Foundation Fighting Blindness

Foundation Fighting Blindness The Foundation is the driving force in the global development of treatments and cures for blinding diseases. Join the fight and help us accelerate our mission.
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The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. The Foundation is a beacon for those affected by these blinding diseases.

02/24/2026

Confidence isn’t always about what you see. 💙

Natasha walks us through how she does her makeup with achromatopsia, using tools like color-scanning apps, a magnified mirror, and support from others to choose products that work for her.

For AMD & Low Vision Awareness Month, Natasha reminds us that even if she can’t see every detail, she still feels beautiful — and that’s what matters.

What tools or support help you feel your best?

Video Description: Clips of Natasha doing her makeup all shown in black and white. At the end, she reveals her makeup look in full color.

The Foundation Fighting Blindness community mourns the loss of Karen Petrou, our Board Chair, who passed away after a pr...
02/23/2026

The Foundation Fighting Blindness community mourns the loss of Karen Petrou, our Board Chair, who passed away after a private battle with liver cancer. Throughout her many years of service to the Foundation, Karen was an extraordinary force for progress, advocacy, and hope for everyone affected by inherited retinal diseases.

Read more about Karen’s legacy on our website:

Remembering Karen Petrou, whose strategic vision, personal courage, and unwavering commitment helped shape the future of inherited retinal disease research.

02/22/2026

To help deepen understanding of the lived experiences of those affected by Stargardt disease, one of our industry partners is conducting a community survey.

Individuals living with Stargardt disease and caregivers are invited to participate in this confidential, 25–30 minute online survey.

Insights gathered may help shape research efforts and inform the development of treatments and cures — ensuring that the perspectives of the Stargardt community help guide progress.

Take the survey at:

Want the latest on AMD research and care? Join us February 28 at 12 p.m. ET for our Quarterly Vision Webinar to hear fro...
02/21/2026

Want the latest on AMD research and care? Join us February 28 at 12 p.m. ET for our Quarterly Vision Webinar to hear from experts about research progress, treatments on the horizon, and practical tips for navigating AMD.

Register now: https://bit.ly/4r8ItWv

This webinar is sponsored by Johnson & Johnson.

Image Description: Dark blue background with the Foundation Fighting Blindness logo at the top. Below is the text "Quarterly Webinar, The Future of Age-Related Macular Degeneration (AMD) Research and Care, Saturday, February 28, 2026, 12:00 p.m. ET." Geometric lines and a colorful digital wave are featured at the bottom.

02/19/2026

What’s one thing that’s helped you navigate low vision? 👁️‍🗨️

For Cory, it’s something so simple — but powerful. In this video, he shares a perspective that’s helped him move forward and reminds others they’re not alone.

As part of AMD & Low Vision Awareness Month, Cory shares his most powerful low vision life hack.

Join the conversation and share something that’s helped you.

Video Description: Cory talks directly to the camera, sharing a low vision life hack, showing clips and cartoon graphics from his 'Blind Life Hacks' video series on YouTube.

02/18/2026

Living with vision loss doesn’t have to mean giving up on the things that matter—low vision specialists can help you find a path forward.

Dr. Erin Kenny, Chief at the William Feinbloom Vision Rehabilitation Center (The Eye Institute), recommends a low vision evaluation for anyone with vision loss. These specialized evaluations can help you tackle everyday tasks—whether it’s reading, cooking, navigating your home, or something bigger you never thought possible. Even if a challenge feels out of reach, meeting with a low vision specialist can open new strategies and options to help you live more independently.

🎥 Hear Dr. Kenny’s advice and learn how low vision care can make a difference in your vision loss journey.

Video Description: Begins with static dark blue background with the Foundation Fighting Blindness logo in the top left and the Glimpse with Glaze logo in the top right. Below are two headshots of Michelle Glaze and Erin Kenny, OD, FAAO, with their names written out below. Erin appears, speaking directly to the camera. Michelle also appears, asking questions, speaking directly to the camera as well.

02/17/2026

It’s — and during AMD & Low Vision Awareness Month, we’re sharing an easy way to make your phone more accessible. 📱

In partnership with Hadley, this video walks through how to enable high contrast text on an Android device, a built-in feature that can improve readability and ease everyday phone use.

