The LAM Foundation

The LAM Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from The LAM Foundation, Medical and health, 4520 Cooper Road, Suite 300, Cincinnati, OH.

The LAM Foundation is a non-profit, voluntary health agency whose primary goal is to find an effective treatment and ultimately a cure for lymphangioleiomyomatosis (LAM) through peer-review funding of promising research.

Our next LAMposium in your Living Room is just 1 week away!Understanding Supplemental Oxygen, Device Options, and Tips f...
01/14/2026

Our next LAMposium in your Living Room is just 1 week away!

Understanding Supplemental Oxygen, Device Options, and Tips for Staying Active.

Join Susan Jacobs, MS, RN, FAAN, as she provides an overview of supplemental oxygen basics, assessing the need for oxygen, its importance, and how to integrate it into your daily routines.

Bring your curiosity and submit your questions in advance to patientservices@thelamfoundation.org by January 15, 2026.

Register Now: https://www.tfaforms.com/5206874

Meet Kristy Benefield, co-liaison for Region 8: Alabama, Mississippi, and Tennessee. Diagnosed in 2013 but symptomatic ...
01/13/2026

Meet Kristy Benefield, co-liaison for Region 8: Alabama, Mississippi, and Tennessee. Diagnosed in 2013 but symptomatic since 2001, Kristy knows firsthand the diagnostic journey many LAM patients face. As a liaison, Kristy does her best to stay up to date with new LAM research through the Foundation and LAMposium attendance. She is honored to help LAM women in any way she can.

The LAM Foundation is deeply grateful for the commitment of our LAM Liaisons, like Kristy, who provide communities of care for women with LAM. LAM Liaisons are a listening ear, a source of empathy, and facilitators of resources and support for women navigating the unique challenges of this disease.

Click the link below to learn more about the LAM Liaison Network and to find a liaison in your area.

https://bit.ly/46qbsuA

01/08/2026

A mission that reflects who we are—and who we aspire to be.
At The LAM Foundation, our refreshed mission statement captures the heart of our work and our hopes for the future:

To catalyze new treatments—and ultimately a cure—for LAM by advancing research, supporting compassionate care, and amplifying the voice of women with rare diseases.

This isn’t just a statement.
It’s who we are.
It’s who we aspire to be.

Watch this video to hear members of our Board of Directors share what this mission means to them—and why it matters so deeply.

Now we’d love to hear from you:
What does The LAM Foundation mean to you? Share your thoughts in the comments and help us celebrate the community at the heart of everything we do.

Our next LAMposium in your Living Room is just 2 weeks away!Understanding Supplemental Oxygen, Device Options, and Tips ...
01/07/2026

Our next LAMposium in your Living Room is just 2 weeks away!

Understanding Supplemental Oxygen, Device Options, and Tips for Staying Active.

Join Susan Jacobs, MS, RN, FAAN, as she provides an overview of supplemental oxygen basics, assessing the need for oxygen, its importance, and how to integrate it into your daily routines.

Bring your curiosity and submit your questions in advance to patientservices@thelamfoundation.org by January 15, 2026.

Register Now: https://www.tfaforms.com/5206874

The LAM Foundation extends our heartfelt condolences to the family of Pauline Barnes. Many patients from the early days ...
01/06/2026

The LAM Foundation extends our heartfelt condolences to the family of Pauline Barnes. Many patients from the early days of the Foundation will remember Pauline for her warm, reassuring presence and cheerful guidance as a Research Nurse for the LAM protocol at the National Institutes of Health. She was more than a dedicated professional—she was a cherished friend to our community.

https://ow.ly/F9GR50XSFJJ

Because of you, our community grew stronger in 2025. This year, The LAM Foundation saw incredible momentum—powered by g...
01/06/2026

Because of you, our community grew stronger in 2025.

This year, The LAM Foundation saw incredible momentum—powered by generosity, belief, and shared purpose:

💗More than 720 new donors joined the LAM community, standing with women and families affected by LAM

🔬More than $350,000 raised on our Day of Giving, fueling life-improving and life-saving research and progress

🤝More than 1270 new registrants continued to connect with TLF for education, care, and community

🌏WLPC members remained a vital force in sustaining our mission and momentum

🎉Celebrated 30 years of The LAM Foundation

🫁Came together in Kansas City for LAMposium

As we reflect on a year of meaningful growth, we’re also preparing for what’s next.

A special announcement is coming to kick off the new year, and we can’t wait to share it with you.

Thank you for being part of the LAM Foundation community. Together, we move forward.

