Dystonia Medical Research Foundation

07/14/2025

If you have been diagnosed with cervical dystonia, you may qualify to participate in a clinical research study that is enrolling now. You may be eligible to join this study if you:
• Are 18–80 years old.
• Have been diagnosed with cervical dystonia.
• Have received botulinum injections anytime in the past 5 years
Those who qualify may receive: Compensation for your participation in the study; reimbursement for travel and accommodations; no-cost for study-related care and no-cost for study medication. Control starts with research. See if you qualify today. https://bit.ly/4lggkJY

05/14/2025

Escape to Antigua by bidding on a 7-10 night stay at the luxurious St. James’s Club! Enjoy premium accommodations for up to 3 rooms and unwind on beautiful beaches. This is your chance to discover your inner beach bum by participating in the online Dystonia Medical Research Foundation Auction for Action May 12-22.

💙 All proceeds go to dystonia research. https://onecau.se/dystonia-foundation

05/12/2025

Mark your calendars for May 12-22, when the Dystonia Medical Research Foundation hosts the online Auction for Action to support dystonia research. Bid on travel packages, memorable experiences, sports collectibles, jewelry, unique keepsakes and other one-of-a-kind items. DMRF VP of Development Ron Hersh offers of preview of the items that will be on the virtual auction block. https://youtu.be/fH7KPZ1xYwI

Mark your calendars for May 12-22, when the Dystonia Medical Research Foundation hosts the online Auction for Action to support dystonia research. Bid on tra...

04/24/2025

Congratulations to Jacob Peterson for completing the 2025 Boston Marathon running 26.2 miles on April 21 to promote dystonia awareness and raise funds for research. The back of his jersey proudly displayed that he is "dystonia strong!" Jacob's fundraiser for the DMRF is still open for those who would like to contribute to the cause with their congratulations. Way to go, Jacob! https://dystonia-foundation.org/get-involved/events/jacob-peterson-boston-marathoner/

04/13/2025

Get ready for a night out on the town! Mark your calendar for the Dystonia Medical Research Foundation Auction for Action May 12-22. This is your chance to bid on dining experiences, theatre tickets and much more, all while supporting dystonia research.

04/11/2025

From weekend getaways to one-week vacations—you can bid on hotel stays in a variety of locations. The Dystonia Medical Research Foundation annual online auction—now known as DMRF Auction for Action—is coming May 12-22. More details on how you can support dystonia research coming soon!

04/10/2025

Mark your calendars for April 30 at 6:00 pm CDT, when the Dystonia Medical Research Foundation will host a webinar on “The Power of Laughter” featuring Laughter Yoga Teacher Rachel Frank. Discover the therapeutic benefits of laughter yoga from the comfort of your own home! REGISTER TODAY: https://us02web.zoom.us/webinar/register/WN_8pDjiyRoRtepTWfeLO-qcg

04/09/2025

April is Stress Awareness Month—a good time to learn ways to counteract the harmful effects of chronic stress on your health. Individuals diagnosed with dystonia can experience non-motor symptoms such as disruptions in sleep, anxiety, depression, or pain-related symptoms that affect more than how the body moves. These are referred to as the “Non-Motor Symptoms of Dystonia.” The Dystonia Medical Research Foundation has added a new brochure on Non-Motor Symptoms of Dystonia to our library of resources.

DOWNLOAD NOW:https://dystonia-foundation.org/wp-content/uploads/2025/03/DMRF_Non-MotorSymptomsBrochFNL.pdf

04/09/2025

The Dystonia Medical Research Foundation has added a new brochure to our library of resources: Non-Motor Symptoms of Dystonia. This brochure explores the psychiatric, cognitive, sleep or pain-related symptoms that may affect people diagnosed with dystonia.https://dystonia-foundation.org/wp-content/uploads/2025/03/DMRF_Non-MotorSymptomsBrochFNL.pdf

04/08/2025

Stay in the know about what is happening with research, advocacy, education and other resources in the community with the DMRF monthly e-newsletter. The April e-news is now available https://conta.cc/43wAHwX

04/08/2025

The Dystonia Medical Research Foundation has awarded a research grant to Martin Piazza, MD, from the University of Pittsburgh, for “Neurosurgery in Pediatric Dystonia: A multimodal analysis of complex decisions.” Dr. Piazza will research how families make informed decisions about deep brain stimulation (DBS) surgery for children with dystonia. https://youtu.be/op1sLD5yY74

04/07/2025

Thank you for celebrating your pets with us last month! Thanks to your incredible support, your pets raised over $21,000 to support the important work of the Dystonia Medical Research Foundation, and post-Palooza donations are still coming in! Thank you for making a difference for the dystonia community.