02/07/2025

Transporting Second Chances - When Kidneys Fly

Link to Episode: https://donordiaries.com/transporting-second-chances-when-kidneys-fly

Join us as we welcome the extraordinary Mike Lollo, a former
NYPD detective whose journey led him to become a passionate
advocate for kidney donation. Mike's life took an inspiring turn in
2018 when he donated his kidney to a stranger. He shares his
remarkable story with us, reflecting on how chance encounters
with people like Ned Brooks shaped his mission to transform lives
through the power of living donation. This episode highlights
Mike's dedication and the profound impact his advocacy has had
on individuals like Tommy Alexander and Mark Weiner.

We also explore Mike's career transition from the beat of New
York City streets to the intricate logistics of organ transport. His
role as chief strategy officer at the National Kidney Registry and
his current position with Mobile Network 24 underscore his
commitment to the safe and efficient transport of organs. Mike
provides an insider's perspective on the complex layers of
planning and coordination required to ensure successful
transplants, especially when time is of the essence. His insights
shed light on the critical importance of reliable transport systems
in saving lives.

Mike Lollo is also the host of a new podcast called “Let’s Talk
Transplant!” Mike was formerly co-host of the podcast “One is
Enough,” an NKR podcast. You can find both podcast wherever
you listen to podcasts!

11/01/2024

German Kidney Exchange: Crossing Oceans to Give the Gift of Life

Link to Episode: https://donordiaries.com/german-kidney-exchange-crossing-oceans-to-give-the-gift-of-life

What would compel an American living in Germany to navigate a labyrinth of legal and cultural barriers to donate a kidney to a stranger? Join us as we uncover the incredible story of Will Johnson, whose altruistic journey sheds light on the stark contrasts between organ donation practices in the US and Germany. In this episode, recorded in a charming house near Munich, we reveal Germany's current regulations surrounding kidney exchange and the low rates of living donations that Will encountered in his quest to give the gift of life.

Embark on a transatlantic journey with us as we explore the emotional and logistical hurdles Will faced, from initial inspiration to the surprising medical discoveries along the way. Hear about the practical steps of coordinating evaluations across borders, and the varied reactions from peers and workplaces in Germany. Through Will's story, we gain a deeper understanding of the personal sacrifices and triumphs that come with kidney donation, highlighting the incredible impact of what happens when we choose to love a stranger.

Will shares: “I’ve been the recipient of much kindness and generosity throughout my life and have been blessed with good health. It felt like the right time to give back. When I learned about altruistic kidney donation, I knew without a doubt this was the perfect opportunity to do something meaningful.”

10/01/2024

A Senior Donor’s Unwavering Generosity

Link to Episode: https://donordiaries.com/a-senior-donors-unwavering-generosity

How old is too old to save a life? At the age of 74, Tom Duncan defied societal norms to become America's oldest non-directed living kidney donor, and his story will change the way you think about aging and altruism. Join us for an intimate conversation from his serene home in Ruidoso, New Mexico, where Tom recounts the journey that began with a friend's struggle with dialysis and led him to a life-altering decision. Discover the rigorous evaluation process, the misconceptions about age limits, and the emotional benefits of donation that go far beyond the physical act.

Tom's inspiring narrative challenges preconceived notions and societal perceptions. We also delve into the Living Kidney Donor Voucher Program, which enables donors to give the gift of life while providing future security for their loved ones. Despite his loved one receiving a kidney from another source, Tom's unwavering commitment to donation shines through. This episode is a heartfelt tribute to the power of giving at any age! Don't miss this chance to be inspired by stories of love, resilience, and selfless generosity. This episode is dedicated to Ernie and David.

