GBS-CIDP Foundation International

GBS-CIDP Foundation International Our commitment is to support those affected by GBS, CIDP, MMN & its variants.

Our commitment is to support those affected by GBS, CIDP & its variants so each patient obtains an early diagnosis, proper treatment, & the opportunity for a full recovery.

We’re excited to share a milestone in the Principles of Care (PoC) for CIDP initiative — the first follow-up interview h...
03/07/2026

We’re excited to share a milestone in the Principles of Care (PoC) for CIDP initiative — the first follow-up interview has officially taken place.

Building on insights from the 2025 workshops, these interviews are an important next step in capturing deeper perspectives from patient advocates and healthcare professionals to help shape a more patient-centered framework for CIDP care.

Every conversation helps move us closer to defining what quality, coordinated care should look like for people living with CIDP.

Learn more about the PoC project:
https://www.gbs-cidp.org/2025/12/principles-of-care-for-cidp-workshops-2025-summary-and-next-steps/

This past Saturday, our global community came together for Rare Disease Day. 💙🌍From Belgium, Hungary, and Gibraltar, vol...
03/03/2026

This past Saturday, our global community came together for Rare Disease Day. 💙🌍

From Belgium, Hungary, and Gibraltar, volunteers hosted meetings, joined awareness events, and even got moving with Zumba — showing that advocacy can be both powerful and uplifting.

We’re so proud of our international family at GBS|CIDP Foundation International for raising awareness and shining a light on GBS, CIDP, MMN, and related conditions.

Showing she cares for the rare, our International Liaison from the Dominican Republic, Rosa Valero, raised awareness abo...
02/28/2026

Showing she cares for the rare, our International Liaison from the Dominican Republic, Rosa Valero, raised awareness about GBS on a local radio talk show this Rare Disease Day. 💙

Watch now: https://youtu.be/dwcJAvYva3E

Rare Disease Day reminds us that behind every diagnosis is a person, a family, and a story of strength. GBS, CIDP, and M...
02/28/2026

Rare Disease Day reminds us that behind every diagnosis is a person, a family, and a story of strength. GBS, CIDP, and MMN may be rare — but our community is powerful.

From the Dominican Republic, Mexico, Argentina,and Guatemala, our volunteers and patient advocates are leading with courage—raising awareness, supporting newly diagnosed patients, and building connection where it’s needed most.

Because when a condition is rare, community matters even more.

For more information on Rare Disease Day visit https://www.gbs-cidp.org/2026/02/rare-disease-day/

Sharing news as we wrap up our MMN awareness month regarding the research of Professor Simon Rinaldi and Dr. Nicolas Dub...
02/27/2026

Sharing news as we wrap up our MMN awareness month regarding the research of Professor Simon Rinaldi and Dr. Nicolas Dubuisson, and celebrating a major new $600,000 grant, the Foundation is honored to have helped support their progress in their fight against inflammatory neuropathies.

Read more:

To mark Rare Disease Day on 28 February, we’re highlighting the research of Professor Simon Rinaldi and Dr Nicolas Dubuisson, and celebrating a major new $600,000 grant to progress their fight against inflammatory neuropathies.

Philadelphia is glowing orange this February 🧡  As buildings light up across the city for MMN Awareness Month, we’re rem...
02/27/2026

Philadelphia is glowing orange this February 🧡

As buildings light up across the city for MMN Awareness Month, we’re reminded that this awareness reaches far beyond one skyline. From Philadelphia to communities around the world, we are raising awareness for Multifocal Motor Neuropathy together. 🌎

For more information on MMN awareness month visit: https://www.gbs-cidp.org/2026/01/2026-multifocal-motor-neuropathy-awareness-month/

Grateful for our Global Volunteer Family!Last night, we had the privilege of coming together on Zoom with our amazing vo...
02/26/2026

Grateful for our Global Volunteer Family!

Last night, we had the privilege of coming together on Zoom with our amazing volunteers from across the world -New Zealand, Australia, Belgium, the Netherlands, Switzerland, Italy, Lithuania, Kuwait, Hungary, and Malta.

Because no one rides alone...We’re excited to share this promo video for the No One Rides Alone movie — a story of coura...
02/26/2026

Because no one rides alone...We’re excited to share this promo video for the No One Rides Alone movie — a story of courage, perseverance, and community.

No One Rides Alone premieres on 28 February 2026. It will then be screened in selected cinemas around the world, starting in the UK in March.

Press play and be inspired! ▶ https://youtu.be/cH9YEOozwXc?si=P4akWWrKkT5osZkt

Follow Making The Most of Now for more information!

02/25/2026

We’re proud to see our volunteer John from Gibraltar share his personal journey with MMN.

Address

375 East Elm Street Suite 101
Conshohocken, PA
19428

Opening Hours

Monday 8:30am - 4:30pm
Tuesday 8:30am - 4:30pm
Wednesday 8:30am - 4:30pm
Thursday 8:30am - 4:30pm
Friday 8:30am - 12pm

Telephone

+16106670131

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