Hands of Hope

Hands of Hope Hands of Hope is a leading pediatric hospice and palliative care provider in the southeast - South Carolina, North Carolina, and Georgia.

The Southeastโ€™s leading home-based pediatric palliative and concurrent hospice care provider. We serve children and families throughout South Carolina and in specific areas of North Carolina and Georgia.

๐Ÿ’™๐Ÿ’—๐Ÿ’› Trisomy Awareness Month ๐Ÿ’™๐Ÿ’—๐Ÿ’›March honors the beautiful lives of children with Trisomy 13, 18, and 21.Their joy, resil...
03/01/2026

๐Ÿ’™๐Ÿ’—๐Ÿ’› Trisomy Awareness Month ๐Ÿ’™๐Ÿ’—๐Ÿ’›

March honors the beautiful lives of children with Trisomy 13, 18, and 21.

Their joy, resilience, and light make the world brighter, and weโ€™re honored to walk alongside their families.

Drop a heart in your familyโ€™s trisomy color.

โญ Rare Disease Day โญToday we honor children and families living with rare diseases โ€” everyday fighters with extraordinar...
02/28/2026

โญ Rare Disease Day โญ

Today we honor children and families living with rare diseases โ€” everyday fighters with extraordinary strength.

Every journey matters. Every story deserves to be seen and honored.

Share a โญ to show support for rare families.

๐Ÿ’™ Heart Warrior Spotlight: Lamere Johnson ๐Ÿ’™At 12 years old, Lamere Johnson is the definition of courage. Born with Hypop...
02/26/2026

๐Ÿ’™ Heart Warrior Spotlight: Lamere Johnson ๐Ÿ’™

At 12 years old, Lamere Johnson is the definition of courage. Born with Hypoplastic Left Heart Syndrome, Lamere endured multiple open-heart surgeries before ultimately receiving the gift of a heart transplant in November 2024. His journey has been filled with hospital stays, procedures, medications, and constant monitoring โ€” but also with faith, resilience, and hope.

Today, what brings Lamere the most joy is getting to simply be a kid โ€” playing games, being creative, laughing with family, and enjoying everyday moments that once felt out of reach. He has the sweetest spirit, a bright smile, and a quiet strength that inspires everyone around him. Even after all heโ€™s faced, Lamere remains kind, thoughtful, and full of light.

His family shared an important reminder: a heart transplant is not the end of the journey โ€” itโ€™s the beginning of a new one. It requires ongoing care and vigilance, but it also brings renewed hope, joy, and the chance to truly live. Lamereโ€™s story is a powerful testament to the strength of children and the life-changing impact of organ donation.

They also shared deep gratitude for Hands of Hope, whose compassion and support helped their family feel seen, understood, and cared for during one of the most challenging seasons of their lives.

๐Ÿ’™ Join us in lifting Lamere up โ€” honor his strength, his second chance, and the courage it takes to keep moving forward every day by dropping a ๐Ÿ’ช in the comments.

๐Ÿ’™ Heart Warrior Spotlight: Jensen ๐Ÿ’™At 7 months old, Jensen is surrounded by love โ€” and he thrives in it. He loves being ...
02/25/2026

๐Ÿ’™ Heart Warrior Spotlight: Jensen ๐Ÿ’™

At 7 months old, Jensen is surrounded by love โ€” and he thrives in it. He loves being held, talked to, and included in everything happening around him. With four older siblings who adore him, Jensen is constantly covered in affection.

Jensen has the sweetest personality and is quick to smile the moment you engage with him. Playful, silly, and full of charm, he brings light even on the hardest days.

Born with Hypoplastic Left Heart Syndrome (HLHS), Jensenโ€™s life has required multiple open-heart surgeries and specialized care. He has already completed two major surgeries and faced serious complications, including time on life support and repeated hospital stays โ€” yet he continues to fight every day.

As his family shared, โ€œHLHS is an incredibly hard and lifelong journey, but it shows you just how strong these children truly are. Even through everything Jensen has faced, his smile and joy remind us every day that the fight is worth it.โ€

They also shared how meaningful it has been to have Hands of Hope alongside them โ€” providing home support, peace of mind, and trusted guidance through an unpredictable journey.

Today, we honor Jensen โ€” because he is here, he is strong, and he is truly a warrior. Share some love by dropping a๐Ÿ’™in the comments.

