Lurie Children's Spina Bifida Center

24/06/2025

The Lurie Children’s Spina Bifida Center, in collaboration with Drs. McLone and Bowman, is conducting a long-term follow-up study to better understand the health and well-being of our oldest patients.

If you were born between 1975 and 1979 and received care at our center, we would greatly appreciate your participation in this important study.

To participate or learn more, please contact us at:
📧 mvotoupal@luriechildrens.org

Thank you for helping us improve care for future generations.

06/06/2025

One day she’s our adorable little patient and in a blink she is now a licensed clinical professional counselor speaking on sexual and reproductive health at our national Spina Bifida meeting!

02/05/2025

We are looking to launch brief learning moments about Spina Bifida. What topics would you like to learn more about? Topics can range from tips on routine care, to symptoms management. We would love to hear your ideas. Please respond to this thread with any suggestions. Thanks!

15/02/2025

Registration for YMCA Camp Independence can be found below!

Whether you’re interested in fun daytime activities or an overnight stay that will immerse you in nature, YMCA Camp Independence has what you’re looking for! We offer a variety of overnight camp options that help campers build self-reliance and lasting friendships. 

11/02/2025

We 🩵 our SB Families! Thank you for sweetening our day.

31/01/2025

We hope you all will join the Lurie SB Center in support of the 2025 Teal on the Hill, which will be taking place March 2-4th. Registration is now open!

This is our opportunity to attend meetings with members of Congress to advocate for continued funding for the National Spina Bifida Program at the CDC, disability rights, affordable and accessible health care, medical supplies, and technology.

The link to register can be found here:
https://give.sbaa.org/event/2025-teal-on-the-hill/e646676?c_src=email&c_src2=pastparticipants

Of note, if you are planning on attending virtually, registration has to be received by February 7th.

If you have any questions about the event, please email advocate@sbaa.org.

Hope you are able to join us!

Sunday, March 2TBD Training Day 1Monday, March 3TBD Training Day 2Tuesday, March 4TBD Virtual meetings with members of CongressScheduled throughout the day*This is your opportunity to attend meetings with your members of Congress. It's critically important that members of Congress hear your ...

08/01/2025

Calling all current patients and parents/caregivers of current patients seen in the Lurie Children’s Spina Bifida Center!

We would like to extend the opportunity to rotate onto our Spina Bifida Family Advisory Board (SB FAB). We are looking for current patients (14+ years) as well as parents/caregivers of current patients to participate. If you are interested in applying to the SB FAB, please respond below with your email address and we will email you the SB FAB application. Thanks!

26/11/2024

If you are planning on seeing the Zoo Lights at Brookfield Zoo this Holiday season, make sure to check out Tree #286; the "Families of Lurie Children's Spina Bifida Clinic" tree!! The tree looks incredible and we absolutely love seeing all these smiling faces!!

13/02/2024

The Lurie Spina Bifida Team says -- THANK YOU for the yummy Valentine’s Day treats!!

26/10/2023

In honor of World Spina Bifida Day, the Mattioda family is doing a fundraiser for the Illinois Spina Bifida Association!

Youth sizes: $23 (2T-Youth XL)
Adult sizes: $24
How to order: please send Kylie Mattioda an email at
kymattioda@gmail.com.
Payment can be sent via Venmo -Mattioda otherwise cash or check can be sent to PO Box 385, Utica, IL 61373!

This is a preorder, so please get orders in by Mila's birthday, which is November 6th. All proceeds will be going to the ISBA, which is a vital program to help improve the quality of life for children, adults and families in Illinois living with Spina Bifida.

***Inclusion: the practice or policy of providing equal access to opportunities and resources for people who might otherwise be excluded or marginalized, such as those who have physical or intellectual disabilities, or members of other minority groups***

25/10/2023

Happy World Spina Bifida Day to all of our Heroes and their families!

15/06/2023

We had a very successful counselor training day at Camp Independence today!!