Happily Ever Avery

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Happily Ever Avery

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• diagnosed with Acute Lymphoblastic Leukemia on 12/16/2020

• REMISSION on 1/24/2021

• relapsed on 4/5

• CAR-T therapy 6/29

• REMISSION on 8/2

• BMT on 10/15

Page maintained by Avery’s grandmother, “Ma.”

09/16/2025

I know, I know. It’s been a minute. 🫣

I posted a quick story this weekend and y’all filled my inbox!

I can assure you that Avery is THRIVING!

She’s growing so fast! Speech therapy is going so well for her! And she’s still eating fries. 🍟

But, we’ve slowly been able to add a few more things too, which has been very encouraging.

She’ll celebrate her 4th ReBirthday on 10/15 and then her 5th birthday just three days later! 🎈

I’m still trying to wrap my head around the fact that she is turning FIVE!

Anyways, that’s my quick update for today. I’ll try to share more soon, because she honestly has a lot going on right now.

She’s really taken off in the last 3 months!

Thanks for always cheering on our sweet girl. 💛

(Love, Ma 👵🏼)

02/20/2025

I know. I know. Long time no see. It’s been almost 6 weeks! 🫣

I’ll begin by saying that Avery is doing amazing!!

You can see here that she is getting so big. And her hair is growing long.

She’s still only drinking her from her bottle. And only formula. BUT, she’s actually doing better in feeding therapy.

We’ve been able to get other foods/drinking spouts near her mouth, which is a big step!

Even more exciting, last week after we left therapy we stopped by CFA and grabbed some waffle fries.

I asked, as we always do, if she wanted a fry and she put her hand out.

So, I handed it to her and she slowly began taking small bites!! 😱

I immediately sent video and pictures to her SLP and we all celebrated together. This was HUGE!

We also celebrated during her session that day because Avery intentionally pushed her first button on her AAC device! “GO!”

Her SLP modeled the word for about 10 minutes, and Avery was able to use it to tell her SLP to throw the ball. ☺️

Oh, yeah. Avery was given the AAC device 2 weeks ago. Today was the first day she picked it up and just pushed buttons for over 30 minutes.

She’s learning. It’s a(nother)slow and steady process.

Otherwise, Avi is singing almost every word of her songs. In both English and French!

She discovered French nursery rhymes and, sure enough, picked up the language. Her SLP isn’t sure what to think about that part.😂

She has begun to show interest in potty training, so we work on that at her pace.

Her therapist reminds us that we will just continue to “meet her where she’s at.” So that’s what we’re doing.

Now I’ll end with apologizing for taking the long break. Mentally I was not doing okay. (Reminder: (grand)Ma here) 👵🏼

I have Major Depression Disorder, Seasonal Affective Disorder, and General Anxiety Disorder. All 3 have collided over the past 2 months and it’s been a long climb back up.

My doctor doubled my meds 2 weeks ago and added a new one. I think we’re finally getting back to some sort of baseline.

All that to say, thank you all for sticking around. I do hope to post a bit more regularly. 💛

01/08/2025

First, when did she get so big?! 🥹

She’s actually looking like a full grown 4 year old nowadays.

Second, we’re doing our best to incorporate the methods her SLP uses (and teaches us) at home.

Avery is getting a lot better at touching other foods beyond her Cheerios!

In fact, she even held a Nilla Wafer this weekend.😱

This is a HUGE step for her. She normally avoids every food/drink that isn’t her formula or Cheerios.

If you missed it before, our first objective with feeding therapy is desensitizing.

One way we work on desensitizing her to food is by first introducing other foods and utensils into her space.

It’s a slow, patient process of building trust with textures, smells, and the act of eating itself.

Every step forward, no matter how small, is a victory, and we’re so proud of her progress. 💛

01/04/2025

Anyone else still in that holiday haze that doesn’t let you know what day it is?

It’s been a busy season and we’re definitely ready to get back into a “normal routine.”

Not sure how much Avery has felt from it (beyond more people and time away from home), but the rest of us felt the busyness of the holidays.

Avery mostly just spends time enjoying all of her gifts. ☺️

Happy 2025 everyone!

12/23/2024

Merry Grinchmas! 😊

It’s a family tradition for us to go see Christmas lights in our pajamas, and tonight’s the night!

These two are dressed and ready.

We have a BIG day tomorrow…

Around here it’s not Christmas Eve, it’s Riley’s (6th) birthday‼️

Our Christmas countdown first dwindles down to Ry’s birthday—and then Christmas.

We truly love celebrating them both, as long as we’re together.

We hope each of you have a great holiday week ❤️

12/16/2024

Today is “Diagnosis Day.” 🥺

Four years ago, our world was turned upside down with news that left a mark on our hearts forever.

Even now, the trauma of that day lingers. But today, we choose to focus on just how far Avery has come. 💛

From all she endured and how fiercely she fought, to the incredible progress she’s making now, we are in awe of her journey.

