Lurie Children’s Single Ventricle Center of Excellence

04/03/2026

Share your incredible milestones! 📣🧠🫀🫁

We’re collecting community highlights to celebrate during the Spring 2026 SV-ONE Virtual Learning Session! ⭐If you’re an individual with SVHD, family member, or care center team member, share your milestones and achievements since the last Learning Session—big or small, for an opportunity to be recognized during our upcoming Spring 2026 Virtual Learning Session!
Share your highlights: https://www.svone.org/voices-united-stories
Bonus: Want to share your highlight publicly, too? Drop a quick “win” in the comments! 🎉

04/03/2026

Blue & Green Spirit Week runs from April 4 through April 11! Join us for fun activities that celebrate the Donate Life message, honor donors, and give hope to those waiting for a second chance at life.

You can plan your week with the Blue & Green Spirit Week calendar, and then get ready to share your blue & green colors on (and send some photos to the Blue & Green Day Photo Contest when it opens on Friday, April 10 😉)! 💙💚 Learn more here: https://donatelife.net/how-you-can-help/national-observances-celebrations/blue-green-day/

04/03/2026

The deadline for summer camp is APRIL 8, 2026!

Don't miss out on the connections and fun!❤️🫶❤️

https://campodayin.org/

Final weeks to sign your child up for heart camp! Deadline to April 8th for all sessions of summer heart camp. Have questions? Ask our Camp Director Brooke! Brooke@campodayin.org

03/31/2026

Today is ! ❤🩺 We appreciate all of the doctors who care for babies, children, and adults with congenital heart defects and who give hope to families everywhere.

Do you or your child have a favorite doctor? Tell us about them in the comments below! 👇❤️‍🩹

03/29/2026

Breaking science:

We’re proud to share new findings from the Fontan Outcomes Network, representing over 1,100 individuals living with Fontan circulation.
This work reflects what we know to be true: life after the Fontan is complex, ongoing, and requires coordinated care across centers to improve outcomes over time.

Sisters by Heart is honored serve as a partner within this collaborative network and to have our President contribute as a co-author on this publication. This work helps ensure that lived experience can shape not only what is studied, but how it translates to individuals and families navigating this journey.

https://www.ahajournals.org/doi/10.1161/CIRCULATIONAHA.125.078152

03/29/2026

Strong work by strong folks! ❤️🫶❤️

We’re proud to share new findings from the Fontan Outcomes Network, representing over 1,100 individuals living with Fontan circulation.
This work reflects what we know to be true: life after the Fontan is complex, ongoing, and requires coordinated care across centers to improve outcomes over time.

Sisters by Heart is honored serve as a partner within this collaborative network and to have our President contribute as a co-author on this publication. This work helps ensure that lived experience can shape not only what is studied, but how it translates to individuals and families navigating this journey.

https://www.ahajournals.org/doi/10.1161/CIRCULATIONAHA.125.078152

03/28/2026

See some Lurie Heart Center favorites among these adorable baby pics 🥰

03/26/2026

Love this lady! We are so fortunate that she continues to support or patients and families in her care coordination role!

🎙️ New Episode!🎙️ We are celebrating Social Work Appreciation Month by sitting down with wish alumni and referral partner Elaine Cesar. She shares how a wish impacts a child facing a critial illness, not only through her experience as a social worker at Ann & Robert H. Lurie Children's Hospital of Chicago but also her first hand account from her own wish journey over 20 years ago.

Listen now wherever you enjoy podcasts.

03/25/2026

Another fun connection event on June 6, 2026 for your family and friends. Join the Lurie team, form your own, and join in on some good wholesome joy! 🌷🪻⚘️🌻

Placing Children at the Heart of Research

03/21/2026

SAVE THE DATE!!

Registration is open for the Spring 2026 SV‑ONE Virtual Learning Session, and the Agenda at a Glance is now available! 💛
We invite individuals with SVHD, family members, and care center teams to review the agenda at a glance and register for a day of learning, collaboration, and community. This year’s theme is “Voices United: Patients, Families, and Clinicians Partnering to Drive Change.”
👉 Register and view additional details: https://www.svone.org/events/spring-virtual-learning-session

03/14/2026

Letting kids be kids!! 🛝🎨🎶