01/13/2023
An organization whose mission includes advocating for disabled folx shared this meme and a lot of parents/caregivers offered their agreement and re-shared it. It’s problematic and I’m reharing the meme here - not to shame the organization or the caregivers - but to help understand *why* it’s problematic.
First, let’s look at the language (see language note at end). Members of the disability community have asked that we stop using the term, “special needs.” Special needs is what’s called a “euphemism.” This is a word or phrase we use when we want to avoid saying something bad - for example, we say “he passed away” instead of “he died.” When we use euphemisms to describe disability, we imply that disability is so bad we can’t talk about it using plain language.
"Special needs" is also infantilization (making something childlike or baby like). The “grown up” and *legal* term is "disabled." "Disabled" is a protected civil rights status. “Special needs” has no power - it is nothing.
Next, let’s look at the use of “special needs” as an adjective to describe “parents.” Fellow parents - I *know* we struggle, but unless we are disabled too, we are *not* “special needs parents.” For an example, if a parent adopts a child of a different race - would that make them a “[CHILD’S RACE] parent?”
If we want to protect our children’s civil rights, let's be intentional about the use of language describing their identities.
Next, let’s move into the message. The language likens caring for a disabled person to caring for an infant. Granted, I do a lot of things for my child that the parent of a typically developing child would not expect to do - but my child is *not* an infant. My child is a teen with all the years of experience that comes with living on this planet for X-teen years.
Parents - I know we are exhausted, but until we talk about why that is, we’re *never* going to get those services and supports. The reason we are exhausted is that the system is broken. The services and supports are children need are simply not there. It is *not* our child's fault that we're exhausted.
Simply said, my child is a disabled person whose needs are not being met. When my child’s needs are met, my child - and the entire family system - will function better.
What can we do instead? Instead of liking and sharing memes like this one, let's call out the systems. What are they doing to get our children's needs met? What are they doing to solve the problem of parent exhaustion?
It might be a whole new conversation.
Language Note: The disability community is large and diverse. While many have spoken out against the language, “special needs,” others have found power in this language and choose it for themselves. When in doubt, ask what terms a person chooses to use to describe themselves.
ID: white text on brown background that reads, “remember how exhausting having a newborn baby was? Many special needs parents have been doing that for the age of their child. Just let that sink in.” The meme is attributed to feesworld.com