Epsy Health

11/28/2025

Gordonnay’s Epilepsy Journey 💜

Her journey began at 16 with her first aura. By senior year, Gordonnay was diagnosed with epilepsy - her world flipped overnight.

She leaned into modeling, started her blog SeizeTheDay.e, and found a community that gave her hope. Life wasn’t easy - medication changes, losing her license, strained relationships - but she kept moving forward.

Today, Gordonnay is a first responder, jewelry business owner, still modeling, and preparing for law school. Just last week she had a seizure and fell down the stairs. And “somehow… I’m okay.” She’s still here, still proud, still choosing to move forward.

💜 “Epilepsy is something I can’t fully explain. But every day I fight to live a life I enjoy, because waking up is a blessing. Living is a blessing.”

11/27/2025

Coach Jon’s Story: My Epilepsy Journey. 💜

In January 2013, Jon woke up from a 4‑day coma with epilepsy. “No memory, no answers - just a blunt reality check that I was 336 lbs and needed to change.”

He felt like that moment became his turning point. Within 6 months, he lost over 100 lbs and found balance through Muay Thai. By 2018, he was the IKF International Amateur Cruiserweight Champion at 190 lbs. He later returned to ice hockey, learning to manage his epilepsy through diet, sleep, hydration, and medication.

Jon also discovered his personal triggers - “stress, lack of sleep, dehydration, and alcohol.” He’s now 8 months sober and seizure‑free.

“From a coma in 2013 to a life I once didn’t think I deserved - epilepsy didn’t end my story, it started my game clock.”

11/25/2025

Meet Karsen 👋💜 - a recent University graduate whose epilepsy journey began in 2018, during her sophomore year of high school.

What started as unexplained focal seizures led to over 300 seizures, including tonic-clonic seizures (formerly known as grand mal) that sent her to the ER. 😔💜 The diagnosis changed everything - she had to stop running track and cross country, and she lost her independence right after getting her license.

✨ “People say I’m strong, but my strength comes from the love and support I’ve had since day one.”

Karsen’s seizures came from her frontal lobe and part of her amygdala. After a surgical EEG in July 2025, she underwent brain surgery in August 2025 to remove the affected areas. 🧠✨

Today, she’s seizure-free - and deeply grateful. 💜🙏

11/20/2025

For Hunter, advocacy began with mental health - and grew into something even more powerful. 💜

After experiencing seizures and receiving an epilepsy diagnosis, he found strength in sharing his story and building community.

💬 “I just want people to know they’re not alone on their epilepsy journey.”
With support from his girlfriend, pets, and online community, Hunter continues to speak up - reminding us how far empathy and connection can go.

👉 Read his story:

Hunter shares his story of living authentically through epilepsy, advocacy, and community - finding hope, purpose, and strength along the way.

11/14/2025

💜 “It took 5 years to get answers - but I’m not giving up.” 💜

Sophia’s journey with drug-resistant epilepsy (DRE) shows the strength, support, and hope behind every seizure. 🧠✨🐾

This Epilepsy Awareness Month, let’s raise awareness and listen to every story. 💜

Read more below! 👇

Diagnosed with epilepsy at 19, Sophia () shares her journey, challenges, and advocacy. Read her full story below.

11/06/2025

Meet Jaime Simpson () - epilepsy & VEDS advocate, mom, and service-dog trainer. 💜

🐶 With her amazing seizure-alert dog, Echo, she’s turned her journey into a message of hope, connection, and strength.

Read her full story and how she found her voice through Embracing ECHO ➡️

Jaime Simpson shares her experience living with epilepsy and VEDS, life with her service dog Echo, and building community through Embracing ECHO.

11/04/2025

💜 Epilepsy Awareness Month is here! 💜

We’re celebrating with on Instagram - a campaign to share real stories, raise awareness, and make an impact.

For every story shared, $5 will be donated to the Epilepsy Foundation of America (up to $5,000).

Here’s how to get involved 👇
📸 Share a photo, video, or artwork on Instagram that represents your journey
#️⃣ Use & tag
👥 Nominate 2 friends to join

Together, we can shine a light on epilepsy, build community, and create real change 💫

👉 Head to our Instagram () to see more and join in!

10/15/2025

Today is SUDEP Action Day, 💜 A moment to raise awareness and empower those living with epilepsy. 🧠

If you or someone you know is affected by epilepsy, it’s important to understand SUDEP (Sudden Unexpected Death in Epilepsy), what contributes to it, and what steps may help reduce risk. Learn more in our article:

Do you know about SUDEP in epilepsy? Sudden Unexpected Death in Epilepsy is a significant risk for some. Learn more about SUDEP

10/09/2025

Born at just 25 weeks and weighing only one pound, Loushay’s journey is one of faith, resilience, and strength. 💜

Now a healthcare advocate, model, and motivational leader, she proves that challenges can become purpose. ✨

Read Loushay's story here:

Loushay Davis, epilepsy advocate and model, shares her story of resilience, self-advocacy, and empowering others.

10/07/2025

Epilepsy is often misunderstood - and movies haven’t always helped. 🎬

⚡ Sometimes, seizures are used as plot twists or punchlines. But some films are getting it right, portraying epilepsy with honesty and care.

Here are 9 films that offer a more real and respectful look at life with epilepsy.

Take a look:

What movies about epilepsy do you know? Read about films and TV shows with authentic and sensitive representations of the condition

10/02/2025

If you or someone you know has epilepsy, it’s important to know about SUDEP (Sudden Unexpected Death in Epilepsy). 💜

💡SUDEP is rare, but serious - about 1 in 1,000 adults and 1 in 4,500 children with epilepsy die from it each year. Knowing the risks and how to reduce them can help you feel more in control.

👉 Learn more:

Do you know about SUDEP in epilepsy? Sudden Unexpected Death in Epilepsy is a significant risk for some. Learn more about SUDEP

09/24/2025

🚭 Va**ng & Seizures: Is there a link?

E-cigarette use is widespread in the USA, including among teens. Some reports suggest a possible connection between va**ng and seizures, but scientists aren’t sure yet. 🧠

⚠️ So far, no large studies confirm a direct link. If you have epilepsy - or are concerned about risks - it’s best to talk with your doctor.

Read more in our blog:

The use of e-cigarettes is on the rise. But can va**ng cause seizures? Read about current research and how it relates to people with epilepsy.