MDA OKC

03/03/2025

To better serve our community and provide you with more streamlined updates, the Muscular Dystrophy Association(MDA) is consolidating this local page with our National MDA page: https://www.facebook.com/MDAOrg

By centralizing our communications, we’ll:
✅ Share stories that show how your support and impact at home is driving impact and momentum in your hometown and across America.
✅ Provide consistent updates on research, resources, and programs.
✅ Keep you informed about upcoming events, advocacy efforts, and ways to get involved.

We’re so grateful for your support here and invite you to Follow our national page to stay connected and up to date. Together, we’ll continue to make a difference for individuals and families impacted by muscular dystrophy, ALS, and related neuromuscular diseases.

Click here to join us: https://www.facebook.com/MDAOrg/

Thank you for being part of our incredible community!!💙💛💙💛

MDA is the #1 voluntary health organization in the US for people living with neuromuscular diseases.

09/23/2024

MDA volunteer Doug Britton's commitment to serving others and making a positive impact on the world is a foundation in his family.

09/22/2024

Neuromuscular neurologist, Tahseen Mozaffar, MD, provides insight on understanding the complexities of the disease, Myositis.

09/16/2024

Books and the stories they contain have the power to connect communities and help children learn and grow values and empathy which is why representation is important. Our Ambassador shares his story!

09/16/2024

Thinking about college? Join MDA on Sept. 18 and 26 at 3pm ET for the Planning for College Learning Series. Get organized with tools for preparation, support at college, and finding, hiring, and training personal care attendants. The presenters of this series are Annie Tulkin from Accessible College and Adrienne Frumberg Lighthouse Guidance. This program is free for the neuromuscular community and registration is open now here: https://mdausa.webex.com/webappng/sites/mdausa/webinar/webinarSeries/register/d96f11c4fb9a4cd2825ba8025d5c85cd

Special thanks to our sponsor Edgewise Therapeutics.

09/11/2024

On this day of remembrance, MDA pays tribute to the bravery and sacrifice of the hundreds of New York City Fire Department (FDNY) fire fighters and International Association of Fire Fighters members lost to 9/11. Their courage will forever inspire us. We stand in solidarity with all families impacted by 9/11, united in the belief that together, we are stronger.

09/06/2024

This Muscular Dystrophy Awareness Month, feel empowered to make an impact. We have 30 amazing ideas for you to support people living with neuromuscular disease. Pick one (or more!) and make a difference today. 🌟

Explore the list here: MDA.org/30Ways30Days

08/23/2024

08/22/2024

Join us on August 29, September 5, and September 12 for this in-depth learning series all about advancements and considerations in gene therapy across neuromuscular diseases. This multi-day series is free for people living with neuromuscular disease and their caregivers.

Presentations from experts in the field include: Craig Zaidman, MD and Natalie Goedecker CPNP, WashU Medicine, Barry J. Byrne, MD, PhD UF Health, Michael Storey, PharmD from Nationwide Children's Hospital, Paul Melmeyer, VP of Public Policy and Advocacy at MDA, and Aravindhan Veerapandiyan, MD from Arkansas Children's.

Each presentation will also offer a live Q&A. Register today! https://mdausa.webex.com/webappng/sites/mdausa/webinar/webinarSeries/register/4bfad64d0f6a4cc0b8d71beb80d124d4

08/21/2024

Quest Holiday Product Guide features eight MDA Ambassadors from across the country with products that enhance independence for the disability community. NEW YORK – Wednesday, August 21, 2024 – The Muscular Dystrophy Association's (MDA) Quest Media, an innovative adaptive lifestyle platform inclu...

08/13/2024

MDA funds scientists around the world to explore new frontiers in neuromuscular disease research. Learn more from Matthew Disney, Ph.D., UF Health, and visit MDA.org/Science for more information.

08/06/2024

ADVOCATES TAKE ACTION: The Accelerating Kids' Access to Care Act aims to streamline the process for children and families to access out-of-state care through state Medicaid programs, including neuromuscular care. Ensuring access to the best treatments without unnecessary delays and red tape is critical. Tell Congress to move this bill forward and take action with MDA here: https://www.votervoice.net/MDA/Campaigns/117108/Respond

08/01/2024

07/27/2024

07/27/2024

In celebration of Disability Independence Day, the team behind the award-winning film ‘Good Bad Things’ and AMC Theatres have announced that the movie will be presented in 50 AMC Theaters across the US on August 15th. The film follows Danny (Danny Kurtzman), an entrepreneur with a physical disability who reluctantly tries a dating app. An unexpected match with Madi (Jessica Parker Kennedy), an enigmatic photographer, challenges him to be vulnerable and sparks a profound journey of self-acceptance with the support of his long-time best friend Jason, (Brett Dier).

Buy tickets here: https://www.amctheatres.com/movies/good-bad-things-77505

07/16/2024

Chris Anselmo, who lives with limb-girdle muscular dystrophy (LGMD), shares why he started writing about handling adversity.