Cincinnati Children's Heart Institute

07/31/2025

07/30/2025

RSVPs are still being accepted for this event! Please reach out to sotpress@cchmc.org if you are interested in participating!

07/28/2025

💛 We are incredibly grateful to Cincinnati Children's Heart Institute for supporting the Cincinnati Congenital Heart Walk as our Gold Sponsor! 💛

Their dedication to advancing care and research for congenital heart defects makes a lasting impact on children and families in our community and beyond. Together, we're funding the breakthroughs that lead to brighter futures for all Heart Warriors and Heart Angels. 💗

Thank you, Cincinnati Children’s, for walking alongside us in the fight against CHD! We can’t wait to celebrate with you this Saturday at the Cincinnati Zoo! 🐾❤️ https://events.chfwalk.org/event/cincinnati/

07/28/2025

Brave Like Me is offering $10 Kings Island tickets for their Brave Friends Adventure on August 17th! This special outing is open to all kids with a complex medical condition, their best friend, and their immediate family.

Link for tickets: https://givebutter.com/BraveFriendsKingsIsland

A huge thank you to the Brave Like Me team for offering this wonderful outing to our patients and families!

07/24/2025

At The Heart Institute, we see firsthand the strength, love, and resilience of parents every single day.

To the moms, dads, guardians, and caregivers who walk beside their children through every appointment, every procedure, and every heartbeat — thank you. Your courage inspires us. Your dedication moves us. And your love makes all the difference.

You are not just caregivers — you are heroes.

Today, and every day, we honor YOU. Thank you for trusting us with your most precious hearts. 💓

Happy Parent Appreciation Day!

07/21/2025

Saturday was our Heart Institute Family Zoo Day! Our patients, families, and staff were brought together for a day of fun! We want to see your photos from Zoo Day! Share them below ❤️

07/17/2025

Vivian was diagnosed at the 20-week anatomy scan with D-TGA, or transposition of the great arteries, a congenital heart defect. I delivered her at the Cincinnati Children's Hospital Medical Center, and immediately had a balloon septostomy done to allow for blood flow. This stabilized her for 7 days until she had open heart surgery (Arterial Switch Operation). Vivian is now 9 months old and thriving!

Have a story you want to share? Send us a direct message!

07/10/2025

Registration is still open! We are hosting a family-focused conference for patients with Marfan, Loeys-Dietz Syndrome, and VEDS on October 25, 2025 with The Marfan Foundation!
You can register for the conference using the QR code or this link: https://marfan.org/.../cincinnati-regional-symposium.../
Registration is free!

07/02/2025

"Kalix was diagnosed in utero at 28 weeks with Hypoplastic Left Heart Syndrome, Double Outlet Right Ventricle, Coarctation of the Aorta, Mitral Atresia, and multiple Ventricular Septal Defects. He had his first open heart surgery (The Norwood) at 7 days old. The surgery/recovery time couldn’t have gone smoother. We were discharged to the Ronald McDonald House!

His second open heart surgery (The Glenn Procedure) was done at 4 months old. He did well at first, but soon after coming back to the CICU, his oxygen saturations began plummeting and he had to go back for a heart cath. They discovered there was a fistula (an abnormal passageway that shouldn’t be connected) connecting the LPA to the left atria. The decision was made to place a covered stent in the LPA to occlude this fistula. After fixing this, he was a whole different baby and on the right track to recovering.

When he was 6 months old, he was finally able to come home for the first time! He has heart caths every few months to replace his stents & another open-heart surgery in store when he’s older. But for now, he is enjoying being home with his family! I’m forever grateful for his entire medical team; he has received nothing but the best care during his many hospials stays & monthly checkups. He is now 9 months old & thriving! He’s the happiest baby you’ll ever meet!"

06/27/2025

Our last day at Camp Joy - we fished, had a pool party with DJ Jon Jon, and had a silent disco party!!!

06/26/2025

Camp Joyful Hearts 2025!

A huge thank you to our Cincinnati Children’s Heart Institute team, our volunteers, and Camp Joy staff for making this all possible!

06/26/2025

We had the best day yesterday at Camp Joy! We had chalk artist, Cincy Chalk Guy come and teach us how to make chalk art! The VR team showed us the inside of the heart, we had rock climbing and pool time! The Flubs truck came for our annual block party! What a fun day 4 for Camp Joyful Hearts!