โœจ Standing with families walking lifelong heart journeys, one day at a time.

๐Ÿ’™ Heart Warrior Spotlight: Warren ๐Ÿ’™At 15 months old, Warren brings joy wherever he goes. He loves visiting his daddy at ...
02/22/2026

๐Ÿ’™ Heart Warrior Spotlight: Warren ๐Ÿ’™

At 15 months old, Warren brings joy wherever he goes. He loves visiting his daddy at the fire department, listening to music, riding around the farm with his Papa, and blowing kisses to everyone he meets. With his sweet personality and constant waves, Warren has a way of making every day brighter.

Before he was born, doctors suspected a heart condition. After birth, Warren was diagnosed with three congenital heart defects: pulmonary atresia, congenitally corrected transposition of the great arteries (ccTGA), and a ventricular septal defect. Born at 38 weeks, he spent time in the NICU at MUSC before coming home sooner than expected.

At 9 months old, Warren underwent his first open-heart surgery โ€” an 11ยฝ-hour procedure to place a shunt โ€” and he is now awaiting his second surgery. Through it all, his family has held tightly to hope, sharing that no matter how hard the news may feel, any day with Warren is a great day.

They also shared how grateful they are for Hands of Hope, describing the weekly visits, care, and keepsakes as a true blessing during a very uncertain season.

Today, we honor Warren โ€” a little boy whose journey is filled with strength, love, and hope. ๐Ÿ’™

Leave a ๐ŸŒŸ below to show support and strength for Warren and his family.

๐Ÿ’œYour Voice Has Power ๐Ÿ’œYour childโ€™s story can spark connection, spread awareness, and bring comfort to families walking ...
02/20/2026

๐Ÿ’œYour Voice Has Power ๐Ÿ’œ

Your childโ€™s story can spark connection, spread awareness, and bring comfort to families walking a similar path. Together, we can create a space filled with understanding and support.

Weโ€™d be honored to help you share your journey.

๐Ÿ“ข https://handsofhopese.com/testimonials/

๐Ÿ’™ Heart Warrior Spotlight: Owen ๐Ÿ’™At just 7 months old, Owen finds joy in the simplest, sweetest moments โ€” watching the c...
02/19/2026

๐Ÿ’™ Heart Warrior Spotlight: Owen ๐Ÿ’™

At just 7 months old, Owen finds joy in the simplest, sweetest moments โ€” watching the ceiling fan spin, giggling at his siblings, and soaking up time outside, his favorite place to be. With a bubbly personality and a constant smile, Owen brings light to everyone around him.

Owen was diagnosed with Hypoplastic Left Heart Syndrome (HLHS) during pregnancy. Born via C-section, he underwent his first open-heart surgery at just 4 days old. Since then, his journey has included a stroke, seizures, time relying on a G-tube for nutrition, and a second open-heart surgery. Today, Owen is eating by mouth and continuing to grow stronger, with another surgery expected in the years ahead.

His family shared a powerful truth they hold close: the journey is long, but God gives us hope. While Owenโ€™s surgeries are not a cure and he will always live with a single-ventricle heart, their faith has carried them through the hardest moments and continues to guide them forward.

They also shared how meaningful Hands of Hope has been โ€” offering reassurance, peace of mind, and trusted support. Knowing an RN was just a call or text away helped them navigate uncertainty and feel less alone during overwhelming moments.

๐Ÿ’™ Drop some love and encouragement in the comments as we stand with Owen and his family โ€” to honor his strength, their faith, and the hope that carries them through each step of this journey.

๐Ÿ’— Heart Warrior Spotlight: Scottie Mae ๐Ÿ’—At 15 months old, Scottie Mae finds joy in everything around her โ€” music, books,...
02/17/2026

๐Ÿ’— Heart Warrior Spotlight: Scottie Mae ๐Ÿ’—

At 15 months old, Scottie Mae finds joy in everything around her โ€” music, books, dancing, exploring her home, playing with her toys, and spending time with the people she loves. Her smile is contagious, her energy endless, and her cuddly side just as strong as her playful one.

Scottie was born with a congenital heart defect, including AVSD and heterotaxy. She spent over a month in the NICU before going home with a G-tube and medications, followed by multiple hospital stays due to heart symptoms. At just a few months old, Scottie underwent a heart catheterization and open-heart surgery.

