DFW EDS and HSD Support Group

12/20/2024

As I am always on the lookout 👀 for resources that may help our members, today I found out about Taste Project ! It's a restaurant in Fort Worth (with a 2nd location opening in Arlington in the future) that is a 501c3 and operates on a pay what you can model.

"Taste Project is a 501(c)3 non-profit established simply to feed people one community at a time. One of every six Americans faces the reality that they may not be able to provide for their next meal. There are programs in place that help; however, in Tarrant County, 36 percent of this food insecure population live above the poverty level and receive no government help."

🥗🍛Their menu changes each season and is available on their website. And it's not ham & cheese sandwiches🥪, it's real restaurant fancy.

Reservations are not required, but recommended🕑. Our menu is a mix of healthy and hearty meals to accommodate the foodies in the neighborhood while also remembering this may be the only meal some of our guests eat all day.
🗓Tues-Fri Breakfast 9am-11am & Lunch 11am-2pm
Sat & Sun Brunch 9am - 2pm
Closed Mondays

How it Works
🚫💲Our menu has no prices, not because we’re fancy, but because we ask guests to pay-what-you-can. Those in need and those wanting to help are not segregated, in order to create an environment that is approachable and refreshing. Guests can do one of the following:
🪙Pay what you can afford, or
💵Pay what you would typically pay, or
💳Pay what you would typically, plus a little extra to help a neighbor in need.

So next time you or your family need a meal and things are tight go check them out. Or when you can afford to go out but can't decide where, go support them and pay a Lil extra if you can too.💸

Support staff is all volunteers. You can sign up to volunteer on their website also. Looks like they hope to open for dinner in the future when they get enough volunteers.

Taste Community Restaurant
1200 South Main Street
Fort Worth, Texas 76104

🚘Parking Information
Our facility is zoned for street parking only. All available parking is street parking. The map below can guide you to the best areas to park. The city is actively re-working parking in the area, please follow all street signs upon arrival.
(Map is on the website)

Chef’s Table (Dinner for 10) The Feed All Blog Events News 250,00 Meals Served at Taste Community Restaurant Today, October 15 2024, Taste Project announces it has officially served over 250,000 meals at Taste Community Restaurant! This milestone is particularly unique because the restaurant opera...

12/18/2024

Did you know The Ehlers-Danlos Society has an App now?! I am downloading as I post this 😊 Here's what they say..

📲 ⁠Have you downloaded our new app? We'd love to hear your thoughts!

What is the app?

📱💡⁠Our smartphone and web-based platform offers a secure and safe space for our diverse community, empowering those affected by EDS and HSD while delivering vital resources to healthcare professionals.

Key Features:

🫂Helpful Resources: Explore our curated collection of educational materials, resources, and support services.

📝Symptom Summary: Record your symptoms in our app and share your symptom summary with your care team to empower them with the information they need to help you.

💊Medication Summary: Show up to your appointments prepared with your Medication Summary so your care team can quickly review your medications and focus on your needs.

⚕️Healthcare Professional Support: Access essential information and resources developed to help healthcare professionals care for people with EDS and HSD.

🩺Diagnostic Tools: Utilize tools designed to facilitate the early detection and intervention of EDS and HSD.

🗣️Connecting Communities (coming soon): Connect with a global community of individuals, united by their experiences with EDS and HSD.

Download Today!

📲 iOS: https://apps.apple.com/us/app/the-ehlers-danlos-society/id6642710534

📲 Android: https://play.google.com/store/apps/details?id=com.ehlersdanlossociety.edsmobileapp

Already downloaded the app and have feedback? We’d love to hear from you! Take our short survey:
https://forms.monday.com/form📲 ⁠Have you downloaded our new app? We'd love to hear your thoughts!

Already downloaded the app and have feedback? We’d love to hear from you! Take our short survey:
https://forms.monday.com/forms/271fbff1920ee38eed4803e4387ebb02?r=use1s/271fbff1920ee38eed4803e4387ebb02?r=use1

12/12/2024

12/10/2024

I wanted to share with you guys that Jeannie Di Bon is offering a lifetime membership for her The Zebra Club app for a limited time. It was open to current members only but has now been opened to everyone. The cost is equivalent to about 2 years of yearly subscription so it's a really great deal! I upgraded my membership to it.

Jeannie is a wold renowned movement therapist specializing in hypermobility who has EDS herself. She created the app a few years ago and it's turned in to a whole community in addition to her wonderful videos and classes. She brings in guest speakers too. It can be used for any ability, disability, skill, or fitness level. And you do it from home which is the best part to me.

https://www.thezebra.club/

12/02/2024

You can also find lots of deals on my EDS Items list on my Storefront

Check out this list New EDS from Crystal

Shop recommended products from Crystal on www.amazon.com. Learn more about Crystal's favorite products.

