Tri-State Bleeding Disorder Foundation

11/06/2025

Thank you to everyone who came out for our Ask the Doc/Annual Meeting last night! Dr. Maria Carter-Febres from CCHMC HTC, Dr. Kristine Karkoska from UC’s HTC, and Dr. Erin Espinoza from Tri-Health Hematology made up our panel for this event. All three physicians took the time to talk about current therapies and research, updates at all of the centers and then took questions from the audience.
We want to thank our sponsors who helped make this event possible:
Gold level: Pfizer and Novo Nordisk
Silver Level: Genentech and Sanofi
Accredo SP, Bayer, Cincinnati Children’s Hospital HTC, HEMA Biologics, Optum, Soleo Health, & Takeda

11/04/2025

Millions of Americans depend on the Affordable Care Act (ACA) for health insurance, over 26 million people, including many living with chronic conditions.

Right now, Congress is at a standstill whether to keep the tax credits that make this coverage affordable. Let’s be clear- this isn’t about refusing to compromise, it’s about ensuring that Americans are protected. Without these tax credits, insurance premiums will skyrocket, and many families will no longer be able to afford care.

What’s Changing:
Low-Income Special Enrollment (for people under 150% of the poverty line) ends August 25, 2025.
DACA recipients will lose Marketplace coverage that same day.
Some lawfully present immigrants will lose tax credit eligibility in 2026.
People who earn more than expected will have to repay all extra tax credits, with no repayment limit.
Plans may require payment of old premiums before reenrollment.
Auto-enrollment rules are changing, and some fees will apply.

Important Dates:
Nov 1: Open Enrollment begins
Dec 15: Last day to choose a plan for Jan 1 coverage
Dec 31: Last day to cancel unwanted auto-enrollment
Jan 15: Open Enrollment ends

What You Should Do:
Update your contact info on HealthCare.gov and with your insurance company.
Don’t auto-enroll without checking your 2026 premium, prices will change.
Turn off auto-pay until you confirm your new premium.
Cancel coverage by Dec 31 if you don’t want to be charged in January.
Log in again before Jan 15 to check if tax credits are extended or if plans change.

Call or email your Senators and Representatives today, tell them to protect ACA tax credits and keep health insurance affordable for all Americans.

Read more here: https://www.hemob.org/resource-library/10-31-2025

11/03/2025

Support for Patients During SNAP Lapse

As many of you know, Supplemental Nutrition Assistance Program (or SNAP) benefits lapsed this past weekend, creating additional hardship for families in our community. If you have been affected by this lapse, please reach out to your HTC social worker for assistance. TSBDF is providing Kroger gift cards that the social workers will distribute to patients on the SNAP program as needed.

Click below for a list of food pantries in the Tri-State area:

Food pantries and soup kitchens in Cincinnati provide perishable and non-perishable items to families in need and children who are hungry.

11/03/2025

There are just a few spots left for the TSBDF Ask the Doc/Annual Meeting taking place this Wednesday, November 5th Graduate Hotel.

We have added another chance to win a $200 gift card at the event. Simply get your sponsor passport stamped by every sponsor and be entered for a chance to win a $250 gift card! Must be present to win. Only one chance per family!

Registration will take place at 5:30 p.m.
Education and dinner will follow starting at 6:30 p.m.
Hear from Dr. Kristine Karkoska UC's HTC, Dr. Maria Carter-Febres from CCHMC's HTC, and Dr. Erin Espinoza from Tri-Health Hematology then have a chance to ask your bleeding disorder questions. Questions can be submitted ahead of time or asked at the event.
This event is open to all bleeding disorder patients and caretakers living in the same household.
Childcare is available for this event. Onsite parking is free for attendees.
Thank you to our sponsors for their support: Novo Nordisk, Pfizer, Sanofi, Genentech, Bayer, HEMA Biologics, Takeda, Accredo, CCHMC HTC, Infucare, Optum, & Soleo Health.

10/24/2025

Join us for us on Wednesday, November 12th at Maggiano's Little Italy for dinner and an educational program to learn about Vonvendi.
This is an interactive program where you can learn more about living with VWD. Explore what is means to live Vonvendi Vibrant and discover your own personal vision for the your treatment and future.
This program is presented by Takeda.

This program is for VWD, caregivers and their immediate family members living in the same household.

Registration is required! Space is limited and available on a first come, first served basis. Childcare will not be provided.
Click below to register today!

Join us for dinner and education! This event is open to VWD patients, caregivers, and immediate family members.

10/24/2025

Space is limited! Sign up before next Wednesday, 10/29 to be registered for a chance to win a $250 gift card!

