Lurie Children’s Single Ventricle Center of Excellence

09/04/2025

Share your experiences!

09/01/2025

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08/30/2025

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08/24/2025

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08/08/2025

Congratulations to our very own Jessica Cowin for winning the 2025 CNOC Advocacy and Engagement Award! We are so lucky to have her as a member of the Lurie family!!

We can’t wait to see her in Denver next month to celebrate her achievement! We hope some of you will join us!!

https://cardiacneuro.org/cardiac-neurodevelopmental-advocacy-and-engagement-award/?fbclid=IwQ0xDSwMCbklleHRuA2FlbQIxMQABHkoDG5-MWtE_nx4nm_l3k_2BZiPuHArHY6oUBv5rezp5pywgjL9r9USWQeWM_aem_mf47g38kGltMBQI0jJKMsw

08/07/2025

This is a great tool to share with families about liver health, FALD, and Fontan Circulation.

We are excited to share the Fontan Liver Health Testing Resource for Individuals with Single Ventricle Circulation from our Liver Health Project Workgroup. This resource intends to provide patients and families with education on monitoring of Fontan-associated liver disease as part of overall Fontan care! Learn more: https://www.svone.org/resources-support

07/29/2025

Join us! Virtual attendance is free for families!!

07/22/2025

Apply now!!

On July 1st FON & NPC-QIC officially announced that they became the Single Ventricle Outcomes Network (SV-ONE)! The first lifespan registry and Learning Health Network dedicated to supporting individuals with single ventricle heart disease!
This fall we invite you to join us at the 2025 Learning session in Indianapolis!
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We are excited to announce our scholarship opportunities for Sisters by Heart SV-ONE Learning Session and SV Patient Day. This scholarship is for patients and families affected by Single Ventricle Heart Disease. We will be awarding up to four (4) scholarships for the upcoming collaborative Learning Session (including SV Patient Day) in Indianapolis, IN on 10/10-10/11/25.
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While the event is free for patients and families to attend, Sisters by Heart will reimburse up to $1,000 in travel and lodging related expenses, with valid receipts, following the event. The application deadline is 8/20/25 and we will notify scholarship recipients by 8/25/25.
**please fill out the application https://docs.google.com/forms/d/e/1FAIpQLSdPYgTMq6G6Rj9pqKYY7rZddor9xrnVBD4twL_HhRhFd01tqQ/viewform

07/22/2025

Indianapolis is the destination for a new and merging lifespan collaborative including individuals with single ventricle physiology, families, and providers. Mark your calendars and join the team.🏎🏁

The countdown is on for our Fall 2025 Learning Session! Plan to join us on October 10-11 at the Sheraton Indianapolis Hotel at Keystone Crossing! While registration for the Learning Session will open in August, attendees can reserve their hotel room in advance at a special rate by September 15. Visit https://www.marriott.com/event-reservations/reservation-link.mi?id=1750963413471&key=GRP&app=resvlink for additional details! Please stay tuned in the coming weeks for our agenda-at-a-glance and registration opportunities.