Virginia Chapter of The Lung Transplant Foundation

05/16/2022

So happy for our very own Mark and Ava Howard. Mark received his lung transplant at Duke and walked out of the hospital 8 days later.

10/25/2021

And remember--it's ok to ask for a little help. Learn about our Mentor Program. We walk alongside of you on your transplant journey. https://lungtransplantfoundation.org/mentorship/

10/21/2021

For the first time, a pig kidney has been transplanted into a human without triggering immediate rejection by the recipient's immune system, a potentially major advance that could eventually help alleviate a dire shortage of human organs for transplant.

10/18/2021

07/26/2021

The Lung Transplant Foundation is pleased to introduce our new Executive Director, Amy Skiba. Amy joined the Lung Transplant Foundation in June and was working closely with Jeff Goldstein, founder of LTF prior to his passing.

Amy’s nonprofit career started in 2016 as the Executive Director for the NEPA region of the American Heart Association. As an Executive Director with the AHA, Amy’s focus was on development and community health initiatives to better outcomes for heart and stroke patients while raising critical funds for research. Amy hopes to bring her experience to the Lung Transplant Foundation and continue the critical work for our transplant community.

Read Amy's full bio here. This link also introduces our Board of Directors -- we are grateful for their leadership and direction during this transition. https://lungtransplantfoundation.org/our-people/

07/21/2021

In recognition of Rare Disease Week 2021, Zambon hosted a webinar, Bronchiolitis obliterans syndrome, the Achilles heel of lung transplantation.

The findings of a comprehensive research project involving interviews with almost 40 BOS patients, caregivers and healthcare professionals provide a unique insight and better understanding of those living with and treating BOS. The populations explored in this initial research included both lung transplant and alloHSCT.

Webinar highlights:
• The emotional impact of a BOS diagnosis, and the reality of living with BOS; and
• Detailed insights into the challenges and opportunities of BOS detection, diagnosis, and care

View at:

06/30/2021

The Lung Transplant Foundation is saddened to announce the passing of President and Founder, Jeff Goldstein. A steadfast leader and treasured friend, for the nearly 18 years following his transplant, Jeff dedicated himself to improving the lives of other lung transplant patients and their families.

Jeff spent every day honoring the gift he was given the day of his double lung transplant. The Lung Transplant Foundation now continues its work in his honor, and the honor of all members of the lung transplant community that have been lost. The family has asked that those wishing to express sympathy consider donating to the Lung Transplant Foundation to further Jeff and the community's work. Donate here: https://lungtransplantfoundation.org/donate/

06/13/2021

Father's Day is a week from today, Sunday June 20. Your support helps improve outcomes for dads and grandfathers who are going through a transplant or caring for someone on their transplant journey.

You can show your support in 2 ways: First, shop on Amazon Smile and select the Lung Transplant Foundation as your charity. https://smile.amazon.com/

Second, make a donation in honor of a dad you know who is part of the lung transplant community. Donate here: https://lungtransplantfoundation.org/donate/

06/06/2021

When you shop at AmazonSmile, Amazon will donate to Lung Transplant Foundation of Florida. Support us every time you shop.

05/26/2021

May is Cystic Fibrosis Month, and we have Mentors available to help those on their transplant journey. We are so grateful for Mentors like Karen Carlson who are willing to share their experiences and give back.

To learn more about our Mentor Program, visit our website. https://lungtransplantfoundation.org/mentorship/

05/23/2021

Are you looking for an opportunity to make a difference for the post-lung transplant community? Apply to participate in the Altavant Sciences Patient Advisory Meeting (age 18+, U.S. only). Altavant Sciences is currently developing a potential treatment for CLAD. Learn more and submit your form by June 2.
https://forms.gle/35eq5fECoewPkWnD7

05/20/2021

Join the Lung Transplant Foundation and CareDx for a live webinar on how COVID-19 is impacting lung transplant. Here is what we will cover: • How COVID-19 is impacting lung allocation • What patients on the waitlist can expect moving forward • Hear from a patient who received a lung transplant...