Pacific Northwest Bleeding Disorders

03/14/2026

Michael Recht, MD, PhD, MBA, has been appointed Chief Medical and Scientific Advisor to NBDF’s Pathway to Cures.

In this role, he will help evaluate breakthrough technologies with the potential to serve as curative therapies for blood and bleeding disorders.

This is another step forward in accelerating innovation for our community.

Learn more: https://bit.ly/46RvT6c

03/14/2026

03/13/2026

We keep growing...We keep, keep growing! Welcome back, Corvallis Celtic Non-Clotters, to the 2026 Unite Walk! We are thrilled to have another top team back.
🎉 The Unite Walk is more than just a walk—it’s our annual family reunion! Each year, we come together to reconnect, celebrate, and support one another while building stronger bonds within our community.

Bring your family, friends, and loved ones, and join us for a day full of connection, fun, and inspiration. Register today and be part of this special celebration!
https://secure.qgiv.com/event/pnwbd-unite/

03/12/2026

Whoo Hooo...Welcome back, Team PB&J! We are so happy to have you back! We can't wait to see what Team PB&J does this year.

So glad you guys registered in time to be part of the CVS Recruitment Campaign. Way to honor Bleeding Disorders Awareness month!

Get in on the campaign by registering your team in March to be entered in the drawing for one of ten $100 Amazon gift cards. Register Today! https://secure.qgiv.com/event/pnwbd-unite/

03/12/2026

Today we honor women around the world living with bleeding disorders — many of whom have long been underrecognized and underdiagnosed.

For far too long, there has been a myth that bleeding disorders only affect men. In reality, women who carry the hemophilia gene can also experience serious bleeding symptoms, including:

🩸 Heavy menstrual bleeding
🩸 Unexplained bruising
🩸 Frequent nosebleeds
🩸 Joint or muscle bleeds

It’s time to recognize women, listen to women, and ensure they receive the care they deserve.

03/12/2026

🩸 Hemophilia A vs. Hemophilia B — What’s the Difference?

Both are rare genetic bleeding disorders, but they involve different clotting factors.

🔹 Hemophilia A → Factor VIII deficiency
🔸 Hemophilia B → Factor IX deficiency

Key facts:
• Hemophilia A makes up 80–85% of cases
• A affects about 1 in 5,000 male births
• B affects about 1 in 30,000

Both can cause:
🩸 spontaneous bleeding
🩸 easy bruising
🩸 joint or muscle bleeds

💉 Treatment replaces the missing clotting factor, and early diagnosis makes a huge difference.

Do you have Hem A or B? Tell us in the comments.

Learn more in Bleeding Disorders 101:
https://hubs.li/Q0469NSR0

03/12/2026

03/12/2026

🩸 You Can’t Always See a Bleeding Disorder

Someone may look perfectly healthy while managing:

• Internal bleeding
• Joint damage
• Chronic pain
• Regular treatments

Bleeding disorders are often invisible, but the challenges people face every day are very real.

Invisible conditions deserve visible awareness.

That’s why Bleeding Disorders Awareness Month matters. 💙

Visit bleeding disorders 101 for all your answers: https://hubs.li/Q046t7nB0

03/12/2026

Let’s kick off Bleeding Disorders Awareness Month by signing up for a Unite for Bleeding Disorders Walk.

Join us for our fifth annual Unite for Bleeding Disorders Recruitment Campaign, in partnership with CVS Specialty Pharmacy, to help expand awareness and participation.

Visit https://www.uniteforbleedingdisorders.org to get started.

Already registered and fundraising? Amazing! Keep the momentum going and invite your friends and family to join you.

03/12/2026

Advocacy changes lives and policies.

The Advocate of the Year Award honors someone who has used their voice to protect access to care, expand opportunity, and strengthen our community.

Who’s the person showing up at statehouses, on Capitol Hill, or in their own community to make change happen?

Nominate your advocacy hero by Friday, April 17: https://bit.ly/3OJK6vQ