My lyfe with HS

My lyfe with HS Spreading awareness and showing support for those who have HS��

10/07/2025

UCB made it into the Guinness World Records for the World's LARGEST ball of bandages which symbolizes the countless bandages people with HS use every day.

As Hidradenitis Suppurativa Awareness Week comes to a close, we honor every story shared, every voice raised, and every ...
06/09/2025

As Hidradenitis Suppurativa Awareness Week comes to a close, we honor every story shared, every voice raised, and every step taken toward education, compassion, and change.
💜 HS is more than a skin condition—it’s a lifelong journey.
💜 Early diagnosis and support make a difference.
💜 Awareness doesn’t end here—keep advocating, keep learning.
Together, we are stronger. Together, we bring HS into the light.

Self Care Saturdays💜Caring for Yourself With HSLiving with HS can be exhausting—mentally and physically.🧘🏾‍♀️Today, we e...
06/07/2025

Self Care Saturdays💜Caring for Yourself With HS

Living with HS can be exhausting—mentally and physically.

🧘🏾‍♀️Today, we encourage you to REST.
🎧 Journal, meditate, walk, or listen to music.
You deserve care. You deserve compassion.


💜Fast Facts About HS You Should Know🔹 HS affects nearly 1 in 25 people.🔹 There is no known cure—but there IS support.🔹 H...
06/06/2025

💜Fast Facts About HS You Should Know

🔹 HS affects nearly 1 in 25 people.
🔹 There is no known cure—but there IS support.
🔹 HS is often misdiagnosed.
🔹 Early care helps manage flare-ups and improve life quality.
Together, we can educate and empower.


06/06/2025

💜 A Salute to the Medical Heroes 💜

Today we thank the physicians, researchers, and advocates making a difference in the HS community.

Special recognition to Ohio’s own:
🏥 Hidradenitis Suppurativa Institute – Westlake
🏥 Ohio State University Hospital- Dermatology Dept
🏥Riverside Methodists Hospital- Dermatology Dept
🏥 University of Cincinnati – Dermatology Dept

💜You bring hope, healing, and awareness💜

HS Warriors, We See You!💜To every person battling HS – you are strong, brave, and not alone.Your journey matters. Your s...
06/04/2025

HS Warriors, We See You!💜
To every person battling HS – you are strong, brave, and not alone.
Your journey matters. Your story matters. This week, we honor you.
Tag an HS Warrior or share your story in the comments. 💬

What Is HS? Let’s Talk About It.Hidradenitis Suppurativa (HS) is NOT contagious. It’s a chronic, debilitating skin disea...
06/03/2025

What Is HS? Let’s Talk About It.

Hidradenitis Suppurativa (HS) is NOT contagious. It’s a chronic, debilitating skin disease that causes painful lumps, scarring, and deeply affects quality of life.

Many suffer in silence. Let’s change that.

💡 Did you know? Early diagnosis is key to managing HS.

💜It’s Official! Ohio Recognizes HS Week!💜We are proud to stand with the State of Ohio as they recognize Hidradenitis Sup...
06/03/2025

💜It’s Official! Ohio Recognizes HS Week!💜

We are proud to stand with the State of Ohio as they recognize Hidradenitis Suppurativa Awareness Week – June 3–9.

This week, we amplify voices, educate others, and bring light to a condition that affects up to 4% of the population.

💜Let’s raise awareness. Let’s support the warriors. 💜

💜

💜It’s Official! Ohio Recognizes HS Week!💜We are proud to stand with the State of Ohio as they recognize Hidradenitis Sup...
06/03/2025

💜It’s Official! Ohio Recognizes HS Week!💜

We are proud to stand with the State of Ohio as they recognize Hidradenitis Suppurativa Awareness Week – June 3–9.

This week, we amplify voices, educate others, and bring light to a condition that affects up to 4% of the population.

💜Let’s raise awareness. Let’s support the warriors. 💜

💜

Fun fact: We made history for the state of Ohio back in 2019! This was presented to My lyfe with HS far before I underst...
02/07/2025

Fun fact: We made history for the state of Ohio back in 2019! This was presented to My lyfe with HS far before I understood the debts of this journey!

Hidradenitis Suppurativa (HS) is not new—doctors have been studying it for over 180 years! It was first described in 1839, but people likely suffered from it long before that. HS is a chronic skin condition that causes painful lumps, abscesses, and scarring, mainly in areas where skin rubs together. Even though it affects millions, it is still widely misunderstood.

If you have HS, remember: You are not alone.💜

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