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Platelet Disorder Support Association

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Platelet Disorder Support Association

PDSA is dedicated to enhancing the lives of people with ITP and other platelet disorders through education, advocacy, research, and support.
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03/01/2026

FACT: Researchers can’t fully understand how ITP develops, changes, or impacts daily life without patient data. Your experience fills in the gaps and helps build a clearer picture of this rare condition. By enrolling in the PDSA ITP Natural History Study Registry, you play a direct role in advancing research and improving the future of ITP care. Visit pdsa.org/registry to learn more about how you can make a difference.

02/28/2026

Today is Rare Disease Day! We stand with the millions of people affected by rare conditions—including those living with Immune Thrombocytopenia (ITP).

ITP is a rare autoimmune, bleeding disorder in which the body’s immune system attacks its own platelets, leading to low platelet counts. This can bring challenges others may never notice: sudden bruising or bleeding, overwhelming fatigue, and the emotional burden of navigating a chronic, unpredictable condition.

Today, we honor your strength. We advocate for your needs. And we commit to advancing awareness, research, and support.

02/27/2026

Tomorrow is Rare Disease Day.

As we prepare to recognize the 300 million people living with rare conditions worldwide, we’re also thinking about the ITP community and the unique challenges you face every day. Meet a few of our ITP warriors including Michael who joined us on our Bruised But Not Broken: Living with ITP podcast. Listen now on Apple, Spotify and pdsa.org/podcast to hear Michael's empowering journey.

02/26/2026

Rare Disease Day is almost here, and we’re getting ready to shine a light on the strength and stories within the rare disease community. As we count down to Saturday, take a moment to revisit our conversation with the CEO of NORD from last year’s podcast episode. It’s a powerful look at advocacy, awareness, and the work still ahead: https://pdsa.org/s1e12

02/13/2026

“I think sometimes in life you look for something you want to dedicate to a cause that’s a little bit bigger than yourself.” -Derek Zimmerman

Ever wonder what PDSA’s Board of Directors actually does? Tune into our latest podcast episode featuring the incoming and outgoing Board Chairs, Derek Zimmerman and Peter Pruitt. Listen now at pdsa.org/podcast, Apple and Spotify.

02/12/2026

Send a valentine to your ! These little notes are a simple way to remind someone they’re seen, supported, and never facing ITP alone.

Tag us in your valentines — we love seeing this community lift each other up!

02/04/2026

No two ITP stories look the same. Daisy reminds us that the impact of a diagnosis can follow you through different stages of life, and that giving yourself grace is an essential part of your journey. Read Daisy's full story at pdsa.org/patient-warrior-stories.

01/31/2026

New year, new ways to support you!

We’ve been working behind the scenes, and today were excited to share that our new website is finally LIVE! 🎉 We redesigned everything with you in mind so it’s easier to explore, connect, and get the support you need. Thank you for being part of our ITP community. We can’t wait for you to see what’s new! Visit pdsa.org to have a look around!

01/27/2026

A recent episode of THE PITT highlights a young patient’s unexpected immune thrombocytopenia (ITP) diagnosis — a moment that mirrors the real experiences of many families. The storyline has sparked meaningful conversations within the ITP community, especially as viewers recognized the urgency, fear, and resilience portrayed on screen. The episode’s realism has helped bring much‑needed visibility to a rare condition that is often misunderstood.

PDSA extends its appreciation to the show’s creators, cast, and production team for bringing thoughtful attention to ITP. Their commitment to portraying the medical and emotional realities with care has made a meaningful impact on families and patients who rarely see their experiences reflected in popular media. HBO Max Warner Bros. Warner Bros. Entertainment John Wells Productions

📰 Read PDSA’s full article at pdsa.org/itp-news.

Photo Credit Courtsey of Warner Bros/Warrick Page/HBOMAX

12/19/2025

🌄Save the date: 2026 ITP Conference in Salt Lake City!

Whether you’re newly diagnosed, returning for another year, or ready to get more involved, start imagining the conversations, friendships, and empowerment waiting for you there!

12/17/2025

From childhood bruises to nursing dreams, Caitlin redefines life with ITP. Read Caitlin's at pdsa.org

12/16/2025

What's on your 2026 ITP Vision Board?

- I want to go hiking without worrying about bruises.
- I want to be part of the decision-making about my treatment.
- I want to turn my experience into advocacy.

Drop your goals in the comments and let’s build this board as a community of strength, resilience, and hope. This board will reflect what our community envisions for 2026 — from finding treatments that work, to being seen beyond our diagnosis, to raising awareness together.

Address

8751 Brecksville Road, Ste 150
Cleveland, OH
44141

Opening Hours

Monday	8am - 5pm
Tuesday	8am - 5pm
Wednesday	8am - 5pm
Thursday	8am - 5pm
Friday	8am - 5pm

Telephone

+14407469003

Website

https://www.facebook.com/groups/PlateletDisorderSupportAssociation, http://www.pdsa.org/

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