AlphaNet, Inc.

AlphaNet, Inc. Not-for-profit health management organization assisting individuals with Alpha-1 Antitrypsin Deficie AlphaNet has a mission.

The heart of this mission is simple — to improve the lives of individuals affected by Alpha-1 Antitrypsin Deficiency. As a not-for-profit organization that is governed by, employs and serves Alphas, AlphaNet is uniquely able to develop and offer programs and services based on a very personal understanding of how Alpha-1 affects the lives of Alphas. In keeping with this mission, AlphaNet provides a

wide range of specialized programs and services designed to meet the specific needs of the Alphas it serves.

In the 1970s, newborns with unexplained severe liver problems were added to the list of potential Alpha-1 patients. The ...
07/21/2025

In the 1970s, newborns with unexplained severe liver problems were added to the list of potential Alpha-1 patients. The diagnostic delay between the onset of symptoms of lung and liver disease and the correct test for Alpha-1 being done still averages a seven year diagnostic delay, largely due to missed opportunities to consider a rare diagnosis beyond much more common causes of lung symptoms due to asthma or COPD.

To learn more, please visit bfrg.alphanet.org or the Subscriber Portal to access the Big Fat Reference Guide (BFRG).

Learn about how obstructive sleep apnea (OSA) affects Alphas in the AlphaNet Medical Team's latest review of AlphaNet su...
07/18/2025

Learn about how obstructive sleep apnea (OSA) affects Alphas in the AlphaNet Medical Team's latest review of AlphaNet subscriber survey results in "What Have We Learned about Sleep Apnea among Alphas?" now available on the Subscriber Portal.

Visit the Subscriber Portal: https://subscriber.alphanet.org/s/story/a2SPV000001j6YX2AY/cms249

The vast majority of individuals with Alpha-1 and carriers of a single abnormal AAT gene remain undiagnosed throughout t...
07/14/2025

The vast majority of individuals with Alpha-1 and carriers of a single abnormal AAT gene remain undiagnosed throughout the world. In order to be classified as having Alpha-1, an individual must inherit at least one abnormal AAT gene. Individuals who have one abnormal AAT gene and one normal AAT gene are sometimes referred to as heterozygotes or "carriers." This distinction is important and requires that individuals learn their own AAT genetics.

To learn more, please visit bfrg.alphanet.org or the Subscriber Portal to access the Big Fat Reference Guide (BFRG).

As of 2025, the global population is estimated at over 8.1 billion, and of this population, there are approximately 100,...
07/11/2025

As of 2025, the global population is estimated at over 8.1 billion, and of this population, there are approximately 100,000 people in the U.S. alone who may have Alpha-1. If you live with Alpha-1, you know that awareness about this condition is limited. Sharing your knowledge and experiences can raise awareness, help others get diagnosed earlier, and advance the Alpha-1 community toward a cure.

Read more in "How to Educate Others About Alpha-1” on our Subscriber Portal: https://subscriber.alphanet.org/s/story/a2SPV000001XlFh2AK/cms241

The alpha-1 antitrypsin protein (AAT) is produced by your liver and helps protect your lungs from damage and irritants l...
07/08/2025

The alpha-1 antitrypsin protein (AAT) is produced by your liver and helps protect your lungs from damage and irritants like dust, fumes, and smoke. Therefore, there are many individuals with abnormal Alpha-1 tests who do not develop disease if they have lived a healthy lifestyle and never smoked.

The opposite is also true. Without enough AAT circulating in the blood, your lungs are at higher risk for disease with as few as 100 ci******es in a lifetime. You may develop COPD, particularly if you have other risk factors. Therefore, family testing is important to protect those who may not know about their risks.

To learn more, please visit bfrg.alphanet.org or the Subscriber Portal to access the Big Fat Reference Guide (BFRG).

Sunscreen is essential year-round, especially in summer. The American Academy of Dermatology estimates that nearly 1 in ...
07/07/2025

Sunscreen is essential year-round, especially in summer. The American Academy of Dermatology estimates that nearly 1 in 5 Americans will develop skin cancer in their lifetime. To protect yourself, use a broad-spectrum sunscreen with SPF 30 or higher and water resistance.

Find more tips to help you stay healthy during the warmer months in our "Summer Wellness Guide for Alphas" available on the Subscriber Portal and AlphaNet.org.

Visit the Subscriber Portal: https://subscriber.alphanet.org/s/story/a2S2E00000AHUkWUAX/cms60
Visit AlphaNet.org: https://www.alphanet.org/blog/summer-wellness-guide-for-alphas/

Today is Research Appreciation Day! Each and every day, research brings us closer to new treatments for alpha-1 antitryp...
07/05/2025

Today is Research Appreciation Day! Each and every day, research brings us closer to new treatments for alpha-1 antitrypsin deficiency and ultimately, a cure for this condition. Enrolling in the Alpha-1 Research Registry is a great way to help expedite that process. Learn more about the Registry and find out how to enroll when you visit alpha1.org/join-the-alpha-1-research-registry.

If you’re living with Alpha-1, your lungs are more vulnerable to the harmful effects of wildfire smoke. Learn how to saf...
07/04/2025

If you’re living with Alpha-1, your lungs are more vulnerable to the harmful effects of wildfire smoke. Learn how to safeguard your health against wildfire smoke in "Wildfire Smoke Safety for Alphas" now available on the Subscriber Portal.

Visit the Subscriber Portal: https://subscriber.alphanet.org/s/story/a2SPV000001hh9B2AQ/cms247

Happy Independence Day! While you're celebrating with friends and family, make sure to stay safe -- smoke from open flam...
07/04/2025

Happy Independence Day! While you're celebrating with friends and family, make sure to stay safe -- smoke from open flames and fireworks can irritate the lungs, so make sure to keep your distance, mask, or stay upwind if you're going to be around these elements! Check out our "Summer Wellness Guide for Alphas" on the Subscriber Portal or AlphaNet.org for tips on how to stay healthy throughout the warmer months.

Visit the Subscriber Portal: https://subscriber.alphanet.org/s/story/a2S2E00000AHUkWUAX/cms60
Visit AlphaNet.org: https://www.alphanet.org/blog/summer-wellness-guide-for-alphas/

To learn more, please visit bfrg.alphanet.org or the Subscriber Portal to access the Big Fat Reference Guide (BFRG). ...
07/03/2025

To learn more, please visit bfrg.alphanet.org or the Subscriber Portal to access the Big Fat Reference Guide (BFRG).

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Coral Gables, FL

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Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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