The LAM Foundation

04/13/2026

The Easy Breathers are at it again for their 13th Million Dollar Bike Ride! Join us in person in Philadelphia on Saturday, June 13, or virtually from your chosen location on your chosen date. Thanks to your generous support, The LAM Foundation's Easy Breathers has raised nearly $1 million over the last twelve years.

Join our team and create your fundraising page today!
https://ow.ly/SUuv50YoEYl

04/10/2026

Congratulations to Dr. I. Caroline Le Poole, PhD, from Northwestern University Feinberg School of Medicine, Boston, MA, for receiving the Pilot-Feasibility Award. Her research will focus on Rapamycin-resistant CAR T-cells for LAM.

04/09/2026

Looking to Reduce Taxes + Create Impact?

A Charitable Remainder Trust (CRT) can provide income to you or your loved ones — and leave a meaningful gift to The LAM Foundation.

$ Income stream for life or term

$ Capital gains tax deferral

$ Tax deduction now, LAM support later

Great for appreciated assets or complex estates.

Learn more tax friendly ways to give at thelamfoundation.org/waystogive

04/08/2026

Join The LAM Foundation Community today!

Sign up to become a part of our supportive network of women with LAM, their loved ones, scientists, and clinicians. Receive valuable resources and stay informed on the latest LAM-related news and events.

https://ow.ly/cvKN50XjNTW

04/07/2026

Last month, TLF was represented on the national stage at the American Medical Women’s Association (AMWA) Annual Meeting by board members Dr. Lyndsay Hoy and Dr. Nancy Spector. Speaking at the intersection of women’s reproductive health and rare disease, Dr. Hoy highlighted the urgency of making conditions like LAM more visible and better understood. Dr. Spector discussed women's leadership in a time of crisis. We are grateful for their dedication to being leaders in women's health, advocacy, and the LAM community.

04/06/2026

The LAM Foundation is pleased to share that a new LAM Clinic has opened at Inova Fairfax Hospital in Falls Church, VA. Dr. Zein Kattih serves as Clinic Director and is committed to providing informed clinical care for patients with LAM.

To locate a LAM Clinic in your area, visit https://www.thelamfoundation.org/find-support/locate-a-lam-clinic/

04/03/2026

Thanks to the amazing support from the LAM community and participation in a research survey conducted by the University of Washington, results from a study about urinary incontinence in LAM have been published in the Cardiopulmonary Physical Therapy Journal under the title “Stress Urinary Incontinence Is Prevalent in Women with Lymphangioleiomyomatosis”.

The study led by Dr. Brenna Lanton in the research laboratory of Dr. Mary Beth Brown found that urine leakage is very common in women with LAM, and most are not getting help for it.

Read the full article here: https://www.thelamfoundation.org/new-research-shows-urine-leakage-is-a-common-symptom-in-those-with-lam/

04/02/2026

Closing soon: Application to join the Patient Voice Committee (PVC).

PVC members will review grant proposals alongside scientific reviewers, provide feedback from a patient perspective, and vote on which studies to fund. The PVC ensures the patient voice is heard and that research remains focused on studies that will most impact those living with LAM.

Details:

Who: 3 patients will be selected (US and International)

Commitment: 25-30 hours per year

Term: 3 years

Interested? If you are active in the LAM Community and want to shape the future of LAM research, we want to hear from you!

Apply by April 4, 11:59 PM ET: https://ow.ly/ScFI50YzLES

04/01/2026

LAM Jerseys and Running Shirts Now Available!

Want to show team spirit in the fight to end LAM? Purchase your The LAM Foundation Easy Breathers jersey or shirt by April 24.

https://ow.ly/GFsb50Yzlxk

03/31/2026

It's here! The March edition of The LAM Foundation newsletter is now available. Click here to read the latest: https://mailchi.mp/thelamfoundation/heres-the-latest-the-lam-foundation-newsletter-8489603

03/31/2026

Don't forget to join today before registration prices increase tomorrow! Learn more and register: https://charity.pledgeit.org/MillionDollarBikeRide/teams/

🚴‍♀️ATTENTION MDBR RIDERS!
Registration prices for the Million Dollar Bike Ride are going UP on April 1st!

Lock in your spot at the current price of $65 before the non-fundraising option increases to $85.

Save money and show up on June 13th to support your rare disease team! 🧬💙
Register NOW at bit.ly/MDBR2026

03/30/2026

Registration is now open for our next webinar on WEDNESDAY 4/29!

After a lung transplant, careful monitoring is essential to protect the health and longevity of the transplanted lungs. Rejection can occur even when a patient feels well, so recognizing early warning signs and understanding how rejection is monitored are critical parts of post-transplant care. This session will discuss the different types of lung transplant rejection, common early symptoms, and the tests doctors use to detect changes as early as possible.

Bring your curiosity and submit your questions on this topic to Kkinsey@thelamfoundation.org by April 20, 2026.

Register: https://www.thelamfoundation.org/event/circle-of-hope-recognizing-and-monitoring-earl-signs-of-lung-transplant-rejection/