Foundation Fighting Blindness

01/09/2026

🎧 On today's new episode of the Eye on the Cure podcast, Josh Steinberg and his father, Jon, join host Ben Shaberman to share their family’s journey following Josh’s diagnosis of retinitis pigmentosa—and how that experience inspired both of them to take on volunteer leadership roles at the Foundation Fighting Blindness.

They talk about navigating life with a blinding disease, the importance of community, and their work helping advance research toward treatments and cures.

Tune in now and share this episode: www.FightingBlindness.org/podcasts/eye-on-the-cure-podcast-episode-98-jonathan-josh-steinberg-958

Image Description: Dark blue background with Foundation Fighting Blindness logo in the top left and Eye on the Cure Podcast logo in the top right. Teal half circle at the top center with "Ep. 98" inside. Below, text reads, "Listen to the latest episode. Host: Ben Shaberman. January 9, 2026." To the left is Jonathan Steinberg with "Dr. Jonathan Steinberg, Guest" beneath. To the right is Josh Steinberg with "Josh Steinberg, Guest" below.

01/08/2026

We’re excited to share that the Retinal Degeneration Fund (RD Fund)—the venture arm of Foundation Fighting Blindness—has invested in Beacon Therapeutics as part of its $75M Series C financing.

This investment will help advance laru-zova, a potential best-in-class gene therapy for X-linked retinitis pigmentosa (XLRP), and accelerate development of additional therapies for people living with blinding diseases.

Our mission is to drive innovation that leads to treatments and cures—and this partnership is a powerful step toward that goal. Read more on our website at: https://bit.ly/4juqqHH

The venture philanthropy arm of the Foundation partnered with other investors to support the development of a gene therapy trial by for X-linked retinitis pigmentosa (XLRP).

01/06/2026

Kenyetta McCurdy-Byrd, our Closing Keynote Speaker at VISIONS 2024, invites you to be part of United in Vision 2026!

United in Vision 2026 brings together the Foundation Fighting Blindness VISIONS conference and the Retina International World Congress into one extraordinary global gathering.

Join us June 12–13 in Fort Worth, TX for two days of science, stories, and connection — bringing together patients, researchers, and advocates from around the world. 🌍

Register today at: https://bit.ly/4lxn3PL

Video Description: Kenyetta McCurdy-Byrd sits on her couch speaking directly to the camera about United In Vision 2026.

01/04/2026

Today, on World Braille Day, the Foundation is reflecting on how one bold innovation reshaped accessibility worldwide.

That same spirit drives our work — funding breakthroughs that advance treatments and cures, and championing the tools, resources, and inclusive practices that make everyday life more accessible for people with blinding diseases.

Image Description: Dark blue background with Foundation logo in the top left corner. Below is green text that says, "World Braille Day" with a stacked arrangement of braille characters for ‘World Braille Day’ and text underneath that says, "January 4."

01/02/2026

Thank you for helping us start 2026 strong! ✨

Thanks to supporters like you, tens of thousands of dollars were raised at the end of 2025 to accelerate research that is advancing treatments and cures for blinding diseases. Every gift moves life-changing science closer to the people who need it most.

From all of us — and from everyone whose lives you’re touching — thank you for your generosity. 💛

Image Description: Dark blue background with Foundation logo in the top left corner. Copy on the right reads, "END-OF-YEAR MATCH." Below is text, "Thank you for helping us start 2026 strong!" With the outline of two hands together holding a heart.

01/01/2026

Happy New Year from all of us at the Foundation Fighting Blindness! We’re grateful for you and your support in advancing treatments and cures for blinding diseases.

Image Description: Dark blue background with Foundation logo in the top left corner. Orange beams centered shaped like a firework with text overtop that says, "Happy New Year, 2026!"

12/31/2025

Time is almost up! ⏰ Today is your last chance to make a gift that goes twice as far.

Every donation before midnight helps us reach our $150,000 goal and fuels the research driving treatments and cures for blinding diseases.