11/30/2024

Use as an incentive to take control of your bladder health! View our Bladder Control infographic for fast facts and info about bladder health, including tips of prevention and common FAQs:https://www.augs.org/assets/1/6/Bladder_Health_Month_Infographic_1.pdf

11/21/2024

Did you know? Incontinence is NOT a normal part of aging! Talk to your doc about your to find a to help! Together, we can surrounding bladder control issues!
https://www.voicesforpfd.org/bladder-control/

11/15/2024

Don’t let bladder control issues interrupt your everyday routine or affect your self-esteem. Together, we can help improve bladder health and spread awareness during .
Experiencing symptoms of bladder issues? Learn more: http://bit.ly/2da2TJh

11/12/2024

Common of Include:
; ; despite eating enough; ; ; ; ; &/or tingling/pain/numbness in the hands/feet.

https://diabetes.org/about-diabetes/warning-signs-symptoms

11/05/2024

Happy Election Day!

THINGS TO KNOW FOR VOTING TODAY. KNOW YOUR OPTIONS AND YOUR RIGHTS

(Reminder, disabled does not mean being on disability, you do not have to be on disability or show any proof).

This info is for TX but much will be applicable elsewhere. Check your local laws.

A lot of us can skip the line. You just have to ask! Or if the line is long and there is no one to ask around, walk up to the head of the line. It's OK, I promise. Yes, I've done it. It's literally the law for us who are disabled. This is for ALL voting locations in Texas.

There is also curbside voting. Check that you're going to a location which offers curbside voting. There will be signage in the parking lot and an area designated for curbside. Usually there is a sign with a # to call and they will come out with the machine. Today there may be a line for curbside, at least you get to wait in your car!

Every polling location is required to have accessible voting machines for federal elections. This equipment can accommodate no vision, low vision, no hearing, low hearing, limited manual dexterity, limited reach, limited strength, no mobility, low mobility, or any combination of the foregoing (except the combination of no hearing and no vision) to vote directly on the system or assist them in marking the paper ballot. Depending on the type of system, voters with disabilities may use headphones or other assistive devices to help them vote independently and secretly. If using the accessible machine will help you or is your preference don't be afraid to ask for it.

All Polling Places in Texas Must be Accessible
The polling place will meet strict accessibility standards, including: ground floor entered from street or an elevator with doors that open at least 36 inches-Doors, entrances, and exits at least 32 inches wide-Any curb next to the main entrance must have curb-cuts or temporary non-slip ramps-
Stairs necessary to enter or leave the polling place must have handrails on each side and a non-slip ramp-Removal of all barriers such as gravel, automatically closing gates, closed doors without lever-type handles, or any other barrier that impedes the path of a person with physical disabilities to the voting station.
IN PTHER WORDS STAIRS CANNOT BE REQUIRED TO ENTER THERE HAS TO AT LEAST BE A RAMP. I KNOW THIS WAS A CONCERN I SAW PREVIOUSLY

Voters May Receive Assistance at the Polls
Voters may be assisted by:
Any person the voter chooses who is not an election worker;
Two election workers on Election Day
(So your spouse/partner/caretaker can help you in the voting booth or poll workers will if you prefer)

Identificatiin Required, bring one of the following
acceptable forms of photo ID:
Texas Driver License issued by the Texas Department of Public Safety (DPS)
Texas Election Identification Certificate issued by DPS
Texas Personal Identification Card issued by DPS
Texas Handgun License issued by DPS
United States Military Identification Card containing the person’s photograph
United States Citizenship Certificate containing the person’s photograph
United States Passport (book or card)

Cell Phones and Other Devices
Under Texas law, persons are not allowed to use wireless communications devices within 100 feet of voting stations. Additionally, persons are not allowed to use mechanical or electronic devices to record sound or images within 100 feet of the voting stations.

