Columbia, South Carolina - Hydrocephalus Association WALK

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Columbia, South Carolina - Hydrocephalus Association WALK

Join us on Saturday, September 26, 2026 at the 14th Annual Columbia Hydrocephalus Association WALK!
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We are a Non-Profit that raises Awareness, offer support and raise Funds for research for those who live with the struggles of hydrocephalus.

03/10/2026

📣Scholarship Opportunity 📣Are you 17 or older, a U.S. resident, living with hydrocephalus, and preparing to start school this year or already enrolled in an accredited program? You could be eligible for our Hydrocephalus Scholarship. Apply today! https://www.hydroassoc.org/Scholarship/

03/04/2026

Who's ready for some more fun? We're working on planning our WALK for 2026 and are so excited to see the many smiles and fun being had. If you've been before, we would love to have you back. If you are new, we can't wait to meet you. You can register now and start your fundraising and help gets us off to a great start. Need help or ideas please email us at columbiawalk@hydroassoc.org and we will be happy to help.

hydroassoc.org/columbiawalk

03/02/2026

Some interesting facts about VP Shunts, this is why we fund research to find better ways for shunts to be made, to reduce shunt failure, to find ways maybe shunts won't be the only options.

Kids Author Roald Dahl was instrumental in the basic design of the VP shunt that we still use today.

The Wade-Dahl-Till (WDT) valve is a cerebral shunt developed in 1962 by hydraulic engineer Stanley Wade, author Roald Dahl, and neurosurgeon Kenneth Till. In 1960, Dahl's son Theo developed hydrocephalus after being struck by a taxicab. A standard Holter shunt was installed to drain excess fluid from his brain. However, the shunt jammed too often, causing pain and blindness, risking brain damage and requiring emergency surgery. Till, neurosurgeon at London's Great Ormond Street Hospital for children, determined that debris accumulated in the hydrocephalic ventricles could clog the slits in the Holter valves, especially with patients such as Theo who had bad bleeding in the brain and brain damage.
Dahl knew Wade to be an expert in precision hydraulic engineering, from their shared hobby of flying model aircraft. (In addition to building his own model aircraft engines, Wade ran a factory at High Wycombe for producing precision hydraulic pumps.) With Dahl coordinating the efforts of the neurosurgeon and the hydraulic engineer, the team developed a new mechanism using two metal discs, each in a restrictive housing at the end of a short silicone rubber tube. Fluid moving under pressure from below pushed the discs against the tube to prevent retrograde flow; pressure from above moved each disc to the "open" position. As Till reported in The Lancet, the invention was characterized by “low resistance, ease of sterilisation, no reflux, robust construction, and negligible risk of blockage”. By the time the device was perfected, Theo had healed to the point at which it was no longer necessary to implant the shunt in his skull. However, several thousand other children around the world benefited from the WDT valve before medicine technology progressed beyond it. The co-inventors agreed never to accept any profit from the invention.
HydroAssoc.org/columbiawalk

02/28/2026

While hydrocephalus affects many people worldwide, some types — like x-linked hydrocephalus — are considered rare genetic forms of the condition. So today, on , we stand with the rare disease community 💙
Learn more about x-linked hydrocephalus here: https://www.hydroassoc.org/finding-our-way-with-l1cam/

Join us in our fight for better treatment options.

Hydroassoc.org/columbiawalk

02/27/2026

Ever wonder what a shunt looks like in the brain, well here you go. The one coming down from the top and the white dot it is the shunt. The tubing on the far left running down is where the excess fluid in the head goes. If you follow the picture down to the right you can see where the tubing travels under the skin. 💙🧠💦

HydroAssoc.org/columbiawalk

02/23/2026

So true today.... If you're someone who cares a lot and can help, think about WALKing, Sponsoring or Donating today. You can help the Millions of Americans that endure a life with hydrocephalus.
Hydroassoc.org/columbiawalk

02/14/2026

Just wanted to say Happy Valentine's to all our Hydrofamilies. We love you all!

02/13/2026

Super excited, our Webpage is up and ready for registration. Go ahead and start gathering your team and register today and get a head start on fundraising. Need ideas let us know we can send you a list.

hydroassoc.org/columbiawalk

02/08/2026

We need your help! We're looking for songs to play at our WALK. Please fill out the form and let us know what you like.

https://forms.gle/MbMwtgDiuK3H9GLU6

02/07/2026

Super Excited to be partnering with , who will be our DJ this year. Thank you Bobby Talbert for helping us raise awareness and having fun while doing it.

02/06/2026

We want to give a Shout-out to our 1st Sponsor for this year. Thank you, for being a Silver Sponsor and helping us meet our goal to further our mission and advance medical research for those with 💙💧🧠

Address

2 Medical Park Road
Columbia, SC
29203

Website

http://www.hydroassoc.org/

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Our Story

We are a Non-Profit all volunteer based that raises money for research, to provide support, provide education and advocacy for those who live with the struggles of hydrocephalus. We are a community of Hydrowarriors and their loved ones who work hard to provide the best possible life for our loved ones and others who suffer from the effects of hydrocephalus.