MPN Research Foundation

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MPN Research Foundation

Patient-centric foundation that exists to fund research & improve outcomes for those living with MPNs Driving groundbreaking research. Improving lives.

Founded by patients for patients, MPN Research Foundation is a catalyst for research funding in pursuit of new treatments – and eventually a cure – for polycythemia vera (PV), essential thrombocythemia (ET), and myelofibrosis (MF) – blood cancers collectively known as myeloproliferative neoplasms (MPNs). To date, we have funded more than $18 million in MPN research. Through a combination of MPN cancer research, advocacy and education, we bring together patients, researchers, and clinicians around the common goal of realizing new treatment options and ultimately, a cure for MPNs.

10/17/2025

Have you checked out You and MPN yet? 💬

This free program from the MPN Research Foundation and Mechanisms in Medicine is packed with tools to help you understand MPNs — including:

🎞️ An animated video
🎥 Expert answers to patient questions
📊 A downloadable infographic
🗣️ A real patient story

It's made for patients, caregivers, and anyone impacted by essential thrombocythemia (ET), polycythemia vera (PV), or myelofibrosis (MF).

📲 Explore it now at www.YouandMPN.com and help spread the word!

This initiative is supported by the generosity of our sponsors: , , Incyte, Merck and .

10/09/2025

This year is full of uncertainty. The funding system for cancer research, especially for rare conditions like myeloproliferative neoplasms (MPNs), is under strain. But there’s one thing we do know: we are powerful when we stand together.

Today is National Donor-Advised Fund (DAF) Day — your chance to show what your DAF can do! Giving to MPN Research Foundation can: With a gift to MPN Research Foundation, you can

👉 connect patients with life-altering clinical trials.
👉 fund research projects with the potential to save lives.
👉 give hope to MPN patients that’s backed by science.
👉 save on taxes and avoid capital gains on assets!

A DAF is a tax-efficient savings account (like a 401k for giving). It’s already a powerful tool for any donor to make a difference, but it has even greater potential when we all pitch in together.

Still learning about DAFs? Discover the ease of opening a donor advised fund—plus the advantages you’ll enjoy—with your FREE guide: https://plannedgiving.mpnresearchfoundation.org/donor-advised-funds

10/07/2025

🌟The MPN PROGRESSion Registry™ is almost here! 🌟 Launching later this month, our patient-focused research initiative will gather comprehensive myeloproliferative neoplasm (MPN) patient health data over 5-10 years to help researchers answer vital questions about MPNs.

So, can it be trusted? Will health data be secure and safe for those who enroll?

Yes! The MPN PROGRESSion Registry™ Is committed to protecting your privacy and ensuring your data is secure. The highly secured system is built to safely store and encrypt all patient medical records and health information. The Registry:

🔒 Meets strict HIPAA medical privacy laws

🔒 Meets National Institutes of Health (NIH) standards for privacy & confidentiality

🔒 Is guided by medical experts and reviewed regularly by an independent Institutional Review Board (IRB), to ensure patient rights and safety

🔒 Keeps all data anonymous. Your name and other identifying personal information will never be shared with researchers or industry partners

🔒 Is built and managed by IQVIA, a global leader in patient registry technologies

Be on the lookout for launch announcements in the coming weeks, when the SECURE portal opens for you to enroll and .

10/05/2025

Can registries make a difference?
They already have.

Enroll-HD is the global research platform built for people impacted by Huntington’s disease. With over 30,000 participants and 150+ clinical sites, its scale changed the course of HD research, uncovering new genetic drivers of the disease that only became visible through the power of patient numbers.

“If you have the numbers and you have the samples, you can do great things,” says Dr. Simon Noble, Director of Scientific Communications at CHDI Foundation, the nonprofit behind Enroll-HD.

By uniting data and biological samples across thousands of individuals, Enroll-HD made it possible to launch earlier trials and ask bigger questions.

Now it’s time to ask: what could a registry do for people living with essential thrombocythemia (ET), polycythemia vera (PV), or myelofibrosis (MF)?

Stay tuned — MPN Research Foundation is committed to making the most of registry data 🌟 The MPN PROGRESSion Registry™ is launching soon! 🌟

10/03/2025

Thank you for an unforgettable Blood Cancer Awareness Month.

This month alone, 240 members of the MPN community came together and exceeded our goal of $100,000 to invest in research!

Because of you, new projects will launch in 2026 through the MPN Challenge™.

Because of you, passionate scientists are working in the laboratory late into the night to answer the questions that matter most to MPN patients, clinicians, and caregivers.

Thank you for your support, and for your belief in a brighter future for MPN patients. Join our community today and be a part of our network. https://goto.mpnresearchfoundation.org/461blqH

10/01/2025

It’s coming! The MPN PROGRESSion Registry™ is launching soon.

