Platelet Disorder Support Association

Platelet Disorder Support Association PDSA is dedicated to enhancing the lives of people with ITP and other platelet disorders through education, advocacy, research, and support.
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If you’ve ever wished you could help someone feel less alone, this is your moment.Every ITP journey has the power to gui...
04/15/2026

If you’ve ever wished you could help someone feel less alone, this is your moment.

Every ITP journey has the power to guide, comfort, and inspire — and we want to help share yours. Whether you’re:
• navigating ITP during pregnancy
• a parent supporting a child with ITP
• newly diagnosed and finding your way
• living with chronic ITP and everything it brings

Your experience matters. Your voice matters. And someone out there needs to hear your story.

✨ Share your ITP journey for a chance to be featured! Visit pdsa.org for more information and to submit your story!

Treating pediatric ITP can feel like trial and error, but groundbreaking collaboration is changing that. 🎙️✨In this epis...
04/14/2026

Treating pediatric ITP can feel like trial and error, but groundbreaking collaboration is changing that. 🎙️✨

In this episode, Barbara Pruitt sits down with Dr. Kristin Shimano to explore how the Pediatric ITP Consortium of North America (ICON) is transforming research, improving treatment decisions, and putting quality of life at the center of care.

💛 Plus: Barbara shares a powerful mindset shift from her 60+ year ITP journey.

🔗 Listen now on Apple, Spotify and pdsa.org/s2e31

Join Texas A&M student, Meri, as she turns her ITP diagnosis into a mission to help others by hosting her 1st Pump It Up...
04/14/2026

Join Texas A&M student, Meri, as she turns her ITP diagnosis into a mission to help others by hosting her 1st Pump It Up For Platelets! 5K in College Station, Texas!
📅 Sunday April 19, 2026
📍 Aggie Park - Throckmorton Lawn
Register and read Meri's story: pdsa.org/pump-it-up-for-platelets

Going the distance because every step brings more awareness to ITP. See you in Texas!

🍀 Just like a clover, every ITP journey is unique. 🍀Every story unfolds differently, yet each one reflects remarkable re...
03/17/2026

🍀 Just like a clover, every ITP journey is unique. 🍀
Every story unfolds differently, yet each one reflects remarkable resilience.

Today, we’re celebrating our good fortune: the ITP community that shows up for one another with empathy, shared experience, and connection. Together, we lift each other up through uncertainty and grow stronger as a community.

Leave a 🍀 in the comments if you’re cheering on others in the ITP community — or giving yourself a little extra encouragement today! Your support matters more than you know!

🧬 Autoimmune diseases come in many forms — and ITP is one of them.In ITP, the immune system targets the body’s own plate...
03/16/2026

🧬 Autoimmune diseases come in many forms — and ITP is one of them.

In ITP, the immune system targets the body’s own platelets, leading to low counts and symptoms like excessive bruising, bleeding, and fatigue. While it’s considered a rare autoimmune disorder, its impact on daily life is very real.

Autoimmune Awareness Month is a time to increase understanding, reduce stigma, and advocate for continued research. When we raise awareness, we help patients feel seen — and help the world better understand what living with ITP truly means.

Knowledge empowers. Awareness connects.

March also marks Autoimmune Awareness Month, a time to highlight the impact of autoimmune diseases and recognize those n...
03/12/2026

March also marks Autoimmune Awareness Month, a time to highlight the impact of autoimmune diseases and recognize those navigating conditions like Immune Thrombocytopenia (ITP). Awareness starts with understanding — and understanding starts with all of us.

Expand your ITP expertise with education built specifically for your clinical practice. Learn how chronic ITP affects pa...
03/11/2026

Expand your ITP expertise with education built specifically for your clinical practice. Learn how chronic ITP affects patient quality of life and explore current and emerging treatments designed to support real‑world care.

This accredited CME activity reviews the impact of chronic ITP on daily living, outlines both established and emerging therapeutic options, and provides practical tools to address common patient concerns. Healthcare professionals across the care team can earn 1.0 CME/CE credit by completing this no‑cost program.

Visit pdsa.org/itp-cme for more information.

Being diagnosed with ITP is challenging — especially for kids who face frequent needle sticks, fear, and medical visits....
03/10/2026

Being diagnosed with ITP is challenging — especially for kids who face frequent needle sticks, fear, and medical visits. That’s why PDSA created the ITP Poke‑R Club, a free support program designed to bring comfort, courage, and a little fun to children managing ITP.

Each new member receives a Poke‑R Club kit:
🎒 A purple drawstring pouch
🎲 Poke‑R chips to track every “poke”
📋 A scorecard
🐝 A Buzzy® device — a drug‑free tool shown to help reduce needle pain by up to 50%.

Kids earn a chip for every needle “poke” and when they collect 10, they receive a special prize. It’s one small way to help make a tough journey feel a little less scary — and remind them they’re never alone.

Learn more or join the Poke‑R Club at pdsa.org. Adults interested in a Buzzy can visit The Platelet Store for their very own too!

03/05/2026

ITP Conference 2026 is more than a conference!

This premier patient event will be hosted in Salt Lake City, UT July 24-26th with world-renowned speakers, patients from around the world and YOU! Visit pdsa.org/conferences to learn more!

ITP is one of many platelet‑related bleeding disorders, and while most cases are not life‑threatening, severe untreated ...
03/04/2026

ITP is one of many platelet‑related bleeding disorders, and while most cases are not life‑threatening, severe untreated cases can lead to serious, life‑threatening complications.

When we raise awareness, we pave the way for earlier recognition, which helps ensure better support for individuals living with these often invisible conditions.

These invisible symptoms often include:
• Fatigue
• Brain fog / low mental energy
• Easy bruising
• Easy or prolonged bleeding (gums, nose, or minor injuries)
• Petechiae — tiny red or purple spots from bleeding under the skin
• Heavy menstrual bleeding
• Internal bleeding in severe cases — including serious risks such as intracranial or organ bleeding when platelet counts are extremely low

For more information on ITP and other platelet disorders, visit pdsa.org — and sign up for our e‑news to receive the latest updates on research, resources, and upcoming events.

🎓 Students with platelet disorders — your future is bright.PDSA’s College Scholarship Program supports young people livi...
03/03/2026

🎓 Students with platelet disorders — your future is bright.
PDSA’s College Scholarship Program supports young people living with ITP and other platelet disorders as they pursue higher education.

Your diagnosis is only part of your story — your determination, talent, and goals matter just as much. If you’re heading to college or continuing your education, we encourage you to apply. Apply now at pdsa.org/scholarship.

FACT: Researchers can’t fully understand how ITP develops, changes, or impacts daily life without patient data. Your exp...
03/01/2026

FACT: Researchers can’t fully understand how ITP develops, changes, or impacts daily life without patient data. Your experience fills in the gaps and helps build a clearer picture of this rare condition. By enrolling in the PDSA ITP Natural History Study Registry, you play a direct role in advancing research and improving the future of ITP care. Visit pdsa.org/registry to learn more about how you can make a difference.

Address

8751 Brecksville Road, Ste 150
Cleveland, OH
44141

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

Telephone

+14407469003

Website

http://www.pdsa.org/

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