Bronchiectasis News Today is the web's only resource for the latest in news, research and current events for Bronchiectasis
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10/25/2019
New Post: Can I Be a Morning Person with Endometriosis? https://buff.ly/363MN0g
Can I Be a Morning Person with Endometriosis? - Endometriosis News Columnist Jessica Duffin has struggled for years with getting out of bed in the morning. Today, she is slowly training her body to adjust to her fatigue.
07/25/2019
New Post: P. aeruginosa Adapt in Lungs to Make Mucus Harder to Clear, Study Finds https://buff.ly/2Gty7fQ
Common Bacteria in Bronchiectasis Adapt to Make Mucus Harder to Clear from Lungs, Study Finds A common source of lung infection, Pseudomonas aeruginosa can take on a mucoid state in the lungs to become stiffer and harder to clear, a study finds.
07/18/2019
New Post: European Initiative Targets Diagnosis, Treatment of Rare Diseases https://buff.ly/2O1Wk3f
European Initiative Targets Diagnosis, Treatment of Rare Diseases Learn more about the EU's €101 million initiative to speed the diagnosis of rare diseases and accelerate development of therapies in 35 countries.
07/18/2019
New Post: Life Quality in Bronchiectasis Patients Greatly Affected by Activity Levels, Mental Health and Inflammation, Study Says https://buff.ly/2LWzBmk
Life Quality in Bronchiectasis Patients Greatly Affected by Activity Levels, Mental Health and Inflammation, Study Says A life quality study found patients did poorly if their physical activity and leg strength was limited, and inflammation and anxiety or depression evident.
07/11/2019
New Post: SmartVest Treatment Reduces Exacerbations, Antibiotic Use, and Stabilizes Lung Function, Study Shows https://buff.ly/2NOZoPX
SmartVest Treatment Reduces Exacerbations in Bronchiectasis, Study Shows Treatment with SmartVest reduces exacerbations, hospitalizations, and antibiotic use in bronchiectasis, and stabilizes lung function, a study shows.
07/04/2019
New Post: World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients https://buff.ly/2NvSLlu
World's First Alport Stamp Is Macedonian Mom's Latest Win Over Rare Disease Parent and rare disease activist Gordana Loleska got her native North Macedonia to issue the world's first Alport syndrome postage stamp.
06/27/2019
New Post: Preclinical Data Supports Development of Inhaled Form of Murepavadin to Fight P. Aeruginosa Infections https://buff.ly/31TkQGu
Preclinical Data Shows Potential of Murepavadin Against P. Aeruginosa Preclinical data suggest that the experimental antibiotic murepavadin is both safe and effective at fighting restistant bacterial lung infections.
06/26/2019
New Post: NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala https://buff.ly/2J8mQlF
NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala Read about the individuals, nonprofit groups and pharmaceutical companies honored June 22 at NORD's Rare Impact Awards gala in Houston.
06/21/2019
New Post: Eurordis Unveils Integrated-care Initiative for Rare Disease Patients https://buff.ly/2FowcbI
Eurordis Unveils Integrated-care Initiative for Rare Disease Patients Eurordis, Europe's allance for rare disease organizations, unveils an initiative aimed at achieving integrated care for patients and caregivers by 2030.
06/20/2019
New Post: Bronchiectasis Patients Unlikely to Transmit Bacteria to Others Through Coughing, Study Suggests https://buff.ly/2WTQqoT
Bronchiectasis Patients' Coughing Unlikely to Spread Bacteria, Study Says Although bronchiectasis and COPD patients release bacteria during coughing, this process does not appear to spread infection to others, a study shows.
06/17/2019
New Post: ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy https://buff.ly/2XVCRBI
'Rare Barometer' Program Helps Eurordis Shape EU Rare Disease Policy Eurordis, the European alliance of rare disease organizations, uses a 10,000-member patient and caregiver database to conduct surveys on public policy.
06/13/2019
New Post: Asthma a Common Cause, Risk Factor for Bronchiectasis in Finland, Registry Study Reveals https://buff.ly/2IJsN8v
Asthma a Common Cause, Risk for Bronchiectasis in Finland, Study Finds Asthma is a common cause and complication of bronchiectasis, occurring in about one quarter of the patients who live in Helsinki, Finland, a study found.
06/06/2019
New Post: NEATstik Shows Potential as Rapid Test for Chest Infection and Risk of Exacerbations in Bronchiectasis https://buff.ly/2QPK2Zd
NEATstik Shows Potential as Rapid Test for Infections in Bronchiectasis NEATstik showed potential as a quick method for detecting bronchiectasis severity, presence of airway infections, and risk of future disease exacerbations.
06/05/2019
New Post: Antibiotics May Improve Quality of Life of Bronchiectasis Patients with High Bacterial Load, Study Suggests https://buff.ly/2WgLlX7
In Bronchiectasis, Quality of Life May Improve with Antibiotics, Study Says Inhaled antibiotics may improve the quality of life of bronchiectasis patients, especially when they have a high bacterial load, a study suggests.
06/05/2019
New Post: Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries https://buff.ly/2wmejWb
RaDaR Aims to Help Patient Groups Develop Rare Disease Registries Learn more about RaDaR, the new web-based platform by NCATS that helps patient advocacy groups with limited resources build their own disease registries.
06/04/2019
New Post: Lung Bacteria Composition Remains Stable, May Correlate with Lung Function in nCFB, Study Says https://buff.ly/2JyZiZT
Bacteria Composition May Correlate with Lung Function in nCFB, Study Shows The composition of bacteria living inside the lungs of people with non-cystic fibrosis bronchiectasis may correlate with lung function, a study says.
