Team Jayson

07/31/2023

Sorry I haven’t posted for awhile but no news is good news.

Today marks 4 years that Jayson got his lifesaving cells from a 26 year old hero from Germany. He has been doing pretty well and has been enjoying his summer. We still have multiple appointments each year and that will never stop. Luckily he is still 98% donor and all his counts are still within normal range. He has been having stomach issues which could be from his surgery he had on his stomach and intestines when he was 2 days old. He will be having an ultrasound next month so hopefully there won’t be any issues. Jayson will be starting 5th grade in a few weeks as well. Thank you for following my strong boys journey. We appreciate it.

02/28/2022

It’s Rare disease day. My son was born with a rare disease called Fanconi Anemia. He’s had so many struggles throughout his young life that I wish he never had to endure. I pray everyday that a cure will be found and he doesn’t have to go through multiple yearly appointments and blood draws anymore. Please support someone rare.

11/07/2021

Jayson getting recognized at the Sac State football game tonight. My superhero and his sidekick.

09/20/2021

Jayson is back to doing what he loves and is enjoying every minute of it. He returned to school full time after a week of having a cold. Luckily his super cells kept the cold down just to a cough. We are so grateful to see that his body is working and fighting off all infections that he comes across. He is down to only having doctors appointments every 6 months and is working on getting all his vaccines again. He is so thrilled to be noticed out in the baseball world by so many that have followed his story. Thank you for all the love and support.

07/31/2021

Happy 2nd Rebirthday to my wonderful son. It’s been 2 years since he got his amazing superpower cells from an amazing person. You are such a kind hearted, lovable boy and you deserve the world. I hope you have a fantastic day.

05/01/2021

Hello everyone,

Sorry I haven’t posted an update in awhile. We have been trying to juggle school, work, and sports activities. It’s definitely not easy. Jayson is needing extra help in school due to having missed almost all of 1st grade so we have been trying all we can to get him caught up. Jayson is finally back to playing baseball and he’s enjoying every minute of it. He loves to be out there interacting with other kids and doing something he loves. He has finally been taking off his monthly infusions and will possibly start getting the beginning baby vaccines again in July. He still needs to be seen every 3 months in San Francisco but hopefully that will change to every 6 months after he gets started on the vaccines. Thank you everyone for liking his page and giving him words of encouragement. He enjoys every message and like.

03/28/2021

02/17/2021

Happy 8th birthday to my hero. We love you.

01/25/2021

Hello everyone,

Not much has changed in the last few months. We enjoyed our time together as a small quarantined family during the holidays. Jayson is still getting monthly transfusions due to low B cells but they told us not to worry because all kids recover differently. Jayson is struggling with this distance learning thing since he missed all of 1st grade. Plus he was recently diagnosed with ADHD due to the chemo he had before transplant so we now have a new challenge on our hands. All this is definitely not easy to handle but we do what we can get through. Prayers for every one that is struggling during this tough time and we will get through this too. Thank you.

11/05/2020

Hello. Just thought I would jump on here for a quick update. Jayson just had a small outpatient procedure last night and is home recovering today. He’s in a lot of pain but as always he’s smiling and enjoying life. Other than that he’s doing well and his counts are still climbing. He’s still getting monthly infusions due to no vaccines and B cells still low but hopefully after the flu season that will change. We are just waiting for this crazy virus to clear so he can go back to his normal kid life. He’s finally been cleared to play sports again but of course nothing is going on right now or we missed all the sign ups. Hopefully he will be able to get involved in something when sign ups open back up. Thank you for following his crazy journey.

07/31/2020

DAY 365:

WE MADE IT. It’s been 1 year since Jaysons life saving bone marrow transplant. He is doing well. His counts are still fluctuating but the doctors are very happy with his progress. He still has a long way to go but he’s heading in the right direction. He is still going to monthly appointments for IVIG and blood draws since his B cells haven’t fully recovered yet but hopefully that will change soon. Next up 2nd grade. Thank you everyone for all your support through this tough journey. Praying for many more years of strong cells for him.

