Bertolotti Syndrome Warriors Living With Chronic Pain

03/12/2024

There is significant concern about Chronic Fatigue Syndrome, also known as CFS. In fact, there are criteria patients must meet in order to be diagnosed with Chronic Fatigue Syndrome. Receiving the diagnosis may be difficult for some patients because the guidelines for diagnosing are very specific. The fatigue must have been present at least six consecutive months and the corresponding symptoms must have developed after the fatigue. A clear definition of Chronic Fatigue Syndrome, its symptoms, and treatment options will help sufferers get a clearer understanding of the syndrome.

What is Chronic Fatigue?
The basic definition of Chronic Fatigue Syndrome does not make sufferers feel much better. The syndrome is unexplained and is marked by weakness, fatigue, muscle pain, lethargy, trouble sleeping, and even fever and swollen lymph nodes. There is no known cause for the fatigue that is present in an individual that has no relation to over-exertion and is not rectified by rest.

Symptoms
Some of the symptoms associated with Chronic Fatigue Syndrome have been discussed. However, there is a very long list. There are a variety of symptoms that patients are very aware of and then there are other symptoms only doctors seem to notice. Regardless, when the symptoms are present for a period of time for no apparent cause and seem to have no remedy then Chronic Fatigue Syndrome is a frequent diagnosis.

Some of the frequent symptoms of Chronic Fatigue Syndrome include:

- Muscle Aches
- Persistent Fatigue
- Intermittent Fatigue
- Depression
- Tiredness
- Headache
- Swollen Lymph nodes
- Depression
- Memory Loss
- Weakness
- Difficulty Concentrating
- Achy Joints

Frequently Chronic Fatigue Syndrome begins during periods when individuals have been sick, under a tremendous amount of stress, or for no apparent reason at all. Many individuals have noted that after bouts with the flu, mono, a cold, bronchitis, hepatitis, and other similar illnesses CFS arises. Unfortunately, Chronic Fatigue Syndrome persists for months, sometimes coming and going and other times constantly affecting the patient. Other illnesses begin to clear up after a few days or weeks, but Chronic Fatigue Syndrome sticks around with no clear cause.

Diagnosing Chronic Fatigue
Doctors find it very difficult to diagnose Chronic Fatigue Syndrome. The reason why is because so many of its symptoms are symptoms of other illnesses. This is why many doctors like to see patients with the same symptoms that began after the fatigue for at least six months before giving a diagnosis. Obviously, sufferers of Chronic Fatigue Syndrome find the lack of an early diagnosis difficult to bear on top of their symptoms. However, doctors like to rule out diseases like Lupus and Multiple Sclerosis, as well as other diseases, before diagnosing Chronic Fatigue.

Additionally, researchers and doctors are becoming more aware of Chronic Fatigue Syndrome and are more likely to make an earlier diagnosis based on fewer symptoms than ever before. That is not to say that Chronic Fatigue Syndrome is easy to diagnose, because it is not. However increased awareness and new definitions are helping doctors and patients of Chronic Fatigue each and every day.

Treatment Options
The treatment options for Chronic Fatigue Syndrome are varied and include alternative as well as prescription alternatives.
Treatment
Some of the alternative care management options for Chronic Fatigue Syndrome include avoiding stress and undertaking light exercise. Other treatment options that work for some individuals include massage, aquatic therapy, chiropractic therapy, yoga, self hypnosis, tai chi, and even acupuncture. Psychotherapy has also proven helpful to sufferers of Chronic Fatigue Syndrome because it helps sufferers learn to cope with their symptoms.

Prescription treatment options for Chronic Fatigue Syndrome have not been approved by the FDA. There are however other prescription medications that are used to treat the symptoms presented with Chronic Fatigue. Frequently, the primary use of the medicine is secondary and its side effects are what benefit Chronic Fatigue sufferers. Medicines like antifungals, antidepressants, antivirals, cardiac drugs, antihistamines, immunoglobulins, corticoids, anti-inflammatories, and anti-convulsants among others are frequently prescribed to CFS sufferers.

Do You Have CFS?

If you are worried you have Chronic Fatigue Syndrome or have some of the above stated symptoms for months on end then you should make an appointment with your physician. It is a good idea to keep a journal of your symptoms, when they began, and if new ones appear. This will help your doctor make the proper diagnosis and help receive some relief from your symptoms sooner.

01/18/2024

UPDATES....PLUS, GREAT VIDEO FOR INFLAMMATION TIP USING BAKING SODA & APPLE CIDER VINEGAR

Hey guys!! Sending love and good vibes to all of you

I know....I've been MIA.

TOO MUCH AND TOO OVERWHELMED at the moment.

Took a DNA Test and Genetic Testing with a separate Pharmaceutical Test
...yes, I am "100% that b*tch even when I'm crying crazy"

***If you get that reference then at least I put a smile on your faces 🙂

My testing revealed things I suspected. Things I knew for fact. And things and results that totally hit me from left field.

Still processing....

Still fighting....

Still trying to wrap my head around all of it....I thought BS & MS with a failing ACDF was bad...but my battle and alert just got kicked up to level RED!

If you have unexplained symptoms and your docs aren't DOING enough or LOOKING enough DO THE TESTING!

Then repeat the testing with a different company and different lab.

Don't expect your current docs to listen...most have this crazy Syndrome/Complex called....

Wait for it.....

"Know it ALL Syndrome"

We all know this particular "complex" well....don't we?

DON'T WAIT!

Although I'm struggling with the results, I now have definitive proof of things I've been requesting, researched, and thought all along.

