Alpha-1 Global

Alpha-1 Antitrypsin Deficiency (Alpha-1) is a rare genetic condition which may result in serious lung disease in adults and/or liver disease in children and adults. As Alpha-1 communities join forces globally, our advocacy efforts to obtain better access to care will be served worldwide. To accomplish these goals we will align closely with governments, industry, and health and research organisatio

ns in various countries. Alpha-1 Global seeks to:

Build cohesive communication between the various Alpha-1 associations and organisations. Supply up-to-date information about research and the latest Alpha-1 developments around the world. Provide access to valuable resources and educational materials in a variety of languages. Conduct educational Alpha-1 seminars online. Encourage you to actively participate in the online discussion platform, by contributing your knowledge, questions, experiences and ideas.