11/21/2025
Speaking Is a Privilege: Dystonia Awareness and AAC Advocacy in the Disability Community in Ohio
ODDC Community Ambassador Alicia (Audacity2Speak) shares her experiences and resources through her blog, "The Pulse", on her media website Ohio Advocacy Heartbeat.
During her time as a Community Ambassador, Alicia wrote about living with dystonia, a condition that causes involuntary muscle movements and can make speaking difficult. Many people with dystonia rely on Augmentative and Alternative Communication devices (AAC) part-time, and when they are in situations that don't allow extra time for them to speak, they can be left out of the conversation. Alicia educates her readers on how AAC devices work, and that a pause in communication doesn't mean the speaker isn't engaged.
"Everyone deserves respect and to be listened to, regardless of communication method."
Learn more about Alicia and read her blog post about dystonia awareness month here: https://lp.constantcontactpages.com/cu/ou5bpq4/AliciaHopkins