05/07/2024

Living Donors: Shedding Pounds to Save Lives

Link to Episode: https://donordiaries.com/living-donors-shedding-pounds-to-save-lives/

Imagine stepping into a world where giving the gift of life is made more accessible to all. That's the transformative journey we embark on with Ruby Rorty and Rachel Watson in the latest episode of Donor Diaries, as they share the details of a program called Project Donor. Ruby, from Stephen Levitt’s Center for RISC, shares the program's genesis and its profound impact on the healthcare sector's donor eligibility dilemma. With a focus on mutable health issues, this initiative paves the way for potential donors like Rachel, who recounts her heartening story of becoming a non-directed kidney donor and how Project Donor's comprehensive resources made her life-saving contribution possible.

Transitioning from eligibility to empowerment, our conversation reveals the personal touches that set Project Donor apart. Rachel's recount of the caring gestures she received—cards to edible arrangements—post-donation, underscores the program's commitment to holistic donor care. Echoing the significance of this support are the voices of case managers, the unsung heroes from the University of Chicago's Crown School of Social Work, who ensure a seamless experience for participants. As we celebrate both the program's success and the candid, inspiring advice shared by our guests, we're reminded of the deep connections forged through shared stories of hope, health, and humanity.

04/16/2024

Discovering the Unexpected Rewards of Donating a Kidney to a Stranger

Link to Episode: https://donordiaries.com/discovering-the-unexpected-rewards-of-donating-a-kidney-to-a-stranger

Imagine opening your heart to a complete stranger in one of the most profound ways possible. That's exactly what our guests, Josiah Wolfson and Kat Gordon, did when they each made the life-affirming decision to donate a kidney to someone they'd never met. Their compelling stories of self-discovery and transformation are sure to resonate deeply, as they recount the moments that led them to donate.

Josiah, a former lawyer turned spiritual nomad, describes an epic pandemic filled with change and growth, where the serenity of crafting a cob house in South America became a metaphor for rebuilding his own life's purpose. His narrative is a remarkable odyssey from the courtroom to the mountains, culminating in a gift that transcends the self. Kat, on the other hand, brings us into the fold of her own initial skepticism and the journey to understanding the profound impact one person can have. Together, they peel back the layers of their experiences, revealing the personal epiphanies and societal misconceptions that often accompany the complex giving of an organ.

We cap off this inspiring dialogue by examining the unexpected waves made by kidney donations, from the donors' enhanced health and perspectives to the creation of a tightly-knit community—a 'tribe'—bound by their shared altruistic choice. Their narratives illuminate the human capacity for connection, and the life-altering joy that stems from helping someone in need. Listen to the full episode for a heartfelt exploration of the rippling effects of kindness and the unexpected journeys that can unfold when you decide to share your most personal parts, with a stranger.

Donor Diaries is a podcast about the beauty and messiness of living organ donation. Get ready for some amazing stories about what happens when people decide to share their organs with other people, when people chose to share life.

03/05/2024

Nutcracker Kidneys with LJ the Medium

Link to Episode: https://donordiaries.com/nutcracker-kidneys-with-lj-the-medium/

LJ D**g, also known as LJ the Medium, embodies resilience and determination in her journey with Nutcracker Syndrome. Despite facing significant health challenges, LJ's refusal to discard her kidney led her on a remarkable path toward organ donation advocacy.

As the American Miss National Mrs. for 2024, LJ leverages her platform to raise awareness about the importance of organ donation. Her diverse background as an ordained Interfaith Minister, Certified Personal Trainer, Certified Sports Nutritionist, Certified Motivational Speaker, Reiki Practitioner, and author underscores her holistic approach to health and wellness.

In her books, "The Spirit of Hope" and "Think Like a Medium, Act Like a Warrior," LJ likely shares insights into her personal struggles and triumphs, inspiring readers to embrace a warrior spirit in facing life's challenges.

Moreover, LJ's starring role in "The LJ Documentary - The Story of a Warrior Spirit" further amplifies her message of resilience and advocacy. By sharing her own story, LJ empowers others to consider the impact of organ donation and the potential for transforming lives through selfless acts of generosity.

Through LJ's advocacy efforts and unwavering determination, she not only raises awareness for Nutcracker Syndrome but also highlights the importance of organ donation, ultimately making a profound difference in the lives of those in need.