The LAM Foundation

The LAM Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from The LAM Foundation, Medical and health, 4520 Cooper Road, Suite 300, Cincinnati, OH.

The LAM Foundation is a non-profit, voluntary health agency whose primary goal is to find an effective treatment and ultimately a cure for lymphangioleiomyomatosis (LAM) through peer-review funding of promising research.

Meet Teri Childs, LAM Liaison, for Quebec and the Atlantic provinces of eastern Canada. Teri is a Commercial Pilot and a...
10/29/2025

Meet Teri Childs, LAM Liaison, for Quebec and the Atlantic provinces of eastern Canada.

Teri is a Commercial Pilot and an outdoor enthusiast who believes in living life to the fullest. Teri is familiar with facing professional challenges due to her diagnosis and is a great example of adapting creatively to continue doing what she loves. She desires to connect with and help fellow LAM patients by answering any questions, listening to their journey, and doing what she can.

The LAM Foundation is deeply grateful for the commitment of our LAM Liaisons like Teri, who provide communities of care for women with LAM. LAM Liaisons are a listening ear, a source of empathy, and facilitators of resources and support for women navigating the unique challenges of this disease.

Click the link below to learn more about the LAM Liaison Network and to find a liaison in your area.

https://bit.ly/46qbsuA

Join The LAM Foundation Community today! Sign up to become a part of our supportive network of women with LAM, their lov...
10/29/2025

Join The LAM Foundation Community today!

Sign up to become a part of our supportive network of women with LAM, their loved ones, scientists, and clinicians. Receive valuable resources and stay informed on the latest LAM-related news and events.

https://ow.ly/cvKN50XjNTW

A Promising Breakthrough in Lung Testing for LAM Patients: Introducing OscillometryAt The LAM Foundation, we believe tha...
10/24/2025

A Promising Breakthrough in Lung Testing for LAM Patients: Introducing Oscillometry

At The LAM Foundation, we believe that hope grows through research—and we’re excited to share a promising new development that could transform how lung health is monitored in individuals with LAM.

For years, pulmonary function tests (PFTs) such as spirometry and plethysmography (the “body box”) have been the standard tools for assessing lung function. While valuable, these tests can be challenging for patients, requiring forceful breathing or specialized equipment only available in large centers. They may also miss early signs of lung decline.

Now, thanks to Foundation-funded research, scientists are exploring a simpler, more sensitive, and patient-friendly option: oscillometry—a test that measures lung function while patients breathe normally. This breakthrough offers new hope for earlier detection, better monitoring, and more comfortable care for people living with LAM.
Read the whole story: https://ow.ly/jM3l50XeqhP

It's not too late to join the 17th Annual Laps for LAM this October! Take your laps virtually to raise awareness and fun...
10/23/2025

It's not too late to join the 17th Annual Laps for LAM this October! Take your laps virtually to raise awareness and funds for a cure.

1️⃣ Create a plan! Walk, run, bike, or swim in your hometown.
2️⃣ Register for just $10! Choose to participate as an Individual, Join a Team, or Create a Team.
3️⃣ Share your story! Personalize your page with a photo and your goal.
4️⃣ Start your laps! 🏃‍♀️ Anytime through October.

This year's teams are going strong! Join them today and help us keep up the momentum.

Register here: https://give.thelamfoundation.org/event/laps-for-lam-2025/e718769

Thank you again to everyone who joined us for the 2025 International LAM Research Conference and LAMposium! Together, ou...
10/22/2025

Thank you again to everyone who joined us for the 2025 International LAM Research Conference and LAMposium! Together, our community of patients, families, researchers, and clinicians are energized and determined to make a difference. Because of you, we are one step closer to advancing treatment and finding a cure for LAM.

