GBS-CIDP Foundation International

10/22/2025

Echoing our colleagues at the National Health Council, we at the GBS|CIDP Foundation International urge legislators to act to end the government shutdown and pass meaningful legislation, such as a permanent extension of the Affordable Care Act, and enhanced advance premium tax credits (eAPTCs). As always, our commitment lies in preserving and enhancing patient access to high-quality, affordable healthcare. To read the full letter from NHC: https://nationalhealthcouncil.org/letters-comments/nhc-submits-letter-to-congress-on-government-shutdown/

10/15/2025

Physical therapist Maria Harris, PT, DPT, shared how small, personalized adjustments to your movement routine can make a big difference—reducing fatigue, preventing falls, and helping you regain confidence in daily life.

✨ If you weren’t able to join us live on this webinar, you can still learn more:

In this episode, we focus on the role of physical therapy (PT) in the recovery and long-term management of Guillain Barré syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), and related variants. The discussion explores how PT supports patien...

10/11/2025

Day 2 of our International African-European Volunteer & Allied Organization Workshop in Berlin 🇩🇪

We started the day with an energizing yoga and mindfulness session led by Eef and Ursina 🧘‍♀️

It was an honor to welcome our GMAB member Dr. Claudia Sommer and GBS survivor Dr. Felix Wachter, who shared inspiring presentations followed by a shared Q&A sessions.

We wrapped up the day with smiles, laughter, and a joyful closing dinner — celebrating connection, learning, and community 💫

10/10/2025

Today, on World Mental Health Day, we’re reminded that caring for our minds is just as important as caring for our bodies.

For those living with GBS, CIDP, MMNand variants, emotional health is a key part of healing. That’s why we hosted a Speaker Series webinar on Mental Health & Integrated Care for the GBS|CIDP Community.

Missed it? Catch the recording here:

Living with Guillain-Barré Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), or related conditions can take a toll on both physical and mental well-being. While treatment often focuses on managing neurological symptoms, the impact on mental...

10/10/2025

Day One of our International African and European Workshop is underway in Berlin 🇩🇪

🌍We’re bringing together our dedicated volunteers and allied organizations to collaborate, share insights, and strengthen our global network. Exciting discussions ahead!

10/09/2025

Principles of Care (POC)workshop is well underway! This marks the first of several key gatherings that will identify needs in diagnosis, treatment and quality of life, for CIDP patients across Europe. Stay tuned for more communications regarding key milestones on the POC project, and big shout out to the amazing facilitating team at Patvocates, our strategic partners on the project.

10/08/2025

The GBS|CIDP Foundation International is proud to be a partner in support of International Plasma Awareness Week (IPAW)!

Plasma—the straw-colored liquid in blood- holds the key proteins the body needs to function, including those that create antibodies to battle illness and clotting factors to stop bleeding. A lack of just one of these vital proteins can prevent the body from performing these essential tasks, resulting in serious, long-term health issues.

This week, we hope to highlight the importance of plasma collection efforts, recognize the lifesaving contributions of plasma donors, and increase awareness of plasma protein therapies and rare diseases.

10/07/2025

In 2025, the Foundation launched the Interdisciplinary Health Committee (IHC) for GBS, CIDP, and MMN—a team of healthcare professionals providing guidance beyond medical treatment. From adaptive devices to emotional support, the IHC is here for the full patient journey. At our 2025 Symposium, they offered one-on-one sessions and continue to contribute to webinars, community events, and more.

👉 Continue Reading: https://www.gbs-cidp.org/2025/09/new-interdisciplinary-health-committee-for-gbs-cidp-and-mmn/

10/03/2025

It’s opening day of the AU Pro Volleyball Championship season! Help us cheer on as she plays for us this season!

10/02/2025

Step inside the 2025 GBS/CIDP Symposium with a volunteer’s eyes — where research and human connection collided in unforgettable ways. Chris Willard shares how patient stories, caregiver voices, and real-world breakthroughs made the gathering feel more like a movement than a conference. From the launch of the new Interdisciplinary Health Committee to moments of vulnerability and solidarity, this recounting reminds us that the heart of the Symposium lives in the people, not just the podiums.

Continue reading here:

Step inside the 2025 GBS/CIDP Symposium with a volunteer’s eyes — where research and human connection collided in unforgettable ways. Chris Willard shares how patient stories, caregiver voices, and real-world breakthroughs made the gathering feel more like a movement than a conference. From the ...

10/02/2025

We’re beyond excited to team up with Taylor Sanbothe, Athletes Unlimited, and Give Lively for Athlete Causes. Make sure you cheer on Taylor this season as she'll be playing for the GBS|CIDP Foundation International!

10/01/2025

Big news for our Australian community!

Join us on Saturday, 8 November 2025 at the Novotel Melbourne Preston for the GBS|CIDP Regional Patient Conference.

We’re honored to welcome two renowned neurologists:
🧠 Dr. Stephen Reddel – “What’s New in Research and Treatment: An Overview”
🧠 Dr. Gareth Parry – “The Role of Exercise in the Management of Fatigue Following GBS”

This one-day event will be filled with expert insights, practical resources, and community support. Don’t miss it!

Register today:

We’re headed back to Australia! ✨🌏 The GBS|CIDP Foundation International is excited to announce that we are headed back to Australia for a Regional Conference in Melbourne! Our last regional gathering in Australia was held in Sydney in 2019, and we are thrilled to return and reconnect with pa...