06/24/2020

Day +330:

Sorry we haven’t updated in awhile. I’m working 6 days a week trying to get our family back on track as well as my husband working 5 days a week. Jayson has been doing well considering what’s going on around the world. We went for his monthly IVIG and blood test visit today. His counts still keep fluctuating and it’s very stressful. It seems like they continue to decline each month and the doctors are watching them closely. We have another visit at UCSF in a few weeks so we will see what they have to say about it. I really wish he could just have one normal summer and be able to do the things he loves. I really feel bad for him but there isn’t much I can do. Please pray his counts start to climb back up and he can possibly get back to being some what of a normal 7 year old boy.

05/07/2020

Day 282:
Jayson has been doing pretty good considering the circumstances around the world. He had blood work down a few weeks ago and his counts have dropped again. They have been steadily rising the last few months so this was kind of a shock. He has a stuffy nose which they think could either be allergies or a virus. He will take allergy medication for about a week to see if it helps. If it doesn’t go away he will have to get another blood draw to see if he might have a virus. Luckily he’s still acting like himself and eating like a grown man so there not to worried. Next blood test is scheduled for the end of the month so we pray that the counts go up and it’s just allergies.

04/02/2020

Day 287:

Jayson has been doing well these last few months and his counts are stable right now. We have been worried about one of us bringing home this scary virus to him since we are still working. He’s been quarantined to the house since all this started but he’s used to it. We have his monthly IVIG doctors appointment tomorrow at the hospital and I’m very scared to even be by the hospital. Please pray for us that everything goes well. Thank you.

02/28/2020

Day 233:

Jayson suddenly became ill on Friday and didn’t seem to be getting better so Sunday we took him to the ER. I’ve tried so hard to keep him from getting sick but I guess I’m not super mom. It’s just heart breaking to see him in so much pain and screaming and there was nothing I could do for him. It wasn’t an issue that the doctors could do anything about. They just gave us medication and now we wait. He will have a follow up appointment next Thursday to see what our next step will be. He seems to be in better spirits this week which makes me feel a little better about it. Please pray that everything goes well and he can recover quickly. Thank you.

02/17/2020

Day 202:

Please help me to wish this wonderful boy a Happy 7th Birthday. He’s been so through so much in his life already and he deserves to have all his wishes come true.

Jayson has been doing really well. His counts are still climbing and he seems to be getting stronger every month. He will possibly be returning to school next month. We are just waiting for this horrible flu season to die down a little bit. He’s been very tired but that’s because he’s back to running around and doing normal kid stuff. He’s able to return to baseball and has been to a few practices. He’s a little rusty but he will get back in the swing of things soon. Thank you for taking time to follow our journey and I will try to post updates sooner. We are just enjoying our time together.

01/13/2020

Day 166:

Sorry it’s been a little while since I posted last. We were enjoying the holiday time with family. Jayson wasn’t able to attend the family Christmas festivities this year due to family members being sick. He was really upset about it but we took him over for a few minutes to at least say hello to everyone. His counts are still fluctuating up and down which makes me very nervous but they seem to think it’s normal. His appointments at UCSF have been changed to ever three months now and he will see his hematologist close to home once a month for his IVIG. The doctor and I decided it would be best if he didn’t return to school right now. His WBC have dropped since the last test in December and we are very worried since the flu is so bad right now. We have decided to wait until March so when I finally go back to work he will be going with me. Luckily I have a wonderful boss my sister that allows me to take care of what I need to. The doctor has cleared him to play sports again so we have been practicing outside with him. He’s very nervous since he hasn’t done much of anything since July. At least we will have a little bit of a normal life for him now. Thank you for following our tough journey. We still have a very long way to go but it looks like we are finally heading in the right direction.

12/19/2019

Day 141:

Jayson has been doing well and loves to be able to be some what normal. His doctor called yesterday and he’s been dropped down to just two medications a day instead of 6. He was very happy to hear that. He really doesn’t like to take them. Tomorrow he will be going in for surgery to get his broviac line removed. Please pray everything goes smoothly and he doesn’t have any issues. Thank you for all the support. It really helps.