Join Us for Rare Disease Week on Capitol HillThe LAM Foundation is proud to once again participate in the EveryLife Foun...
10/20/2025

Join Us for Rare Disease Week on Capitol Hill

The LAM Foundation is proud to once again participate in the EveryLife Foundation’s Rare Disease Week on Capitol Hill, taking place February 24–26, 2026. This powerful event unites rare disease patients and advocates from across the country to educate congressional leaders and raise awareness of the issues that matter most to our community.
Participants are responsible for their own travel and accommodations; however, the EveryLife Foundation offers travel reimbursement scholarships, with applications due November 8. Event registration opens January 7, 2026.
If you plan to attend, please let us know at patientservices@thelamfoundation.org so we can coordinate efforts and connect you with others representing The LAM Foundation.
Learn More: https://everylifefoundation.org/rare-advocates/rare-disease-week/

Registration is now open for the next webinar in the LAMposium in Your Living Room series!Join us on November 18 at 7 PM...
10/18/2025

Registration is now open for the next webinar in the LAMposium in Your Living Room series!
Join us on November 18 at 7 PM ET when 2025 International LAM Research Conference Co-Chairs, Dr. Elizabeth Henske and Dr. Simon Johnson, share conference highlights, key takeaways, and what has them excited for the future of LAM research. Bring your curiosity and questions for this unique opportunity.
Register Now: https://www.tfaforms.com/5199266

LAM Advocate Elena Liapkova-Pozsar had the honor of representing LAM at the Breathing Better event organized by European...
10/17/2025

LAM Advocate Elena Liapkova-Pozsar had the honor of representing LAM at the Breathing Better event organized by European Parliamentarian Jerkovic and the European Respiratory Society. She emphasized the urgent need for awareness and support for rare lung diseases like LAM. The LAM Foundation is incredibly grateful for its global partnerships and advocates who speak up and share their stories for the LAM community. Together, we can advocate for faster diagnosis, better treatments, and a cure.

To learn more about how you can advocate, visit thelamfoundation.org/advocate

The Severa family served up some fun with their fundraising for The LAM Foundation. The family joined together to host L...
10/06/2025

The Severa family served up some fun with their fundraising for The LAM Foundation. The family joined together to host LAM Slam in honor of Lammie and TLF Board member, Kaela Severa Varberg.. The pickleball tournament netted over $15,000 and raised much-needed awareness for the rare disease.

Thank you to all who made this first-time event a success!

Join us for the 17th Annual Laps for LAM this October! LAM friends and families will take their laps virtually to raise ...
10/03/2025

Join us for the 17th Annual Laps for LAM this October! LAM friends and families will take their laps virtually to raise awareness and funds for a cure.

1️⃣ Create a plan! Walk, run, bike, or swim in your hometown.
2️⃣ Register for just $10! Choose to participate as an Individual, Join a Team, or Create a Team.
3️⃣ Share your story! Personalize your page with a photo and your goal.
4️⃣ Start your laps! 🏃‍♀️ Anytime through October.

Let’s reach participants from all 50 states! We can’t wait to see where your laps take you!

Register here: https://give.thelamfoundation.org/event/laps-for-lam-2025/e718769

It's ! Let’s overwhelm Congress with phone calls and emails.Thursday, October 2 is World Oxygen Day and women with LAM...
10/02/2025

It's ! Let’s overwhelm Congress with phone calls and emails.

Thursday, October 2 is World Oxygen Day and women with LAM need your help. We are joining forces to flood Congress with phone calls and emails letting them know we want them to co-sponsor the Supplemental Oxygen Access Reform (SOAR) act.
Use your voice to enhance portable oxygen access and help those using high-flow supplemental oxygen live fully.

Click the link below for resources and scripts.
www.thelamfoundation.org/soar

Address

4520 Cooper Road, Suite 300
Cincinnati, OH
45242

Opening Hours

Monday 9am - 5:30pm
Tuesday 9am - 5:30pm
Wednesday 9am - 5:30pm
Thursday 9am - 5:30pm
Friday 9am - 5:30pm

Telephone

+15137776889

Website

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