The MPN PROGRESSion Registry is a patient-focused research initiative built to gather and analyze comprehensive U.S. myeloproliferative neoplasm (MPN) patient health data over 5-10 years. The goal is to help scientists and clinicians better understand MPNs and the drivers of MPN disease progression, identify new treatment strategies, measure treatment efficacies — and ultimately find cures.

Stay tuned during the month of October for important Registry updates, and to learn when you will be able to enroll! Enrolling is a chance to give back to the MPN community and contribute to the future of MPN research, treatment, and care. Participation is easy, secure, private, and requires minimal time commitment.

09/30/2025

As Blood Cancer Awareness Month comes to a close, we want to say thank you. You’ve helped shine a light on myeloproliferative neoplasms (MPNs) — a group of rare, progressive blood cancers that are often overlooked.

So far this month, 200 members of the MPN community came together, and we raised nearly $88,000 to invest in research.

If you’ve already given, shared, or spoken up, thank you. If you haven’t yet, there’s still time to help us reach our $100,000 goal to jumpstart the next breakthrough through the MPN Challenge™.

Scientific experts, MPN patients, and caregivers will review applications from the top researchers in the field, selecting only those with the potential to make a meaningful difference in patients’ lives.

Let’s keep pushing for awareness and answers.

It’s not too late to join in. Blood Cancer Awareness Month ends today! https://mpnresearchfoundation.org/blood-cancer-awareness-month-campaign/

09/29/2025

Did you know? It can cost a billion dollars and take up to 15 years to and develop just ONE life-saving drug.

Capital for cancer research is competitive, and rare conditions like are often overlooked for funding.

We are the only organization that is laser-focused on advancing research toward new treatments for MPNs. The Foundation remains devoted to science and steadfast in our commitment to champion innovative MPN research.

It’s a big challenge, and we need your help to keep going.

Give now before is over. https://mpnresearchfoundation.org/blood-cancer-awareness-month-campaign/

09/26/2025

Stories like Sarah’s are a painful reminder that awareness and action are critical in advancing myeloproliferative neoplasm (MPN) research. Though often overlooked, patients, caregivers, researchers, and industry partners continue to unite with MPN Research Foundation to turn delays into discoveries and uncertainties into hope.

How are you getting involved on this Blood Cancer Awareness Month? Let us know in the comments and donate today: https://mpnresearchfoundation.org/blood-cancer-awareness-month-campaign/

Thank you to our partners: Incyte , GSK , Bristol Myers Squibb and

09/24/2025

Do you or someone you care about have (ET), (PV), or (MF)?

You and MPN is a new, free educational program created by the MPN Research Foundation in collaboration with Mechanisms in Medicine / Animated Patient — designed to help patients and caregivers better understand MPNs and feel empowered in their care.

What’s included:
🎬 Animated video explaining MPNs
🎥 Expert Q&A from leading MPN physicians
🗣️ A patient story sharing lived experience
📊 Downloadable infographic
🖼️ Visual slideshow and learning quiz

Start learning today at www.YouAndMPN.com and share with your community.

This initiative is supported by the generosity of our sponsors: , GSK, Incyte , and .

09/22/2025

What if artificial intelligence (AI) could spot the earliest signs of disease progression long before symptoms change? For patients with myeloproliferative neoplasms (MPNs), rare blood cancers that can progress unpredictably, this kind of insight would be priceless.

We are proud to fund researchers like Professor Daniel Royston. His team is analyzing bone marrow samples with AI — capturing hidden patterns that could predict disease transformation. As Royston explains,

“The huge power of machine learning is that it can begin to look at an image and really understand in fine detail the features which are different or similar between patient biopsies — and then look for signals that the human brain simply can't detect.”

The potential? A future where care is guided not just by what doctors see today, but by what AI models predict will occur tomorrow, offering patients more personalized care, faster answers, and better outcomes.

MPN Research Foundation is scanning the research landscape for breakthrough to fund through the 2026 MPN Challenge™.

Scientific experts, MPN patients, and caregivers will review applications from the top researchers in the field, selecting only those with the potential to make a meaningful difference in patients’ lives.

If you believe in the power of bold ideas — and in expanding the abilities of clinicians and researchers — please help fund the 2026 MPN Challenge™ by donating today. https://mpnresearchfoundation.org/blood-cancer-awareness-month-campaign/

09/18/2025

Understanding your MPN diagnosis is the first step.

That’s why the MPN Research Foundation, in collaboration with Mechanisms in Medicine Animated Patient , created You and MPN — a program designed to:
🧠 Make complex topics easier to understand
🎥 Feature expert voices and real patient stories
🧾 Provide tools to help you advocate for your care

Check it out at www.YouAndMPN.com

This initiative is supported by the generosity of our sponsors: GSK , , Incyte , Merck and .

Address

PO Box 10743
Chicago, IL
60610

Website

http://www.mpnresearchfoundation.org/

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