Lurie Children’s Single Ventricle Center of Excellence

02/15/2026

Love the themed olympic connections and inspirational fun! ❤️🫶❤️

Thanks Camp Odayin for offering so many varieties of opportunities to connect individuals and families with CHD.

https://campodayin.org/events/

Can you guess the theme of the weekend at winter camp?

02/14/2026

As CHD awareness week ends, let's keep up the momentum to link arms, share knowledge, and push for better care! ❤️🫶❤️

02/14/2026

❤️🫶❤️

02/14/2026

❤️🫶❤️

Happy VAD‑entine’s Day! 💕

Sending lots of love to our patients, their families, and the care teams who support them every step of the way!

02/14/2026

Are you a registered organ donor? ❤️🫶❤️

Happy National Donor Day! ❤️ Share the love and register your decision to be an organ, eye and tissue donor at RegisterMe.org. Thank you to all donors, registered donors, donor families, and living donors for your generosity! 💙💚
Learn more about National Donor Day (and download National Donor Day Valentine cards!) at https://www.donatelife.net/celebrations/national-donor-day/

02/14/2026

❤️🫶❤️

Today is about love. ❤️
And today is about life. 💙

On this Valentine’s Day and National Organ Donor Day, we are reminded that the greatest form of love is giving someone more time.

For the CHD community, organ donation is hope.
A second chance.
A saved life.

We honor the donors.
We stand with the waiting families.
And we remember the heart warriors.

Be an organ donor.
Be a hero.
Be the reason someone gets to live, laugh, and love.

02/14/2026

02/13/2026

Today we're revisiting one of the most powerful stories we’ve shared — a reflection from years ago that still beautifully captures why our mission matters. ❤

Martha Hauber, who was chair of our Board of Directors at the time, shared: "In the first picture, taken the day Drew was born, I should have realized something was wrong. His feet were VERY blue. My sister was a "blue baby", born with a in 1965. She only lived three days, as there were no treatment options. I thought of the empty space in all my family photos where my sister should have been, and I wondered…would my children have a vacancy where Drew should be? In the throes of surgeries & long hospitalizations, I often prayed if I could just see a family photo of 5 years out, or 10 or 20 years...would Drew still be in the picture? Thanks to CHD research, he is in the photo with his siblings and two brother-in-laws. I will always support The Children's Heart Foundation's mission so there are more children in more family photos." ❤️🫶

The Children’s Heart Foundation funds research to give CHD families more time with the ones they love. Is there anything more valuable? Please open your heart to support research today: https://secure.qgiv.com/for/gitcam/

02/13/2026

Patient Spotlight (Fun Friday Flip the Script) - Featuring Nas

"Nasalacam b.k.a Nas is our two-year-old heart warrior.
We chose the name Nasalacam because it means
battle tested and we knew he was facing a life full of
battle.
Nas is our life’s inspiration. I remember the day we
were informed of his CHD, it was gut wrenching. After
he was born, we put him in a bubble. No visitors, no
going out, we felt like we needed to “protect” him. We
started to realize the bubble was a hindrance to his
growth and we weren’t living.
He has had two open heart surgeries, both earlier than
expected because Nas tells us what his heart needs
when it needs it. We are now able to experience Nas
running around with kids his age and we can say with
confidence we picked the perfect name.
The CHD journey is not one that any family wants to
go through, but we embrace it, we live it, we find ways
to make Nas and his journey meaningful! We enjoy life
and we enjoy Nas. We travel, we attend festivals, and
we have learned to live outside the bubble. This
journey has made us pause and enjoy life in the
moment. We no longer sweat the small things. I
encourage all heart families to do the same in the best
way they can."

Photos and post shared with family permission.

02/13/2026

Patient Spotlight (Fun Friday Flip the Script): Featuring Mohammed

"From the fear of the unknown during pregnancy to a strong and full of hope treatment journey. We felt a strong team was supporting us; from delivery, to surgeries, to hospitalizations, to tube weaning. Even though it has been a tough road, it is all worth it. From avoiding anything by mouth to a curious little guy that puts everything in his mouth, smashing and eating his birthday cake was a joy. Mohammed is growing stronger with Lurie by his side. His cardiology team and his pediatrician are part of our extended family. They are there whenever we need them medically and emotionally."

Pictures and post shared with permission from family. Flowery Faiza

02/13/2026