Devices that should not be used in the polling place include:
Cell phones, Cameras, Tablets, Laptops, Sound recorders, Any other device that may communicate wirelessly, or be used to record sound or images.
**But you ARE allowed to take a sample ballot with you that you have pre filled in with your selections and I highly recommend this. You can get your sample ballot here https://www.vote411.org/ballot

Information mostly came from and more can be found at https://www.votetexas.gov/mobile/voting/voting-in-person.htm

We have options! Don't let your physical condition keep you from voting

11/05/2024

Learn the 7 categories of & take a quick and easy bladder control quiz to determine if you’re experiencing leakage:
https://www.voicesforpfd.org/bladder-control/

11/04/2024

Research Survey Opportunity

Do you have diagnosed by a physician? Take the Big POTS Survey, a collaboration between Dysautonomia International, Vanderbilt University & University of Calgary: bit.ly/bigpotssurvey

Help us document the experiences of people living with POTS! This survey is open to people with POTS living in any country. It is open to all ages, but if you are 17 and under, please have a parent/guardian take the survey with you.

Please do not take this survey again if you have already participated in the Big POTS Survey. If you are not sure if you have taken this survey already, you can email [email protected].

Do you have diagnosed by a physician? Take the Big POTS Survey, a collaboration between Dysautonomia International, Vanderbilt University & University of Calgary: bit.ly/bigpotssurvey

Help us document the experiences of people living with POTS! This survey is open to people with POTS living in any country. It is open to all ages, but if you are 17 and under, please have a parent/guardian take the survey with you.

Please do not take this survey again if you have already participated in the Big POTS Survey. If you are not sure if you have taken this survey already, you can email [email protected].

10/28/2024

United States law gives people with disabilities the right to get help when voting. Go to the polls with support and vote with confidence. ”

Follow National Coalition on Accessible Voting for more information.

Image: Need a helping hand when you vote? You have the right to one. Graphic: Two hands hold a ballot box with a check mark. National Coalition on Accessible Voting Logo: NCAV.

10/28/2024

REMINDER!
Group Logo Gear is back! This time we have more than just t-shirts too. And on the shirts there are new color options. 👕 🎉

I have the price the same on the Premium T and the Regular T. They have different cuts among other things and while cost may be different on my side I feel price should be the same from an Accessibility side.

☆Premium T-Shirt - Mens or Women's cut option
https://amzn.to/3Nv5Ebr

☆Regular T-Shirt - Mens, Mens Big & Tall, Women's, & Women's Plus options
https://amzn.to/4dIDN2j

☆Womens V-Neck T-Shirt https://amzn.to/402BnZ1

☆Tank Top Mens & Women's Cut
https://amzn.to/4dJSamY

☆Raglan Tee Mens & Women's Cut
https://amzn.to/3Yjrl4G

☆Long sleeve T-shirt Unisex
https://amzn.to/3U5BShn

☆Sweatshirt Unisex
https://amzn.to/4f4axUD

☆Pullover Hoodie with Logo on FRONT Unisex
https://amzn.to/3A97kEu

☆Pullover Hoodie with Logo on BACK Unisex
https://amzn.to/3YmHwhH

☆Zip Hoodie with Logo on FRONT Unisex
https://amzn.to/4087zKV

☆Zip Hoodie with Logo on BACK Unisex
https://amzn.to/4eDB6QX

☆Tote Bag
https://amzn.to/3UbeT4r

☆Stainless Steel Insulated Tumbler 20 oz
https://amzn.to/3YjQUCy

☆Stainless Steel Insulated Tumbler White 20 oz
https://amzn.to/4dKgFQX

☆PopSockets Adhesive PopGrip
https://amzn.to/482CjyN

Design is our group Logo. Profits from sales go to helping Support the group and things like prizes for giveaways, emergency meds and rides provided for group members and other support provided by admin team.

☆You can also view some of our other designs like "Out of Spoons", "Professional Patient", "Exoert Patient", "I'm Part of the Dazzle" and those items here
https://www.amazon.com/s?rh=n%3A7141123011%2Cp_4%3ADazzle+Gear&ref=bl_sl_s_ap_web_7141123011

10/25/2024

is an umbrella that includes: neurocardiogenic syncope, POTS, inappropriate sinus tachycardia, OH, autoimmune autonomic ganglionopathy, PAF, multiple system atrophy & many other autonomic disorders. www.dysautonomiainternational.org/whatisdys

10/21/2024

Whether you’ve lived with for years or recently been diagnosed with a , such as or , we’re .

https://mastocytosis-mcas.org/mastocytosis-mast-cell-diseases-awareness-day-2024

10/17/2024

What Repeat COVID Infections Do to Your Body, According to Science

https://www.self.com/story/covid-reinfection-health-effects?fbclid=IwY2xjawF4iPJleHRuA2FlbQIxMQABHWjHxvrNlc-6I3iZ2-1hXsNDxmL5TTo-1FHFBF_r80qg53xQdjEOUB61qw_aem_2NvlqRSI3umzap2LSL5ygQ