MDA St. Louis

03/03/2025

To better serve our community and provide you with more streamlined updates, the Muscular Dystrophy Association (MDA) is consolidating this local page with our National MDA page: https://www.facebook.com/MDAOrg

By centralizing our communications, we’ll:
✅ Share stories that show how your support and impact at home is driving impact and momentum in your hometown and across America.
✅ Provide consistent updates on research, resources, and programs.
✅ Keep you informed about upcoming events, advocacy efforts, and ways to get involved.

We’re so grateful for your support here and invite you to Follow our national page to stay connected and up to date. Together, we’ll continue to make a difference for individuals and families impacted by muscular dystrophy, ALS, and related neuromuscular diseases.

Click here to join us: https://www.facebook.com/MDAOrg/

Thank you for being part of our incredible community!💙💛💙💛

MDA is the #1 voluntary health organization in the US for people living with neuromuscular diseases.

01/08/2025

MDA Summer Camp, offered in-person and virtually, is provided at no cost to families of children and young adults living with neuromuscular diseases. 2025 also marks the 75th Anniversary of the Muscular Dystrophy Association. New York, Tuesday, January 7, 2025 – The Muscular Dystrophy Association ...

10/24/2024

MDA partners including International Association of Fire Fighters, National Association of Letter Carriers, CITGO Petroleum Corporation, and more, to participate in the reveal of the winners’ dream costume in 2025. NEW YORK, Thursday, October 24, 2024 – The Muscular Dystrophy Association (MDA), ...

10/15/2024

Olivia Holler’s experiences made her want to embrace her differences and help others understand life with a disability.

10/14/2024

A.J. Bardzilowski, who lives with a rare double diagnosis, shares how he adapted to physical challenges in his career.

09/23/2024

MDA volunteer Doug Britton's commitment to serving others and making a positive impact on the world is a foundation in his family.

09/22/2024

Neuromuscular neurologist, Tahseen Mozaffar, MD, provides insight on understanding the complexities of the disease, Myositis.

09/19/2024

🎉 Big win! The House of Representatives passed Accelerating Kids’ Access to Care Act (AKAC), bringing us closer to ensuring kids living with neuromuscular diseases get faster access to life-saving treatments, no matter where they live. Huge thanks to MDA advocates and our congressional champions for your support! Join us to continue to advocate for access for our community at MDA.org/Advocacy

09/18/2024

MDA members and their immediate family are invited to join us for a day of discovery at Grant's Farm. Guests are invited to enjoy snacks in a private event space while connecting with other members of the neuromuscular community. Space is limited and available on a first-come, first-served basis. RSVP is required by October 4th. Event details: Saturday, October 19 from 1:00 pm – 3:00 pm at Grant’s Farm 10501 Gravois Rd St Louis, Missouri 63123. Please click link below to RSVP:

09/16/2024

Books and the stories they contain have the power to connect communities and help children learn and grow values and empathy which is why representation is important. Our Ambassador shares his story!

09/16/2024

Thinking about college? Join MDA on Sept. 18 and 26 at 3pm ET for the Planning for College Learning Series. Get organized with tools for preparation, support at college, and finding, hiring, and training personal care attendants. The presenters of this series are Annie Tulkin from Accessible College and Adrienne Frumberg Lighthouse Guidance. This program is free for the neuromuscular community and registration is open now here: https://mdausa.webex.com/webappng/sites/mdausa/webinar/webinarSeries/register/d96f11c4fb9a4cd2825ba8025d5c85cd

Special thanks to our sponsor Edgewise Therapeutics.

09/13/2024

September is National Preparedness Month. Check out our MDA Virtual Learning Preparing for Emergencies session with Roger Lopez, MDA- International Association of Fire Fighters National Coordinator, retired Captain & Safety Officer San Antonio Fire Department, and Derek Pollnow, MDA State Coordinator, Federated Fire Fighters of Wyoming and Engineer/Paramedic & Wildland Coordinator, Cheyenne Fire & Rescue. This webinar addresses preparing for the unexpected and will help attendees understand potential risks in their geographical area and the different types of emergencies they might encounter, how to make an emergency plan, and how to build an emergency kit. Watch on-demand here: https://www.youtube.com/watch?app=desktop&v=OI0x41Mm3-0

09/11/2024

On this day of remembrance, MDA pays tribute to the bravery and sacrifice of the hundreds of New York City Fire Department (FDNY) fire fighters and International Association of Fire Fighters members lost to 9/11. Their courage will forever inspire us. We stand in solidarity with all families impacted by 9/11, united in the belief that together, we are stronger.