Watch the video for quick, step-by-step instructions you can try right away — and share with someone who might find this helpful.

Video Description: Begins with the text “Tech Tip Tuesday” at the top and an Android phone below. Below is the text “Android Low Vision: High Contrast Text” and the Hadley and Foundation Fighting Blindness logos at the bottom. An Android sitting on a table appears, and the step-by-step instructions are narrated. Ends with the logos again, followed by “Learn more at: HadleyHelps.org" and the finger pointing icon below.

02/16/2026

Adapting doesn’t mean you have to give anything up. 💙

Anastasia takes us skiing and shares how she navigates the slopes using guided support, verbal cues, and safety gear to ski with confidence.

As we recognize AMD & Low Vision Awareness Month, she shows that adapting looks different for everyone — and that low vision doesn’t have to stop you from doing what you love.

How do you adapt to low vision in everyday life?

Video Description: Anastasia talks directly to the camera, showing how she gets ready for skiing by putting on her gear, including her snow pants, jacket, and 'BLIND' safety vest. Next, a clip shows her skiing down the mountain from her guide's perspective.

An update on the development of a potential new treatment for thyroid eye disease (TED).The FDA has accepted a Biologics...
02/14/2026

An update on the development of a potential new treatment for thyroid eye disease (TED).

The FDA has accepted a Biologics License Application (BLA) from our corporate partner, Viridian Therapeutics, for veligrotug — an investigational therapy being evaluated for people living with TED.

The application has been granted Priority Review, with an FDA target action date of June 30, 2026.

This represents an important step in the FDA’s review process as research continues to advance potential treatments.

Viridian Therapeutics - Patient resources about Thyroid Eye Disease and other rare autoimmune diseases

02/13/2026

Fai first attended a Foundation Fighting Blindness VISIONS conference in 2016—and found a community that truly understood his vision loss journey with retinitis pigmentosa (RP). That experience inspired him to give back, and today, he serves as the Foundation's Arizona Chapter President.

Now, Fai is inviting you to join him at United in Vision 2026—two powerful days of science, shared stories, and momentum toward advancing treatments and cures.

📍 June 12–13 | Fort Worth, TX

👉 Join Fai—and a global community—this June. Register today: https://bit.ly/4lxn3PL

Video Description: Fai talking directly to the camera, with a painting of flowers displayed behind him, discussing his experience at past VISIONS conferences and why you should join him this year at United in Vision.

This Valentine’s Day, turn love into a lasting legacy. ❤️Creating a legacy is a meaningful way to care for the people yo...
02/12/2026

This Valentine’s Day, turn love into a lasting legacy. ❤️

Creating a legacy is a meaningful way to care for the people you cherish while honoring the causes that matter most to you. From planning for your family’s future to sharing your values through an ethical will, thoughtful decisions today can make a lasting impact.

By including the Foundation Fighting Blindness in your plans, you can help advance treatments and cures for blinding diseases—at no cost today, with impact for generations to come.

Start the conversation about legacy giving: www.FightingBlindness.org/legacy-giving

Image Description: Dark blue banner swiping diagonally across the top with text that reads, "A Legacy of Love. A Future of Progress." Followed by the Foundation Fighting Blindness logo below. Below are two hands passing a heart shape with the sun shining behind.

Age-related macular degeneration (AMD) is a progressive disease, but how it progresses and how it affects daily life var...
02/11/2026

Age-related macular degeneration (AMD) is a progressive disease, but how it progresses and how it affects daily life vary from person to person.

Some experience gradual changes in central vision, like blurring or wavy lines. Others may notice more significant shifts over time. What matters at every stage is staying informed, maintaining regular eye care, and supporting research that continues to advance treatments for AMD.

This February, in honor of AMD & Low Vision Awareness Month, learn about AMD and how research is helping people at every point in their journey: www.FightingBlindness.org/diseases/age-related-macular-degeneration

Image Description: Dark blue background with the Foundation Fighting Blindness logo at the top, with text to the right, "AMD & Low Vision Awareness Month." Text below reads, "AMD symptoms and progression vary from person to person and may include:" and corresponding images simulating the following symptoms, "Blurring of central vision, Straight lines appearing distorted or wavy, Blind spots forming in central vision."

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