Team Cannon CAN

Team Cannon CAN A mom on a mission to save her bestie from a rare genetic disease called Sanfilippo Syndrome 💜

✅ ACTION ALERT: Help save kids in only 20 seconds.🧬 Children with Sanfilippo syndrome and other rare diseases don’t have...
08/04/2025

✅ ACTION ALERT: Help save kids in only 20 seconds.

🧬 Children with Sanfilippo syndrome and other rare diseases don’t have time to wait.

The FDA has rejected a promising gene therapy, despite admitting that the clinical data is strong. Now, families may have to wait a year or more while their children continue to decline. But momentum is shifting at the FDA and we have a small window to speak up.

📢 Sign this urgent letter to the FDA asking for a faster review and a meeting with families:
https://unc.az1.qualtrics.com/jfe/form/SV_0ivKzumYy787guq

Deadline: August 6

Your voice matters. Please sign and share.

This little guy finished his first week of summer school today! I am SO incredibly proud of him! Summer school is not he...
07/26/2025

This little guy finished his first week of summer school today! I am SO incredibly proud of him! Summer school is not held at his normal school, he does not have his usual bus driver, and he does not have his usual paras. Thankfully, he does have his usual teacher, so he had a familiar face 🙂 There are also only a few kids in the class, and it’s an entirely different routine than what Cannon is used to. His aide on the bus, he had in preschool, and I always tell people Cannon never forgets a face, and he certainly did not forget Miss Brandi! The biggest challenge has been getting out of bed before 8 am, because the bus comes at 8:05 - I may or may not get him dressed for school the night before 😉 Cannon eagerly jumps on the bus every day, and comes home excited to tell me about his day. He is so excited for the school year to start and I am so thankful that Cannon loves school as much as he does, and has the absolute best team supporting him. So Happy Fri YAY from Cannon! 💜

This little guy is SO excited for his first day of summer school!
07/21/2025

This little guy is SO excited for his first day of summer school!

I told Cannon it was time for bed… Cannon decided it was time to sit it the middle of the kitchen and meditate. I love t...
07/18/2025

I told Cannon it was time for bed… Cannon decided it was time to sit it the middle of the kitchen and meditate. I love this kid 💜

Cannon has used a “chewy” necklace for years - lately he’s refused his chewy and I’ve had to stop him from chewing on hi...
07/15/2025

Cannon has used a “chewy” necklace for years - lately he’s refused his chewy and I’ve had to stop him from chewing on his fingers… but now he’s taken to sucking on his thumb. His little thumb is covered in teeth marks afterwards, so hoping I can find new chewy necklaces that interest him so he will give his little fingers a break! 😢

This little guy was exhausted after jumping in his bounce house this afternoon, and he was struggling to regulate his em...
07/07/2025

This little guy was exhausted after jumping in his bounce house this afternoon, and he was struggling to regulate his emotions. Cannon’s happy place is, and always been, being outside. So we gathered his stuffies and his iPad and hung out in the driveway…. Eventually we made it to a little comfier of a place on the back porch 🙂

Keeping this little guy happy and regulated is a challenge that’s bigger some days than others, but he is absolutely worth it 💜

Happy 4th of July! Cannon is lucky enough to be able to enjoy the fireworks from the comfort of his bounce house in the ...
07/05/2025

Happy 4th of July! Cannon is lucky enough to be able to enjoy the fireworks from the comfort of his bounce house in the backyard 🙂

I was playing around with AI while I was waiting for Carsyn to get out of hockey this morning…. Now Cannon wants Sonic t...
06/24/2025

I was playing around with AI while I was waiting for Carsyn to get out of hockey this morning…. Now Cannon wants Sonic to come to his house so they can jump on the trampoline and race 😂

Our new hobby this summer is painting rocks…. Or Cannon yelling at me, telling me what to paint 🙂 His red rock is Knuckl...
06/24/2025

Our new hobby this summer is painting rocks…. Or Cannon yelling at me, telling me what to paint 🙂 His red rock is Knuckles from Sonic 🙂

Love this boy so much 💜

Happy Fathers Day to all the dads, bonus dads, and people who have stepped up to be dad…. Cannon sure loves his Daddio! ...
06/15/2025

Happy Fathers Day to all the dads, bonus dads, and people who have stepped up to be dad…. Cannon sure loves his Daddio!

I have many, many more pictures to add, and a million people to thank in order for this day to be possible, but I wanted...
06/12/2025

I have many, many more pictures to add, and a million people to thank in order for this day to be possible, but I wanted to share a few pics from Cannon’s event Sunday - he had the absolute best time. He was SO excited to see his good buddy Bryce, who moved onto the middle school last year. Bryce treats Cannon just like one of the boys, and Cannon loves him fiercely. Terry Chapman put her heart and soul into this day, we often said “if you build it, they will come” - and Cannon’s Army definitely showed up! Crown Rentals TK, Inc. was a real MVP - our Kids Zone was amazing to thanks to their generosity! If you need any rentals for grad parties, weddings, any event - they are your people! More pictures and thank yous to come, but this is the first post of a few to come 🙂

Tomorrow is the day! We are SO excited to celebrate this boy and the light he brings! Cannon’s life is a life worth savi...
06/08/2025

Tomorrow is the day! We are SO excited to celebrate this boy and the light he brings! Cannon’s life is a life worth saving 💜💜 We will be there by 11 AM setting up and happily invite any and all volunteers 🙂 Thank you to everyone who has made this day possible. There’s no Army quite like Cannon’s Army!

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Crown Point
Crown Point, IN
46307

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