01/04/2025
1/3 Update:
Griffin had a regular scheduled in clinic check up today. We were particularly anxious for this appointment as he has not quite been himself within the last 24 hours.
Last night he did not want to eat or drink and seemed very lethargic. He did perk up at times but overall was a bit off.
The good news is that his doctor thought he looked great today and after evaluating him, did not have any concerns.
We were sent home before Griffin’s labs came back and upon checking his lab results in the portal we noticed that his ANC was abnormally high. One of his doctors called to inform us and believes the elevated ANC is likely due to stress on Griffin’s body from fighting the cold, recently vomiting, low grade fever, and headaches. We were reassured that this is not a relapse. We also learned that Griffin’s sodium level is low and putting an emphasis on increasing his fluid intake would help bring that level back within a normal range.
Since Griffin has returned home from his appointment, his appetite has improved and he seems to have a little more energy.
Any time we see a significant change, it is unsettling and seeing this jump on the chart definitely made us anxious.
Griff’s next appointment is at the end of the month.
Thank you to all who have been following Griffin’s journey. One of his wonderful nurses shared with us that his last day of treatment for B-Cell ALL is supposed to be 12/08/25. Hopefully things continue to stay on track between now and then!