Join us for the TSBDF Ask the Doc/Annual Meeting
Wednesday, November 5th
Graduate Hotel
Registration will take place at 5:30 p.m.
Education and dinner will follow starting at 6:30 p.m.
Hear from Dr. Kristine Karkoska UC's HTC, Dr. Maria Carter-Febres from CCHMC's HTC, and Dr. Erin Espinoza from Tri-Health Hematology then have a chance to ask your bleeding disorder questions. Questions can be submitted ahead of time or asked at the event.
This event is open to all bleeding disorder patients and caretakers living in the same household.
Childcare is available for this event. Onsite parking is free for attendees.
Thank you to our sponsors for their support: Novo Nordisk, Pfizer, Sanofi, Genentech, Bayer, HEMA Biologics, Takeda, Accredo, CCHMC HTC, Infucare, Optum, & Soleo Health.
Register by Wednesday, 10/29 to be entered into a drawing to receive a $250 gift card. Must be present at the event to win. Limit one chance per family.

Join us for dinner and to hear from the physicians from CCHMC HTC,UC HTC, & Tri Health Hematology.

10/20/2025

Spots are filling quickly for the Ask the Doc program on Wednesday, November 5th at The Graduate Hotel. Register by October 29th to be entered into a raffle for a chance to win a $250 gift card!

Join us for dinner and to hear from the physicians from both CCHMC HTC,UC HTC, & Tri Health Hematology.

10/19/2025

Tune in to Celebrity Wheel of Fortune on Friday, October 24th, to see Alex Borstein spin the wheel for the National Bleeding Disorders Foundation!

💙 Every spin helps raise awareness and support for people and families living with bleeding disorders.

📺 Don’t miss it — mark your calendars and join us in cheering her on!
🔗 Learn more about our mission: bleeding.org

10/14/2025

Join us for the TSBDF Ask the Doc/Annual Meeting
Wednesday, November 5th
Graduate Hotel

Registration will take place at 5:30 p.m.
Education and dinner will follow starting at 6:30 p.m.

Hear from Dr. Kristine Karkoska UC's HTC, Dr. Maria Carter-Febres from CCHMC's HTC, and Dr. Erin Espinoza from Tri-Health Hematology then have a chance to ask your bleeding disorder questions. Questions can be submitted ahead of time or asked at the event.

This event is open to all bleeding disorder patients and caretakers living in the same household.
Childcare is available for this event. Onsite parking is free for attendees.

Thank you to our sponsors for their support: Novo Nordisk, Pfizer, Sanofi, Genentech, Bayer, CSL Behring, HEMA Biologics, Takeda, Accredo, CCHMC HTC, Infucare, Optum, & Soleo Health.

Register by Wednesday, 10/29 to be entered into a drawing to receive a $250 gift card. Must be present at the event to win. Limit one chance per family.

Join us for dinner and to hear from the physicians from both CCHMC HTC,UC HTC, & Tri Health Hematology.

10/06/2025

There are a few tickets still available! Register today!

Hemophilia Education Program Cincinnati Zoo
Saturday, October 11th

Join us for "Collective Gratitude". Patients will paint something they are grateful for. Then there will be a short presentation on Altuvio. Art supplies and smocks will be provided.
Jack O’ Lantern Glow is taking place this weekend and is included with your ticket. This event is an immersive walkthrough experience with more than 6,000 hand-carved pumpkins and fall displays along a half-mile trail in the Zoo.
Registration will take place at 11:30 a.m. Education and lunch will follow from Noon until 2 p.m. You are free to enjoy the Zoo the rest of the day. Tickets include parking, entrance into the zoo, and lunch. This event is for Hemophilia A & B patients and their immediate family members living in the same household. Childcare will not be provide.
Thank you to our sponsors Sanofi and Biomatrix Specialty Rx for providing this program!
Space is limited and registration is required! Click below to register today!

Join us for the Hemophilia Education Day at the Cincinnati Zoo

10/05/2025

It was a beautiful day for the Tee Up Golf Reunion and club turn in. We met for lunch and then headed over to the driving range to hit balls the rest of the afternoon.
We can’t wait until next year!!

10/02/2025

"Understanding Hympavzi" Educational Dinner the Millers Tavern
Tuesday, October 7th

Join us for an educational session exploring a rebalancing treatment option for hemophilia.

You’ll learn about:
• The science behind rebalancing therapy
• Clinical trial data
• Safety information
• Information on administration

This program is sponsored by Pfizer. This program is for hemophilia patients, caregivers and their immediate family members living in the same household.

Registration is required! Space is limited and available on a first come, first served basis. Childcare will not be provided.
Click below to register today!

Join us for dinner and education! This event is open to all Hemophilia patients, caregivers, and immediate family members.