GBS-CIDP Foundation International

12/19/2025

Wrapping up the year with updates from the Principles of Care project (POC). Learn more about this meaningful & unique collaboration in partnership with the GBS|CIDP Foundation, EPODIN, patients & healthcare professionals, to identify and develop standards of care world-wide. A special thank you to the sponsors of the program, argenx, Grifols, Johnson & Johnson, Sanofi, and Takeda, for supporting this important endeavor!

Principles of Care for CIDP Workshops 2025: Summary and Next Steps To learn more about the Foundation’s ongoing Principles of Care (PoC) initiative, please click here. In October and November 2025, the Principles of Care (PoC) for CIDP project brought together patient advocates and healthcare prof...

12/16/2025

After a life-changing battle with Guillain-Barré Syndrome earlier this year, Miles Washburn is turning his recovery into a mission to support others facing the same challenge. On August 24, 2026, he will take on the legendary climb up Mount Ventoux in France — 26 km of relentless uphill riding — to raise funds for the GBS Patient Assistance Fund. Follow along here: Miles for GBS

12/09/2025

Follow link here for more information: https://www.gbs-cidp.org/2025/12/write-a-letter-to-help-protect-aca-tax-credits/

12/03/2025

🎉 This week is a celebration like no other!

We’re honored to celebrate 45 years of the Foundation — and even more excited to share that this milestone falls alongside the 95th birthday of our incredible founder, Estelle Benson.

Today, we’re sharing a video from our staff, filled with gratitude, love, and stories of just how much Estelle has inspired our work and our mission. Watch the video and celebrate with us!

If you’d like to support our next 45 years of impact, we invite you to make a gift today: https://p2p.onecause.com/gbsgive/donate

12/03/2025

Giving Tuesday is almost over — but you can still make a meaningful impact. Your generosity today helps continue 45 years (and counting!) of support, connection, and hope for everyone affected by GBS, CIDP, and MMN.

As we celebrate this global day of generosity, we’ll also be sharing stories all week long about our incredible founder, Estelle Benson in celebration of her 95th birthday. Donate today: https://p2p.onecause.com/gbsgive/donate

12/02/2025

🎁 This Giving Tuesday, we're celebrating the Foundation's 45th year! Your Giving Tuesday gift fuels our mission to bring strength, connection, and hope to everyone affected by GBS, CIDP, and MMN. Give today: https://p2p.onecause.com/gbsgive/donate

12/02/2025

Join us in celebrating 45 years and counting of support, connection, and hope for everyone affected by GBS, CIDP, and MMN. Inspired by Estelle Benson’s promise that no patient should face this journey alone, our community continues to grow stronger, and your generosity makes it possible.
Make your Giving Tuesday gift here: https://p2p.onecause.com/gbsgive/donate

12/01/2025

In 1980, Estelle Benson made a promise that no GBS, CIDP, or MMN patient would ever face their journey alone, a promise that has grown into a global community 45 years and counting. This Giving Tuesday, we honor Estelle as a Champion for Change and celebrate the legacy that began at her kitchen table. Give early today to help carry her mission forward by donating here: https://p2p.onecause.com/gbsgive/donate.

11/14/2025

Our own NYC volunteer & patient advocate, Michael Ring, not only ran the New York City marathon, but is now featured in the film "Final Finishers", available now on Disney+ and ESPN Plus! Check out the teaser below. Congratulations Michael, you are an unstoppable inspiration!

11/14/2025

Join us live at 11:00 AM ET today for our program featuring a doctor, patient advocate, and person with MMN. The panel will talk about what clinical trials are, why they matter, and how they could help improve your MMN care. Join here: https://www.medlive.com/patient/show/25-10-29-mmn_cidp-clinical-tr?pqat=4a9e289975ed1730a217f4e72c12e70531728a607ad413b6d157f7c7170b6a1d23c2fe7297c3cec2cfeb249e00b642aa7f4e1617429d6261aa984b0b20ced06a&refCode=par_GBS_CIDP_111425_MMN_Clinical_Trials_live_email

11/14/2025

Do not miss our live session tomorrow at 11:00 AM ET: MMN Clinical Trial Awareness: Helping Patients and Care Partners Understand Opportunities in Research. You will hear about what clinical trials are, why they matter, and how they could help improve MMN care in the future. Register Now!
👉 https://www.medlive.com/v/MMNClinicalTrial