Don’t miss this opportunity to make a lasting impact before the year ends: https://bit.ly/3MsUG9m

Video Description: Dark blue background with Foundation logo in the top left corner. Copy on the right reads, "END-OF-YEAR MATCH."

12/30/2025

Every dollar you give before midnight tomorrow, December 31, will be matched, bringing us closer to our $150,000 goal. Your generosity fuels the research driving treatments and cures for blinding diseases — and year-end gifts like yours may be tax-deductible.

Families like Krystle’s — who founded Inside Ability Books, the only children’s book company providing large-print, high-contrast books — inspire our work and show why every donation matters. Please make your gift now before the year ends: https://bit.ly/3MsUG9m

Image Description: Dark blue background with Foundation logo in the top left corner. Copy on the right reads, "END-OF-YEAR MATCH." Below is Krystle smiling with her two sons with text in a green box below that says, "Double Your Gift, Fuel Hope for Families."

I just donated to the Foundation Fighting Blindness to help fund life-changing research and bring us closer to cures for blinding diseases. Join me! give.fightingblindness.org/donate

12/29/2025

Krystle’s vision loss inspired her to create Inside Ability Books, making high-contrast, inclusive children’s books so families can share the joy of reading together. Your year-end gift can bring hope and connection to families affected by blinding diseases — and every dollar is matched to go twice as far.

Give today and be part of our end-of-year match challenge: https://bit.ly/3MsUG9m

Image Description: Dark blue background with Foundation logo in the top left corner. Copy on the right reads, "END-OF-YEAR MATCH." Below is Krystle at a booth for Inside Ability Books holding one of her large print books with text in a green box below that says, "Krystle's Courage Inspires Progress — Double Your Impact!"

I just donated to the Foundation Fighting Blindness to help fund life-changing research and bring us closer to cures for blinding diseases. Join me! give.fightingblindness.org/donate

12/24/2025

Happy Holidays from the Foundation Fighting Blindness! ✨

Our offices will be closed December 25–January 2, and as we wrap up 2025, we’re filled with gratitude for our incredible community. Your support has driven remarkable progress in advancing treatments and cures for people with blinding diseases.

From all of us at the Foundation, thank you for the hope, the momentum, and the unwavering support you bring to our mission. Wishing you a joyful and meaningful holiday season! 💙

Image Description: Dark blue background with a red house and trees covered in snow along the bottom. Foundation Fighting Blindness logo in top left corner with text below that reads "Happy Holidays from the Foundation Fighting Blindness! Our offices will be closed from December 25, 2025 through January 2, 2026."

12/22/2025

Many companies offer matching gift programs that match what you give—sometimes even 2:1! That means your $50 gift could instantly become $100 (or more!) at no extra cost to you.

Matched gifts power the research that drives new treatments and cures for blinding diseases. It’s one of the simplest ways to amplify your impact and support the community you care about.

👉 Check if your gift can be matched: www.FightingBlindness.org/employer-matching



Video Description: Dark blue background with large white text reads: “Does your employer match charitable donations? Find out in seconds with Double the Donation.” A white outline of a donation box with a heart sits in the bottom right corner with coins dropping into the box.

12/22/2025

We’re thrilled to share an excerpt from "Never Seen the Stars" by Kate Korsh as part of our storytelling series, The Reality of an Invisible Disability!

Kate, who also lives with retinitis pigmentosa (RP), gives readers an honest, heartfelt look at Hattie's journey—finding strength in herself, leaning on loved ones, and navigating life with RP. Thank you, Kate, for sharing this story with our community! 💛

Read the excerpt on our website at: www.FightingBlindness.org/stories/excerpt-from-never-seen-the-stars-1090

And if you have a story you want to share about living with an invisible disability, your story matters—and we invite you to share it as part of The Reality of an Invisible Disability series.

Read an excerpt from the novel, Never Seen the Stars, where Hattie reflects on living with retinitis pigmentosa, navigating family dynamics, and finding hope in her choices.