Pacific Northwest Bleeding Disorders

11/03/2025

11/03/2025

11/03/2025

BioMarin will out-license ROCTAVIAN, its gene therapy for adults with severe hemophilia A, to another company with greater hematology and gene therapy expertise.

The decision is not related to safety or effectiveness, and patients currently receiving ROCTAVIAN will continue treatment during the transition.
NBDF will continue monitoring updates on ROCTAVIAN and other emerging therapies.

🔗 Read more: https://bit.ly/3JrgMrK

11/03/2025

Join NBDF and HTRS for Who Is Left Out of Bleeding Disorders Care? Addressing Health Equity, a powerful Research Journal Club discussion on the barriers faced by women, girls, and underserved communities in bleeding disorders care.

💬 Engage with health access leaders and share your own experiences during our live Q&A.

🔗 Register now: https://bit.ly/43yV6B3

10/30/2025

Our partners at Oregon Department of Human Services recently announced that November SNAP benefits may be delayed if the federal government shutdown continues. About 757,000 Oregonians could be impacted, including children, older adults, and working families.

Oregonians impacted by these delays can visit the ODHS Food Resources webpage to find local programs and food support: https://needfood.oregon.gov

You can also call or text 2-1-1 or visit 211info.org for up-to-date local resources.

Older adults and people with disabilities can contact Aging and Disability Resource Connection of Oregon (ADRC) at 1-855-673-2372 or visit www.adrcoforegon.org to find resources.

Follow Oregon Department of Human Services for updates posted to their social media channels.

10/22/2025

Walk Wednesday - We are incredibly grateful to our Hemostasis Thrombosis Center (HTC) partners for their continued dedication and support—not just in the clinic, but out in the community as well.

Their Unite Walk team, Smells Like HEME Spirit, shows up year after year with enthusiasm, heart, and a deep commitment to the bleeding disorders community. From fundraising to walking alongside families, they go above and beyond to make sure no one walks this journey alone.

To our HTC heroes: thank you for being unwavering champions for our community—in care and in spirit. Your passion and partnership make a real difference every step of the way. 👣❤️

10/22/2025

Save The Date!! Please put it on your calendar and share it with your friends, family, and coworkers. Dinner with a purpose!! Sounds like the best noodles around. 😍