Mark your calendars! Our partners at Running On Air have an important webinar coming soon. Portable Oxygen Concentrator ...
01/05/2026

Mark your calendars! Our partners at Running On Air have an important webinar coming soon.

Portable Oxygen Concentrator (POC) Basics and How to Identify “noncentrators” (January 22, 2025)

Any time you do a search on Portable Oxygen Concentrators, you’ve likely started seeing ads on Facebook or Google about devices that seem too good to be true. They are inexpensive, lightweight, and some are promising up to 8 liters per minute of pulse or continuous flow.

This webinar will go over the basics of FDA-cleared POCs, provide resources for researching FDA-cleared POCs, and tips on how to spot a non-FDA-cleared device, or “noncentrator”.

Register: https://ow.ly/ru2U50XNHB4

Strengthening the LAM Clinic & Research Network in 2025 This year, The LAM Foundation continued to expand access to exp...
01/04/2026

Strengthening the LAM Clinic & Research Network in 2025

This year, The LAM Foundation continued to expand access to expert care and collaboration for people living with LAM worldwide:

4 LAM Clinic Director Meetings
These gatherings brought clinic leaders together to share best practices, align care standards, and accelerate progress across the network.

1 New LAM Clinic Opened
We’re proud to welcome a new clinic in Turkey, extending specialized LAM care and support to more patients internationally.

As we reflect on the impact of 2025, we’re also looking ahead. A special announcement is coming to kick off the new year, and we can’t wait to share what’s next.

Stay tuned as the LAM Clinic & Research Network continues to grow.

2025 was a powerful year of connection, care, and community at The LAM Foundation. Because of you, more people living w...
01/03/2026

2025 was a powerful year of connection, care, and community at The LAM Foundation.

Because of you, more people living with LAM found support, resources, and hope than ever before:

301 new patients registered with TLF this year
📍170 in the U.S.
🌏 131 internationally

4,483 total patients and families now connected to our global community

41 patient and family support events (in addition to LAMposium)

1,062 attendees who showed up to learn, share, and support one another

18,067 educational recording views since 2020, extending our reach far beyond the room

12 life-saving transplants supported through the Circle of Hope
🫁11 lung transplants
🫀1 heart transplant

56 vital research contributions made possible through patient generosity
🧬54 tissue sample donations
🩸2 blood samples

As we reflect on a year filled with impact, we’re also looking ahead. A special announcement is coming to kick off the new year, and we can’t wait to share what’s next.

✨ Stay tuned. Together, we are building a stronger future for everyone affected by LAM.

2025 was a year with so much to celebrate at The LAM Foundation. Thanks to the incredible support of our community, in ...
01/02/2026

2025 was a year with so much to celebrate at The LAM Foundation.

Thanks to the incredible support of our community, in 2025 we:

🏆 Awarded 5 new research grants
📈 Invested more than $420,000 in advancing LAM research
🧪 Supported 7 active research projects, driving discovery and hope

And the momentum is only growing. Looking ahead, 25 Letters of Intent were submitted for our next round of grants, with 17 full proposals already under review, an inspiring sign of the scientific community’s commitment to LAM.

As we reflect on everything accomplished this year, we’re also preparing for a special announcement to kick off the new year, and you won’t want to miss it.

Stay tuned. The future of LAM research is bright.

01/01/2026

Happy New Year!🎉

As we step into the new year, we’re reflecting with gratitude on all that our community made possible in 2025. From research progress to expanded care and growing connection, this year was defined by impact—and momentum. In the days ahead, we’ll be sharing highlights from 2025 and kicking off the year with a special announcement you won’t want to miss.

✨Stay tuned as we move forward together.✨

This is it, just hours left to make your 2025 gift to The LAM Foundation!All year, you’ve helped women with LAM find ans...
12/31/2025

This is it, just hours left to make your 2025 gift to The LAM Foundation!

All year, you’ve helped women with LAM find answers, connect with care, and live with hope. not until every woman with LAM can breathe easier and dream bigger.

Give before midnight to help finish 2025 strong and move us one step closer to a cure.

thelamfoundation.org/donate

We can't wait to see what 2026 will bring!

Address

4520 Cooper Road, Suite 300
Cincinnati, OH
45242

Opening Hours

Monday 9am - 5:30pm
Tuesday 9am - 5:30pm
Wednesday 9am - 5:30pm
Thursday 9am - 5:30pm
Friday 9am - 5:30pm

Telephone

+15137776889

Website

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