Since surgery, Scottie has weaned off her G-tube and most medications โ€” and today, she is thriving and meeting milestones. As her family shared, โ€œShe is our superhero. The most resilient and strongest person weโ€™ve ever met.โ€

Her family also described Hands of Hope as โ€œa God send,โ€ sharing gratitude for the support and peace they received during a very uncertain season.

Today, we celebrate Scottie Mae โ€” a little girl with a big heart, unstoppable joy, and incredible strength. Show Scottie and her family love by dropping a๐Ÿ’œand encouraging words below!

โœจ May Scottieโ€™s story remind us that resilience often shines brightest in the smallest hearts.

โค๏ธ Heart Month is About Caring Together. โค๏ธThis February, during American Heart Month, weโ€™re honored to partner with the...
02/16/2026

โค๏ธ Heart Month is About Caring Together. โค๏ธ

This February, during American Heart Month, weโ€™re honored to partner with the incredible organizations, providers, and community advocates who walk alongside children with complex cardiac conditions and their families.

At Hands of Hope, we believe the best care happens when hearts come together โ€” combining medical expertise, emotional support, and compassionate presence to support quality of life at every stage of a childโ€™s journey.

๐Ÿ’™Join us in celebrating our partners this Heart Month! Tag a cardiac provider, organization, or advocate who makes a difference for children and families every day.

๐Ÿ’– This Valentineโ€™s Day, Love Looks Like Care. ๐Ÿ’–At Hands of Hope, love shows up in quiet moments โ€” a gentle touch, a comf...
02/15/2026

๐Ÿ’– This Valentineโ€™s Day, Love Looks Like Care. ๐Ÿ’–

At Hands of Hope, love shows up in quiet moments โ€” a gentle touch, a comforting presence, a shared smile during hard days. Itโ€™s a team, including nurses, providers, social workers, spiritual counselors and child life specialists walking alongside families with compassion, dignity, and hope.

Today, we celebrate the love that surrounds every child and family we serve โ€” not just on Valentineโ€™s Day, but every single day. ๐Ÿ’•

๐Ÿ’Œ Drop a ๐Ÿ’— below to send love to the families in our care, or tag someone who shows up with compassion when it matters most.

๐Ÿ’™ Heart Warrior Spotlight: Caden Gennie ๐Ÿ’™At 2 years old, Caden Gennie brings energy, laughter, and determination whereve...
02/12/2026

๐Ÿ’™ Heart Warrior Spotlight: Caden Gennie ๐Ÿ’™

At 2 years old, Caden Gennie brings energy, laughter, and determination wherever he goes. He loves being outside, playing ball, and doing everything he can to keep up with his big brother. Caden has a fun, silly personality and enjoys showing off new skills โ€” while still finding comfort staying close to mom and dad in unfamiliar or medical situations.

Born with complex congenital heart defects, Cadenโ€™s early life included multiple hospitalizations, procedures, and open-heart surgeries, along with feeding support and ongoing therapies. His journey has required more strength than most little ones ever face.

Since his full heart repair in March 2024, Caden has continued to grow and make progress, while remaining closely monitored. As his family shared, โ€œEven though you canโ€™t physically see anything wrong, that doesnโ€™t mean he isnโ€™t working hard just to live each day.โ€ His heart will always be different โ€” and his journey lifelong.

Cadenโ€™s family also shared that Hands of Hope was โ€œa lifeline during the hardest, sickest days,โ€ offering support, comfort, and care when they needed it most.

This Heart Month, we celebrate Caden and all heart warriors whose strength goes far beyond what can be seen. โค๏ธ

๐Ÿ’ฌ Drop a ๐Ÿ’™ to honor Caden and his continued journey.

๐Ÿ’™

๐Ÿ’œ Heart Failure Awareness Week ๐Ÿ’œHeart Failure Awareness Week reminds us of the complex journeys many of our kiddos and f...
02/10/2026

๐Ÿ’œ Heart Failure Awareness Week ๐Ÿ’œ

Heart Failure Awareness Week reminds us of the complex journeys many of our kiddos and families face.

Our team is honored to walk beside families with comfort-focused, child-centered care.

Comment ๐Ÿ’œ to show support for families navigating heart-related diagnoses.

Address

136 Stonemark Lane Ste. 100B
Columbia, SC
29210

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