These spefic diseases and defects have overlapping symptoms.

My worst enemy is Chronic Fatigue & Vomiting daily with constant inflammation and terminal illness pain that has no rhyme or reason besides being a complete nightmare at 39yo.

All of these symptoms and new diagnosis are messing with my Bertolotti’s, MS, and depression severely.

But I digress....I'm fighting.

I am trying.

"If we are not our BEST ADVOCATE no one else will be....."

I know it's something I say frequently, but it's the truth.

Hope your New Year is off to a start...not good or bad because if we label things with all that we go through we may get discouraged if the outcome is not what we'd like or want.....(speaking from personal experience).










Bertolotti Syndrome Warriors Living With Chronic Pain ❤️🙌🏽💪🏽👋🏼

252.4K likes, 2067 comments. “How to lighten your skin with baking soda and other benefits.😱😱 Movie”

12/08/2023

Okay Y'all....I never in a million years since my accident and having my TBI (traumatic brain injury) & all my other health issues as well as my life being turned upside down in the mix that I could do this....

BUT I DID!!!

God is GOOD! When doors start closing he provided me open ones! AMEN!

Not only does this benefit myself but leaving a legacy for Faithen, both Financially and showing her I persevere when my back is against a wall and now being a single mom.

Everything that could've went wrong during my exam did! Everything. I cried the entire time and still passed!

I'm so grateful and proud of myself. I'm doing the Ticket to Work so I can find myself again and reprogram my mind that just because I am disabled......I want to and am ABLE to do anything!

❤🥰😇🙌👌✌️👏

12/07/2023

I didn't know if I wanted to post this video....I don't like how I look or sound on camera...

Silly I know...

Then I thought it's not about me, it's for all of us who are suffering as we find our way through this debilitating defect and it's side effects....

I'm not the best on canera, and it's longer than I wanted it to be... But at least a few times a week I will try to do this more with good info and updates.

The main message is "we/you have to be your best Advocate, your only Advocate for yourself."

Comment or ask questions. I'd really like that guys...

To: One day at a time....with Love ❤️

11/14/2023

I have an appointment today with a new neurosurgeon so I'm doing research to present while at the appointment.

I had a pain management consult at and the doctor looked at me like I was speaking a foreign language and recommended a program that includes PT which makes my BS flare.

I've tried PT several times and no results came only pain and flare-ups which he would have seen if reading my chart...or the info I provided pre-appointment or read what my other doctors at UT Southwestern Medical Center have put in my chart.

This happens a lot with people like us because our condition is so rare and effects out entire system. and the list goes on and on for us unfortunately.

This article and many, many more I found and will share as I read them so no one gets false hope for diagnosis and treatment of BS.

This article offers insight about treatment of BS....

vs for BS



PS- someone recently told me this is my calling, sharing with Bertolotti Syndrome Warriors Living With Chronic Pain information and doing what I do for others who can't or don't have access to material that can help. Living with this disease is very difficult...trust me for those who just got diagnosed and are in pain, I know. To that person THANK YOU 🩵😘 you reminded me that this and everything I do has purpose and strength 🩶 best sister a girl like me can have. Love you bunches 🤍

Patients with Bertolotti syndrome who underwent surgical fusion across the transitional lumbosacral vertebrae had a higher rate of long-term pain improvement compared to patients who had resection of the abnormal pseudoarticulation.

08/26/2023

Chronic pain can be incredibly difficult to manage. It can be debilitating and interfere with your daily activities. Fortunately, there are a variety of strategies that can help you better manage your chronic pain.

1. Exercise: Exercise is a great way to help manage chronic pain. Regular physical activity releases endorphins, which can help reduce pain. Light stretching, walking, swimming, and yoga are all good forms of exercise to try.

2. Mind-body techniques: There are a variety of mind-body techniques that can help reduce pain. Examples include deep breathing, visualization, progressive muscle relaxation, and mindfulness meditation.

3. Physical Therapy: Seeing a physical therapist is a great way to help manage chronic pain. A physical therapist can help you develop a personalized exercise program to help reduce pain.

4. Acupuncture: Acupuncture is a traditional Chinese medicine technique that involves inserting thin needles into the skin. It is believed to help improve circulation and reduce pain.

5. Massage: Massage can help reduce muscle tension, which can help relieve pain. It can also help reduce stress and improve your mood.

6. Heat and Cold: Applying heat or cold to the affected area can help reduce pain. Heat can help relax muscles, while cold can help reduce inflammation.

7. Dietary Changes: Eating a healthy diet can help reduce inflammation and improve overall health. A diet rich in fruits, vegetables, whole grains, and healthy fats is recommended.

8. Supplements: Certain supplements, such as fish oil, turmeric, and ginger, can help reduce inflammation and relieve pain. It is important to speak to your doctor before taking any supplements.

9. Sleep: Getting enough sleep is essential for managing chronic pain. Aim to get at least 7 to 8 hours of sleep per night.

By making small lifestyle changes and trying different strategies, you can help manage your chronic pain. It is important to speak to your doctor about any questions or concerns you might have.

As always all of you are are more than welcome to contact me. My actual name is Courtenay Cisneros on insta

08/22/2023

Not fully understanding every aspect of this article after the first time through, but what I can gather is Medicare is the driving force for what is adopted or covered by Medicaid but also private insurers as well.

Comments always welcomed and encouraged....

Pain drives medical seeking, opioid crisis, and medical bias; unaddressed barriers hinder non-opioid relief adoption, calling for policy change.