Platelet Disorder Support Association

Platelet Disorder Support Association PDSA is dedicated to enhancing the lives of people with ITP and other platelet disorders through education, advocacy, research, and support.
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Healthcare should never be something done to you – it should be done WITH you. The Patient Bill of Rights empowers every...
11/26/2025

Healthcare should never be something done to you – it should be done WITH you. The Patient Bill of Rights empowers every patient to have their voice heard, their values respected, and their quality of life prioritized alongside medical outcomes.

Which of these patient writes fields most important to you in your ITP journey?

As we celebrate this season of gratitude, we’d love to hear from you! What are you most thankful for on your ITP journey...
11/21/2025

As we celebrate this season of gratitude, we’d love to hear from you! What are you most thankful for on your ITP journey?

11/19/2025

For people living with immune thrombocytopenia (ITP), even routine procedures like dental work or surgery require special planning. Because platelets help your blood clot, low counts can increase bleeding risks.

That’s why it’s important to:
- Work closely with your hematologist and dentist/surgeon before any procedure.
- Discuss your platelet counts and treatment options to reduce bleeding risks.
- Know your resources. PDSA offers trusted information and support to help you prepare.

You can download free PDSA booklets to guide you through everyday life with ITP. Visit pdsa.org/what-is-itp for more FAQs.

"The intent in clinical research is really to answer a research question through volunteers, and the intent really is to...
11/17/2025

"The intent in clinical research is really to answer a research question through volunteers, and the intent really is to help people in the future." — Dr. Rachael Grace

Clinical trials sound intimidating, but what if they’re actually a path to better options? In Episode 27 of Bruised but Not Broken: Living with ITP, Dr. Rachael Grace joins host Barbara Pruitt to demystify clinical trials, explaining how they differ from standard treatments, when they might be the right choice, and how they’ve already shaped major advancements in ITP care.

🔗 Listen now: pdsa.org/podcast or on Apple and Spotify

November is National Family Caregivers Month To every caregiver supporting someone with ITP, THANK YOU! Your strength, c...
11/07/2025

November is National Family Caregivers Month
To every caregiver supporting someone with ITP, THANK YOU! Your strength, compassion, and dedication make a world of difference. This National Family Caregivers Month, we honor YOU. Learn more about how PDSA supports caregivers at pdsa.org

🍂Don’t miss the Fall issue of The Platelet News🍂Packed with the latest ITP research, patient stories, and community upda...
11/06/2025

🍂Don’t miss the Fall issue of The Platelet News🍂
Packed with the latest ITP research, patient stories, and community updates, The Platelet News is more than just a newsletter, it’s your connection to the ITP community - exclusive to PDSA members.

Renew or join by Nov 12th to get your copy!
Visit pdsa.org/membership for more info.

Understanding ITP shouldn’t be limited by language. Download our free booklets in multiple languages at pdsa.org/booklet...
11/05/2025

Understanding ITP shouldn’t be limited by language. Download our free booklets in multiple languages at pdsa.org/booklets

What additional languages would you like translated?

🎧 Exciting news! The Platelet Disorder Support Association's podcast "Bruised but not Broken: Living with ITP" is now av...
10/29/2025

🎧 Exciting news! The Platelet Disorder Support Association's podcast "Bruised but not Broken: Living with ITP" is now available on Apple Podcasts! Tune in for real stories, expert insights, and empowering conversations from our community. 💜 Follow now to stay connected and never miss an episode.

You can also listen on Spotify and pdsa.org/podcast.

Meet Wyatt, a ninth-grade ITP warrior, and his mom Brittany—turning a love for cars into a powerful ITP awareness event....
10/17/2025

Meet Wyatt, a ninth-grade ITP warrior, and his mom Brittany—turning a love for cars into a powerful ITP awareness event. Their story will inspire you to see how passion fuels purpose. Plus, Barbara shares air travel tips for ITP patients!

🎧 Listen to Episode 26: pdsa.org/s1e26 or on Spotify

💜 We’re proud to share that PDSA President & CEO Caroline Kruse received a TORCH Award for her incredible leadership, ad...
09/30/2025

💜 We’re proud to share that PDSA President & CEO Caroline Kruse received a TORCH Award for her incredible leadership, advocacy and awareness for immune thrombocytopenia and other platelet disorders. The award was presented at Sanofi’s Boston headquarters, recognizing those who make a lasting impact in the rare disease community.

We invite you to watch Caroline’s full interview where she shares her personal ITP experience and reflects on how it has informed her approach to advocacy, leadership and building a more inclusive future for all those affected by platelet disorders at pdsa.org/2025-torch-award. Join us in a heartfelt congratulations to Caroline!

In honor of ITP Awareness Month, PDSA was proud to participate in the NASDAQ Closing Bell Ceremony—an iconic tradition t...
09/30/2025

In honor of ITP Awareness Month, PDSA was proud to participate in the NASDAQ Closing Bell Ceremony—an iconic tradition that marks the end of the trading day and celebrates organizations making a meaningful impact. The ceremony was created to spotlight causes and communities that deserve greater visibility, and this month, it helped shine a light on immune thrombocytopenia (ITP).

PDSA staff members, ITP patients, and caregivers joined the event in-person, representing the strength and resilience of our global ITP community. We’re grateful to Sanofi for extending the invitation and helping elevate awareness for this rare autoimmune condition.

Together, we continue to raise our voices, build connections, and empower patients and families around the world.

Thank you to everyone who joined us for the 5th Annual Canadian Regional Meeting on ITP! 🇨🇦💜We welcomed 44 attendees for...
09/28/2025

Thank you to everyone who joined us for the 5th Annual Canadian Regional Meeting on ITP! 🇨🇦💜
We welcomed 44 attendees for a powerful day of connection, education, and support. From expert presentations to thoughtful audience questions and inspiring stories from our panelists, the event was a true reflection of the strength and resilience of the ITP community. Together, we’re building knowledge, fostering hope, and empowering patients and families across Canada. Stay tuned at pdsa.org/canada and be sure to sign up for our monthly e-news for upcoming events and next year’s regional meeting!

Address

8751 Brecksville Road, Ste 150
Cleveland, OH
44141

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

Telephone

+14407469003

Website

http://www.pdsa.org/

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