Virginia Chapter of The Lung Transplant Foundation

05/16/2022

So happy for our very own Mark and Ava Howard. Mark received his lung transplant at Duke and walked out of the hospital 8 days later.

10/25/2021

And remember--it's ok to ask for a little help. Learn about our Mentor Program. We walk alongside of you on your transplant journey. https://lungtransplantfoundation.org/mentorship/

10/21/2021

For the first time, a pig kidney has been transplanted into a human without triggering immediate rejection by the recipient's immune system, a potentially major advance that could eventually help alleviate a dire shortage of human organs for transplant.

10/18/2021

07/26/2021

The Lung Transplant Foundation is pleased to introduce our new Executive Director, Amy Skiba. Amy joined the Lung Transplant Foundation in June and was working closely with Jeff Goldstein, founder of LTF prior to his passing.

Amy’s nonprofit career started in 2016 as the Executive Director for the NEPA region of the American Heart Association. As an Executive Director with the AHA, Amy’s focus was on development and community health initiatives to better outcomes for heart and stroke patients while raising critical funds for research. Amy hopes to bring her experience to the Lung Transplant Foundation and continue the critical work for our transplant community.

Read Amy's full bio here. This link also introduces our Board of Directors -- we are grateful for their leadership and direction during this transition. https://lungtransplantfoundation.org/our-people/

07/21/2021

In recognition of Rare Disease Week 2021, Zambon hosted a webinar, Bronchiolitis obliterans syndrome, the Achilles heel of lung transplantation.

The findings of a comprehensive research project involving interviews with almost 40 BOS patients, caregivers and healthcare professionals provide a unique insight and better understanding of those living with and treating BOS. The populations explored in this initial research included both lung transplant and alloHSCT.

Webinar highlights:
• The emotional impact of a BOS diagnosis, and the reality of living with BOS; and
• Detailed insights into the challenges and opportunities of BOS detection, diagnosis, and care

View at: https://www.youtube.com/watch?v=9k2-Mg55qRc

06/30/2021

The Lung Transplant Foundation is saddened to announce the passing of President and Founder, Jeff Goldstein. A steadfast leader and treasured friend, for the nearly 18 years following his transplant, Jeff dedicated himself to improving the lives of other lung transplant patients and their families.

Jeff spent every day honoring the gift he was given the day of his double lung transplant. The Lung Transplant Foundation now continues its work in his honor, and the honor of all members of the lung transplant community that have been lost. The family has asked that those wishing to express sympathy consider donating to the Lung Transplant Foundation to further Jeff and the community's work. Donate here: https://lungtransplantfoundation.org/donate/

06/13/2021

Father's Day is a week from today, Sunday June 20. Your support helps improve outcomes for dads and grandfathers who are going through a transplant or caring for someone on their transplant journey.

You can show your support in 2 ways: First, shop on Amazon Smile and select the Lung Transplant Foundation as your charity. https://smile.amazon.com/

Second, make a donation in honor of a dad you know who is part of the lung transplant community. Donate here: https://lungtransplantfoundation.org/donate/

06/06/2021

When you shop at AmazonSmile, Amazon will donate to Lung Transplant Foundation of Florida. Support us every time you shop.

05/26/2021

May is Cystic Fibrosis Month, and we have Mentors available to help those on their transplant journey. We are so grateful for Mentors like Karen Carlson who are willing to share their experiences and give back.

To learn more about our Mentor Program, visit our website. https://lungtransplantfoundation.org/mentorship/

05/23/2021

Are you looking for an opportunity to make a difference for the post-lung transplant community? Apply to participate in the Altavant Sciences Patient Advisory Meeting (age 18+, U.S. only). Altavant Sciences is currently developing a potential treatment for CLAD. Learn more and submit your form by June 2.
https://forms.gle/35eq5fECoewPkWnD7

05/20/2021

Join the Lung Transplant Foundation and CareDx for a live webinar on how COVID-19 is impacting lung transplant. Here is what we will cover: • How COVID-19 is impacting lung allocation • What patients on the waitlist can expect moving forward • Hear from a patient who received a lung transplant...

05/06/2021

Join The Lung Transplant Foundation and CareDx, Inc. on May 12 for a webinar dedicated to COVID-19, the impact on lung transplant, and the latest data from Johns Hopkins Medicine regarding the immune response to the vaccine in transplant recipients.
- Impact of COVID-19 on lung transplant patients
- Latest data from Johns Hopkins Medicine regarding Dose-1 and Dose-2 Immunogenicity
May 12, 2021 3-4 pm EDT
Register here: https://caredx.zoom.us/.../6416.../WN_nsA_g9t5T8OfY9heYzhtFw

05/03/2021

May is Skin Cancer Awareness Month! Lung transplant recipients are at high risk of skin cancer. As summer approaches, be sure to take extra precautions to wear sunscreen, spf shirts and wide brim hats. Learn more about protection from the Skin Cancer Foundation. https://www.skincancer.org/skin-cancer-prevention/

04/26/2021

American Thoracic Society

04/21/2021

Happy Lungaversary® to everyone who is celebrating the anniversary of their lung transplant this April! Congrats to:
Jason
Deborah
Wilma
Debora
Sharon
William
Mae
Janie
Allison

Every Lungaversary® is special. Help the Lung Transplant Foundation by raising funds so that all lung transplant recipients can celebrate their Lungaversaries, too.

Have a virtual Lungaversary® party and invite all your friends to celebrate with you! If you haven’t signed up yet, we’d love to know the date of your Lungaversary®. Learn more and sign up here: https://lungtransplantfoundation.org/lungaversary/

04/21/2021

DID YOU KNOW: More than 1,900 children under the age of 18 are on the national transplant waiting list. More than 500 of the children waiting for transplant are between 1 and 5 years old. This week, we join Donate Life America in recognizing National Pediatric Transplant Week.

To make a pediatric donation, a parent or legal guardian must authorize the donation for anyone under the age of 18 years. 15-17-year-olds may register their intent to be a donor; however, until they are 18 years old, a parent or legal guardian makes the final donation decision.

Here's what you can do: to register your decision to save and heal lives, visit RegisterMe.org. To learn more about organ, eye, tissue and living donation, visit DonateLife.net.