MDA of Central NY

10/24/2024

MDA partners including International Association of Fire Fighters, National Association of Letter Carriers, CITGO Petroleum Corporation, and more, to participate in the reveal of the winners’ dream costume in 2025. NEW YORK, Thursday, October 24, 2024 – The Muscular Dystrophy Association (MDA), ...

10/15/2024

Olivia Holler’s experiences made her want to embrace her differences and help others understand life with a disability.

10/14/2024

A.J. Bardzilowski, who lives with a rare double diagnosis, shares how he adapted to physical challenges in his career.

09/23/2024

MDA volunteer Doug Britton's commitment to serving others and making a positive impact on the world is a foundation in his family.

09/22/2024

Neuromuscular neurologist, Tahseen Mozaffar, MD, provides insight on understanding the complexities of the disease, Myositis.

09/18/2024

🎉 Big win! The House of Representatives passed Accelerating Kids’ Access to Care Act (AKAC), bringing us closer to ensuring kids living with neuromuscular diseases get faster access to life-saving treatments, no matter where they live. Huge thanks to MDA advocates and our congressional champions for your support! Join us to continue to advocate for access for our community at MDA.org/Advocacy

09/16/2024

Books and the stories they contain have the power to connect communities and help children learn and grow values and empathy which is why representation is important. Our Ambassador shares his story!

09/16/2024

Thinking about college? Join MDA on Sept. 18 and 26 at 3pm ET for the Planning for College Learning Series. Get organized with tools for preparation, support at college, and finding, hiring, and training personal care attendants. The presenters of this series are Annie Tulkin from Accessible College and Adrienne Frumberg Lighthouse Guidance. This program is free for the neuromuscular community and registration is open now here: https://mdausa.webex.com/webappng/sites/mdausa/webinar/webinarSeries/register/d96f11c4fb9a4cd2825ba8025d5c85cd

Special thanks to our sponsor Edgewise Therapeutics.

09/13/2024

We are so grateful to our Gold Sponsor AmSpec Group for their support at the upcoming CITGO Fueling Good Linden Terminal Golf Classic presented by Auchter Industrial Vac Service! Your support brings the neuromuscular community together to raise awareness and funds for the mission of Muscular Dystrophy Association .

09/13/2024

September is National Preparedness Month. Check out our MDA Virtual Learning Preparing for Emergencies session with Roger Lopez, MDA- International Association of Fire Fighters National Coordinator, retired Captain & Safety Officer San Antonio Fire Department, and Derek Pollnow, MDA State Coordinator, Federated Fire Fighters of Wyoming and Engineer/Paramedic & Wildland Coordinator, Cheyenne Fire & Rescue. This webinar addresses preparing for the unexpected and will help attendees understand potential risks in their geographical area and the different types of emergencies they might encounter, how to make an emergency plan, and how to build an emergency kit. Watch on-demand here: https://www.youtube.com/watch?app=desktop&v=OI0x41Mm3-0

09/11/2024

On this day of remembrance, MDA pays tribute to the bravery and sacrifice of the hundreds of New York City Fire Department (FDNY) fire fighters and International Association of Fire Fighters members lost to 9/11. Their courage will forever inspire us. We stand in solidarity with all families impacted by 9/11, united in the belief that together, we are stronger.

09/06/2024

This Muscular Dystrophy Awareness Month, feel empowered to make an impact. We have 30 amazing ideas for you to support people living with neuromuscular disease. Pick one (or more!) and make a difference today. 🌟

Explore the list here: MDA.org/30Ways30Days

08/26/2024

Over 420 IAFF ‘Fill the Boot’ events nationwide with local fire departments over Labor Day Weekend celebrating 70 years of partnership with MDA and IAFF NBC KSDK’s ‘Show of Strength’ Broadcast on September 1 live from Grants Farm in St. Louis from 8-10 p.m. MDA on the Hill from September 8...

08/26/2024

Muscle Walk Your Way (New York) - Steps for Sundae

Steps for Sundae

Muscular Dystrophy Association

08/23/2024