The LAM Foundation

07/29/2025

Introducing new Region 16 LAM Co-Liaison Kristen Duncan

Kristen Duncan joins Mountain Region Liaisons Audrey Knipe and Kelly O’Toole-Leonard in serving LAM patients in Colorado and Utah. Living near the foothills in Little Colorado, Kristen understands some of the challenges of living with LAM at altitude and desires to use her personal experience to encourage and support others. She is particularly sensitive to the uniqueness of each person’s LAM journey, knowing there are different ways to cope and process all of the new information.

The LAM Foundation is deeply grateful for the commitment of our LAM Liaisons, like Kristen, who provide communities of care for women with LAM. LAM Liaisons are a listening ear, a source of empathy, and facilitators of resources and support for women navigating the unique challenges of this disease.

Click below to find a liaison in your area.
https://www.thelamfoundation.org/take-action/lam-liaison-patient-network/

07/28/2025

Breath of Hope Gala: A Celebration of Heroes in Pearls

Join us on Saturday, September 27, for a night of joy, community, and celebration as we honor 30 incredible years of The LAM Foundation 🎉

This isn’t just a gala—it’s an inspiring gathering of LAM patients, families, friends, and supporters. Enjoy an evening filled with cocktails, dinner, dancing, and meaningful ways to support our mission. Don’t forget your pearls and dress to impress for this formal event!

Why You Should Attend:

➡️Free for Conference Attendees! Register for LAMposium and your gala ticket is included.
🎟️Bring a Guest! Not attending the full conference? You can still join us for the gala!
📋Silent Auction Fun! Bid on exciting items—all proceeds support LAM research.
🌹The Rose Ceremony: A touching moment where every woman with LAM receives a rose, standing together in unity.

🔬Fund A Cure: Raise your paddle high during our live auction to directly support LAM research.
Let’s celebrate our past, cherish our present, and fund a brighter future together! 💖

👉 Click below to register for the gala and learn more! We can’t wait to see you on the dance floor! 💃✨
https://ow.ly/9eFp50WwoqU

07/25/2025

Meet Mary Beth Brown, PhD, PT: Transforming Exercise into Medicine!

With nearly a decade as a physical therapist and now an Associate Professor at the University of Washington, Dr. Brown is on a mission to optimize exercise for patients with lung diseases, including lymphangioleiomyomatosis (LAM).

Join us at LAMposium in Kansas City, MO September 26-28 for her session, “Exercise in LAM: Journey from Identification of Patient Need to the Development of LAMFit.” Dr. Brown will share her journey in creating the groundbreaking digital fitness program, LAMFit, highlighting findings from the Exercise and Fatigue Study and recent beta testing results.

Don’t miss this opportunity to learn about the future of exercise therapy in LAM!

Register: wXy@MkL2AkzfgmMUGhqO/m" rel="ugc" target="_blank">https://whova.com/portal/registration/wXy@MkL2AkzfgmMUGhqO/m

University of Washington

07/24/2025

🌟 ! 🌟

Who remembers when Josh Duhamel graced us with his presence at the 2004 LAMposium in Cincinnati? It was an evening to remember filled with inspiration and hope for those living with LAM.

As we gear up for this year’s Breath of Hope Gala in Kansas City, who do you think we should invite next? We’re dreaming of Taylor Swift🎤 or the cast💖 Share your thoughts and tag your favorite celebrities below!

📷: Our founder Sue Byrnes with her daughter Andrea, former development director Glenda, and Josh Duhamel at the Breath of Hope Gala in 2004.

07/21/2025

Share your gratitude with professionals dedicated to the LAM community.

As we prepare for this year’s LAMposium, we invite you to share your heartfelt “thank you” notes to the incredible professionals serving our mission. These handwritten notes will be distributed at the conference, serving as a reminder of our deep appreciation for their commitment to those living with LAM.

🗓️ Deadline: Please send your notes to The LAM Foundation by Friday, August 15, 2025.

💌 Address your notes to LAM Specialists and LAM Researchers, thanking them for their invaluable contributions.

📬 Mail your notes to:
The LAM Foundation
4520 Cooper Rd. Suite 300
Cincinnati, OH 45242

Let’s show our appreciation! Thank you for being part of this gesture!

07/18/2025

We are excited to feature Dr. Carisa Parrish, a child psychologist at Children’s Mercy Kansas City and associate professor at the University of Missouri, Kansas City. Dr. Parrish will lead two important sessions: "Mental Health Support for Care Partners" and "I’m Not Crazy: Finding Strength, Facing Challenges, and Advocating for You."

With expertise in medical adherence and coping with medical stress, Dr. Parrish focuses on providing trauma-informed, family-centered care. Her research on emotion regulation and parent stress in pediatric care makes her a vital resource for families navigating rare diseases.
Join us at LAMposium in Kansas City, MO September 26-28 to attend these engaging sessions and more!

Register: wXy@MkL2AkzfgmMUGhqO/m" rel="ugc" target="_blank">https://whova.com/portal/registration/wXy@MkL2AkzfgmMUGhqO/m

Children's Mercy
Mizzou
Johns Hopkins Medicine

07/17/2025

🎭✨ It’s ! Who remembers the enchanting Masquerade theme from the Breath of Hope Gala at LAMposium 2018? Such magical memories! This year, we’re excited to unveil our theme: Pearls! Join us in celebrating The LAM Foundation’s 30th anniversary in style this September in Kansas City, MO.
Bring your favorite string of pearls and let’s make new memories!
👉 Learn more about this special event and how you can be part of it: www.thelamfoundation.org/LAMposium

07/14/2025

🌟 Welcome Karen Kinsey to The LAM Foundation Team! 🌟
We are excited to announce that Karen Kinsey is joining our team as the Circle of Hope Coordinator! Karen has a long history with the Foundation and living with LAM. She was diagnosed in 2002, and she underwent a successful double lung transplant at NYU Langone in January 2023.

With her experience as a volunteer Circle of Hope mentor, Karen is well-equipped to support our community, especially regarding pre- and post-transplant experiences. Her journey has fueled her passion for raising awareness and providing hope to others affected by LAM.

Learn more about Karen at https://www.thelamfoundation.org/staff/karen-kinsey-mba/. We are thrilled to have her on board!

07/12/2025

🚨ENDING TODAY--EARLY BIRD PRICING

Don’t miss out! Early pricing for the 2025 International LAM Research Conference & LAMposium ends TONIGHT, July 12, at 11:59 PM CT.

Secure your seat with us in Kansas City before ticket prices increase and space becomes limited. Whether you are a researcher, clinician, individual with LAM, or supporting someone with LAM, this is a fantastic opportunity to connect with others in the LAM community.
Register Now: wXy@MkL2AkzfgmMUGhqO/" rel="ugc" target="_blank">https://whova.com/portal/registration/wXy@MkL2AkzfgmMUGhqO/

07/11/2025

EARLY BIRD PRICING ENDS TOMORROW

Don’t miss out! Early pricing for the 2025 International LAM Research Conference & LAMposium ends tomorrow, Saturday, July 12, at 11:59 PM CT.
,
Secure your seat with us in Kansas City before ticket prices increase and space becomes limited. Whether you are a researcher, clinician, individual with LAM, or supporting someone with LAM, this is a fantastic opportunity to connect with others in the LAM community.
Register Now: wXy@MkL2AkzfgmMUGhqO/" rel="ugc" target="_blank">https://whova.com/portal/registration/wXy@MkL2AkzfgmMUGhqO/


,

07/11/2025