HDSA Western PA Chapter

02/27/2026

On the eve of Rare Disease Day, help us build unstoppable momentum.
Remember, every time you share a post or your story, you spread awareness.
Every gift, which will be matched dollar for dollar up to $15,000, helps support the advancement of research, care, and support for HD families.
Donate Now: https://give.hdsa.org/campaign/766544/donate

02/27/2026

Don't miss your chance to be a part of this! The HDSA W PA Chapter has scholarships available for this year's National convention. Made possible by a bequest from the Sandra Wessel Estate, we encourage anyone from W PA interested in attending who has been impacted by Huntington's Disease to complete an application. For more information, visit the website: https://hdsa.org/about-hdsa/annual-convention/. The application form can be completed here: https://fs22.formsite.com/hdsa/g9dbft03ww/index
Applications are due by Sunday, March 8. Applicants will be notified if they have been granted a scholarship by early April.

02/27/2026

Help us unlock a $15K match and double your impact for families affected by HD.

Don't wait for the day. Make your impact today: https://give.hdsa.org/campaign/766544/donate

Huntington’s disease is categorized as a rare, inherited neurological disease that impacts movement, cognition, and emotional health. It impacts entire families across generations.

Hope is growing. But progress depends on the work we do together.

02/26/2026

02/26/2026

HDSA advocacy leaders stormed the Hill to meet with members of Congress as part of Rare Disease Week activities. We know that federal decisions can shape regulatory pathways, influence public funding, and access to protections.

Today, we’re asking our donor community to stand with us and add your name to the Rare Disease Day and HDSA mission effort. Because philanthropy starts the momentum. Policy sustains it.

DONATE NOW and have your gift matched up to $15K: https://give.hdsa.org/campaign/766544/donate

02/25/2026

In just three days, we recognize Rare Disease Day, shining a light on the millions of individuals and families living with rare conditions. Today, HDSA Advocacy Leader and HDSA Illinois Chapter’s very own Wayne Galasek, spoke at the EveryLife Foundation Legislative Conference.

Help us turn awareness into action, give early to unlock our $15K match and continue to invest in advancing research, care, and advocacy that change lives.

Donate Now: https://give.hdsa.org/campaign/766544/donate

02/25/2026

HDSA is now accepting scholarship applications to help individuals and families attend the 41st Annual HDSA Convention in Phoenix, AZ (June 24–28, 2026).

All applications must be submitted by midnight (ET) on Sunday, March 8, 2026. Applicants will be notified of decisions by March 20, 2026. Please note: application information is confidential and reviewed only by HDSA scholarship committees.

For more information, visit:https://hdsa.org/wp-content/uploads/2026/02/scholarship-document-for-website-2.pdf

02/24/2026

HD families know that research isn’t abstract – it is deeply personal. It’s about our parents, our children, our future.

As we approach Rare Disease Day, consider making your gift early. A generous member of the HDSA family has pledged to match every donation, dollar for dollar, up to $15,000. Your early support will double the impact on families whose lives have been affected by HD.

Give Today: https://give.hdsa.org/campaign/766544/donate

02/23/2026

REGISTER FOR CONVENTION TODAY!

Join us at the 41st Annual on June 25-27, in Phoenix, Arizona!
To register, visit: https://give.hdsa.org/event/2026-hdsa-annual-convention-phoenix-az/e763798

With world-renowned presenters, incredible workshops and the latest in Research - the HDSA Convention is a can't miss experience.

Scholarships Are also Available!
For more information, visit: https://fs22.formsite.com/hdsa/g9dbft03ww/index

02/22/2026

We had a great time at the convention last year! Want to go this year? The HDSA W PA Chapter is pleased to announce that scholarships are available again for this year's National convention. Made possible by a bequest from the Sandra Wessel Estate, we encourage anyone interested in attending who has been impacted by Huntington's Disease to complete an application. For more information, visit the website: https://hdsa.org/about-hdsa/annual-convention/. The application form can be completed here: https://fs22.formsite.com/hdsa/g9dbft03ww/index
Applications are due by Sunday, March 8. Applicants will be notified if they have been granted a scholarship by early April.

02/21/2026

Rare diseases may be invisible to many, but those living with them are not.

Every voice has value. Every story makes a difference.
One community. Many voices. Stronger together.

Mark your calendar and stand with us this Rare Disease Day.
How you can participate:
• Like & Share
• Spread the word - Make sure to use the hashtag !
• Donate

Mark your calendar and stand with us this Rare Disease Day.
Click the link below and save the date:
https://www.addevent.com/event/ybyqf61m8jq9
Make your matched gift early:
https://give.hdsa.org/campaign/766544/donate