In fact, during her therapy session today, her SLP noticed some amazing milestones:

🗣️her receptive language has grown so much
🍎she’s getting better at letting foods into her space 😊she regulated her emotions beautifully (no anger with transitions or unexpected changes)
🧏🏻‍♀️she’s responding to her name more consistently, and—best of all—she was talking quite a bit!

Hearing so many of Avery’s words brought so much joy to her therapist and to us.

Today, while we reflect on the magnitude of that life-changing day, we’re choosing to celebrate where Avery is now: a happy, HEALTHY 4-year-old who continues to amaze us. 💛🎗️

12/10/2024

Look at our sweet, happy girl!

She’s been in one of the best moods lately.

Plus, she’s beginning it “talk” so much more. 🤗

She’s still adding to her gestalts (the phrases she uses) and directing us more with her hands.

We’re working on the feeding practices her SLP suggested, and, well, that’s still a slow process.

But, A N Y process is a big deal❗️

Hopefully it’s already a good week for y’all!

12/05/2024

Yesterday Avery had her first hour long session with her SLP.

It was supposed to start last week, but since she was sick, we had to skip. 😷

The hour session combines both her speech and feeding therapy.

And yesterday it really seemed to work out well for her.

She was able to really engage with her therapist and they made some big progress! 🙌🏼

Avery watched as her SLP put spoons in and out of her bottle, pulling them to her nose, and singing songs as they played.

It only took Avery a couple of “dunks of the spoon” to want to do the same.

At first she took the SLP’s hand and guided it to the spoon, but she eventually picked up the spoon and dropped it into the bottle. 🍼

Once she was completely engaged, the SLP began singing a song that’s motions brought the spoon to their noses.

Avery pulled away the first time, but then became very interested in having it touch her nose.

She went slow, examining the spoon closely, before allowing it to touch her nose.

Although this doesn’t sound like much to most, it was a huge step for Avery! 🤗

Our first step is to get Avery interested in food. Because her formula is one of only two “foods” she’ll eat, we’re starting with it.

And, because she won’t take it from anything but a bottle, we’re trying to get her comfortable with other means of eating.

The fact that she even held a spoon and let it get close to her face with formula on it was a big win. 🏆

As I’ve mentioned before, it’s a slow and steady process, but every little step is actually quite a big one for Avery!

Overall, the SLP felt like having the full hour allowed her and Avery to connect better and she could keep Avery engaged longer.

Oh, and speaking of connecting, Avery actually walked up to Ms SLP, put her chin atop SLP’s head, and curiously observed her as she does new things. 🧐

This is only the second time we’ve seen her do this to a person, and she ended up loving all over the last one.

So, we counted it as another win since enjoying spending time with Ms SLP will help us all in the long run.

Keep going, Avery!

12/03/2024

Messy bun. Having fun. 🤩

This poor girl had a rough week but is finally back to her self.

Two ER visits and a lot of cuddling later, Avery seems to be on the mend.

Today was the first day since last Tuesday that we really saw her, not only up and moving, but TALKING up a storm.

Avery is typically going, going, going—and talking every bit of the way.

I won’t have much to report to her SLP tomorrow since it’s been a quiet week with her, but she’s definitely making up for it today.

Can’t lie though, she lost quite a bit of weight for her little body, but with her appetite increase we hope she’ll put that back on soon enough. 🥺

For now, we’re just so thrilled to have our happy girl back!

12/01/2024

💛Grateful Season💛

As we look back over this week, our hearts are overflowing with gratitude.

We’re thankful every day for Avery’s health and the concern each of you have for her overall wellbeing.🥰

Just as important , we’re incredibly grateful for the incredible bond she shares with her sister—watching their love grow is a gift in itself.

Knowing how many challenges they faced together from the very beginning makes their relationship so special.

Ry loves her baby sister and wanted to help take care of her while she was sick.🥹

We’re also endlessly blessed by the unwavering support of our family, the joy of our friends, and this amazing community of followers who have stood by us through every step of Avery’s journey.

Your kindness and encouragement mean the world to us.💝

As we head into a busy December, we want to be sure to wish each of you a season filled with love and gratitude.

11/28/2024

The good news is that Avery hasn’t thrown up in over 24 hours.

The bad news is she still feels bad.

We haven’t seen much from her today. She just wants to rest on the couch.

She’s taken a couple naps today and isn’t much for eating. ☹️

Hopefully all of the rest she’s getting today will help her feel better tomorrow.

It’s upsetting seeing her so sad. 😞

And for those that saw our story last night about Ry 🤮, she is doing much better today.

She had a slow start to the day but is back to her self—full of energy and talking up a storm.😂

Here’s hoping Avery is feeling well tomorrow!

Address

1935 Medical District
Dallas, TX
75235

Website

https://ourhappilyeveravery.com/

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