Lurie Children’s Single Ventricle Center of Excellence

22/07/2025

Apply now!!

On July 1st FON & NPC-QIC officially announced that they became the Single Ventricle Outcomes Network (SV-ONE)! The first lifespan registry and Learning Health Network dedicated to supporting individuals with single ventricle heart disease!
This fall we invite you to join us at the 2025 Learning session in Indianapolis!
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We are excited to announce our scholarship opportunities for Sisters by Heart SV-ONE Learning Session and SV Patient Day. This scholarship is for patients and families affected by Single Ventricle Heart Disease. We will be awarding up to four (4) scholarships for the upcoming collaborative Learning Session (including SV Patient Day) in Indianapolis, IN on 10/10-10/11/25.
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While the event is free for patients and families to attend, Sisters by Heart will reimburse up to $1,000 in travel and lodging related expenses, with valid receipts, following the event. The application deadline is 8/20/25 and we will notify scholarship recipients by 8/25/25.
**please fill out the application https://docs.google.com/forms/d/e/1FAIpQLSdPYgTMq6G6Rj9pqKYY7rZddor9xrnVBD4twL_HhRhFd01tqQ/viewform

22/07/2025

Indianapolis is the destination for a new and merging lifespan collaborative including individuals with single ventricle physiology, families, and providers. Mark your calendars and join the team.🏎🏁

The countdown is on for our Fall 2025 Learning Session! Plan to join us on October 10-11 at the Sheraton Indianapolis Hotel at Keystone Crossing! While registration for the Learning Session will open in August, attendees can reserve their hotel room in advance at a special rate by September 15. Visit https://www.marriott.com/event-reservations/reservation-link.mi?id=1750963413471&key=GRP&app=resvlink for additional details! Please stay tuned in the coming weeks for our agenda-at-a-glance and registration opportunities.

22/07/2025

Why is Single Ventricle Outcomes NEtwork needed? Research explained will help guide your understanding of this important research community.

There is a new Research Explained summary available! Research Explained summaries are put together by our Research & Publications Committee to make single ventricle research easier to understand. Read the summary for "Risk Factors in Adverse Outcomes in a Fontan Population" under the Pediatric Fontan section at www.svone.org/research-explained-topics

10/07/2025

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02/07/2025

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02/07/2025

Building, growing, and shaping care throughout a lifespan!

26/06/2025

Get involved!!

Apply to join the SV-ONE Quality Improvement Workgroup by June 30! The Workgroup is seeking new volunteers to join beginning this summer. Terms are two years-long with opportunity for extension. We welcome multi-disciplinary perspectives, individuals with SVHD, & family members to this team. Details: https://buff.ly/7EWGLok

21/06/2025

Worth a listen to hear this incredible multidisciplinary developmental teamwork building the QI tube weaning progress inspired by National Pediatric Cardiology Quality Improvement Collaborative patients and families. Striving for tube freedom is present whether diagnosed with or . Truly grateful for the collaborative for investing in building a tool kit. Thank you Megan Horsley for sharing this important QI work so eloquently as a nutritionist and mother experienced with an NG tube.

Podcast Episode · Nutrition Pearls: The Pediatric GI Nutrition Podcast · 06/18/2025 · 59m

11/06/2025

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10/06/2025

American Heart Association annual Chicagoland walks arrive September 19 (Soldier Field), 20 (oak Brook), and 21 (North Shore), 2025. Consider joining a walk for heart care!

The Heart Walk is the American Heart Association's premiere event for raising funds to save lives from USA's #1 and #5 killers - heart disease and stroke.