Team Jayson

07/31/2023

Sorry I haven’t posted for awhile but no news is good news.

Today marks 4 years that Jayson got his lifesaving cells from a 26 year old hero from Germany. He has been doing pretty well and has been enjoying his summer. We still have multiple appointments each year and that will never stop. Luckily he is still 98% donor and all his counts are still within normal range. He has been having stomach issues which could be from his surgery he had on his stomach and intestines when he was 2 days old. He will be having an ultrasound next month so hopefully there won’t be any issues. Jayson will be starting 5th grade in a few weeks as well. Thank you for following my strong boys journey. We appreciate it.

02/28/2022

It’s Rare disease day. My son was born with a rare disease called Fanconi Anemia. He’s had so many struggles throughout his young life that I wish he never had to endure. I pray everyday that a cure will be found and he doesn’t have to go through multiple yearly appointments and blood draws anymore. Please support someone rare.

11/07/2021

Jayson getting recognized at the Sac State football game tonight. My superhero and his sidekick.

09/20/2021

Jayson is back to doing what he loves and is enjoying every minute of it. He returned to school full time after a week of having a cold. Luckily his super cells kept the cold down just to a cough. We are so grateful to see that his body is working and fighting off all infections that he comes across. He is down to only having doctors appointments every 6 months and is working on getting all his vaccines again. He is so thrilled to be noticed out in the baseball world by so many that have followed his story. Thank you for all the love and support.

07/31/2021

Happy 2nd Rebirthday to my wonderful son. It’s been 2 years since he got his amazing superpower cells from an amazing person. You are such a kind hearted, lovable boy and you deserve the world. I hope you have a fantastic day.

05/01/2021

Hello everyone,

Sorry I haven’t posted an update in awhile. We have been trying to juggle school, work, and sports activities. It’s definitely not easy. Jayson is needing extra help in school due to having missed almost all of 1st grade so we have been trying all we can to get him caught up. Jayson is finally back to playing baseball and he’s enjoying every minute of it. He loves to be out there interacting with other kids and doing something he loves. He has finally been taking off his monthly infusions and will possibly start getting the beginning baby vaccines again in July. He still needs to be seen every 3 months in San Francisco but hopefully that will change to every 6 months after he gets started on the vaccines. Thank you everyone for liking his page and giving him words of encouragement. He enjoys every message and like.

03/28/2021

02/17/2021

Happy 8th birthday to my hero. We love you.

01/25/2021

Hello everyone,

Not much has changed in the last few months. We enjoyed our time together as a small quarantined family during the holidays. Jayson is still getting monthly transfusions due to low B cells but they told us not to worry because all kids recover differently. Jayson is struggling with this distance learning thing since he missed all of 1st grade. Plus he was recently diagnosed with ADHD due to the chemo he had before transplant so we now have a new challenge on our hands. All this is definitely not easy to handle but we do what we can get through. Prayers for every one that is struggling during this tough time and we will get through this too. Thank you.

11/05/2020

Hello. Just thought I would jump on here for a quick update. Jayson just had a small outpatient procedure last night and is home recovering today. He’s in a lot of pain but as always he’s smiling and enjoying life. Other than that he’s doing well and his counts are still climbing. He’s still getting monthly infusions due to no vaccines and B cells still low but hopefully after the flu season that will change. We are just waiting for this crazy virus to clear so he can go back to his normal kid life. He’s finally been cleared to play sports again but of course nothing is going on right now or we missed all the sign ups. Hopefully he will be able to get involved in something when sign ups open back up. Thank you for following his crazy journey.

07/31/2020

DAY 365:

WE MADE IT. It’s been 1 year since Jaysons life saving bone marrow transplant. He is doing well. His counts are still fluctuating but the doctors are very happy with his progress. He still has a long way to go but he’s heading in the right direction. He is still going to monthly appointments for IVIG and blood draws since his B cells haven’t fully recovered yet but hopefully that will change soon. Next up 2nd grade. Thank you everyone for all your support through this tough journey. Praying for many more years of strong cells for him.

06/24/2020

Day +330:

Sorry we haven’t updated in awhile. I’m working 6 days a week trying to get our family back on track as well as my husband working 5 days a week. Jayson has been doing well considering what’s going on around the world. We went for his monthly IVIG and blood test visit today. His counts still keep fluctuating and it’s very stressful. It seems like they continue to decline each month and the doctors are watching them closely. We have another visit at UCSF in a few weeks so we will see what they have to say about it. I really wish he could just have one normal summer and be able to do the things he loves. I really feel bad for him but there isn’t much I can do. Please pray his counts start to climb back up and he can possibly get back to being some what of a normal 7 year old boy.