05/17/2019
New Post: Treatment Algorithm Centered on Chest Physiotherapy May Minimize Lung Function Decline, Study Says https://buff.ly/2W1qNkL
In Bronchiectasis, Chest Physiotherapy May Help Stabilize Lung Function, Study Shows Treatment using high-frequency chest wall oscillation (HFCWO) therapy may help minimize lung function decline in people with bronchiectasis, a study shows.
05/15/2019
New Post: Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns https://buff.ly/2Hp732p
Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns The healthcare system fails millions of Americans due to the "invisible" cost of treating rare diseases, a National Institutes of Health official says.
05/09/2019
New Post: N-acetylcysteine Potentially Beneficial for Bronchiectasis Patients, Trial Shows https://buff.ly/2PUp2jD
N-acetylcysteine Can Be Beneficial for Bronchiectasis Patients, Trial Finds Mucus-dissolving and anti-inflammatory N-acetylcysteine reduces exacerbation and increases quality of life of patients with bronchiectasis, study shows.
05/02/2019
New Post: Incidence of Non-CF Bronchiectasis is Rising in Germany, Study Reports https://buff.ly/2WkgMfh
Incidence of Non-CF Bronchiectasis Rising in Germany, Study Says The incidence of non-cystic fibrosis bronchiectasis is increasing in Germany, so a better understanding of its economic burden is needed, a study suggests.
04/26/2019
New Post: Nonprofit Group Works to Raise Rare Disease Awareness in India https://buff.ly/2GEIYUK
Nonprofit Group Works to Raise Rare Disease Awareness in India The mission of the Organization for Rare Diseases India is to raise awareness in the rapidly growing country and connect patients with U.S. advocacy groups.
04/25/2019
New Post: Bronchiectasis and COPD Patients in US Face High Financial Burden, Study Says https://buff.ly/2UTV70J
Bronchiectasis, COPD Patients in US Face High Financial Burden, Study Says U.S. patients with COPD and bronchiectasis face a high financial burden linked to healthcare costs and expenditures, a study reports.
04/18/2019
New Post: Nucala Can Help Manage Symptoms of Severe Eosinophilic Asthma with Bronchiectasis, Pilot Study Shows https://buff.ly/2UrNc5Q
Eosinophilic Asthma with Bronchiectasis Eased With Nucala, Study Says Italian researchers have shown that add-on treatment with Nucala can help control the symptoms of severe eosinophilic asthma with bronchiectasis.
04/11/2019
New Post: Common Allergens Linked to Poorer Lung Function in Non-CF Bronchiectasis https://buff.ly/2KCGdHk
High Rates of Allergic Sensitization in Non-CF Bronchiectasis Patients Read more about sensitization to airborne allergens among patients with non-CF bronchiectasis from the findings of a new international research study.
04/04/2019
New Post: Vitamin D Deficiency Can Predict Severity of Bronchiectasis, Study Says https://buff.ly/2Id8rpt
Bronchiectasis Severity Linked to Vitamin D Deficiency, Study Says Vitamin D deficiency may help predict the clinical and radiological severity of bronchiectasis, a study suggests.
03/28/2019
New Post: More than Half of Bronchiectasis Patients Have Chronic Rhinosinusitis, Study Finds https://buff.ly/2V1sA5v
Most Bronchiectasis Patients Have Chronic Rhinosinusitis, Study Finds Chronic rhinosinusitis is prevalent among bronchiectasis patients, and is linked to greater disease severity, and poorer quality of life, a study finds.
03/21/2019
New Post: Bronchiectasis Care is Expensive, But Hospitalizations Significantly Add to Cost, Study Shows https://buff.ly/2HzxoMm
Bronchiectasis Care is Expensive, But Hospitalizations Swell Costs Hospitalization increases the high costs of bronchiectasis care and management, especially in patients who experience flare-ups, a review study shows.
03/15/2019
New Post: Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn https://buff.ly/2TIALqD
Brexit Could Have Effects for UK Rare Disease Patients, Experts Warn Learn more about why British patient advocacy organizations worry about the impact of Brexit on U.K. residents with rare diseases.
03/14/2019
New Post: New Antibiotic Formulation Better at Controlling Infections in Bronchiectasis https://buff.ly/2FbMdSS
New Antibiotic Formulation Better at Controlling Infection in Bronchiectasis Read about the advantages of a new formulation of antibiotics using nanoparticles, called nanoplex, as a delivery vehicle.
03/11/2019
New Post: Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist https://buff.ly/2u1WXge
Israeli Bioethicist: Moral Dilemmas Complicate Treatment of Rare Diseases Read about the difficult moral dilemmas that involve treating rare diseases, according to leading Jewish bioethicist Avraham Steinberg, MD.
03/07/2019
New Post: Case Report Illustrates Risk of Bronchiectasis in People Not Vaccinated Against Measles https://buff.ly/2UoXJPT
Bronchiectasis a Risk in People Not Vaccinated Against Measles, Report Says The case of a man who developed bronchiectasis after having measles as a child draws attention to disease risk due to fewer vaccinations, a study says.
03/06/2019
New Post: NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research https://buff.ly/2IWgWr7
NIH Rare Disease Day Highlights Networks Advancing Array of Research Read about Rare Disease Day 2019 at the National Institutes of Health, whose focus was on the 22 research networks investigating a range of rare diseases.
02/28/2019
New Post: FDA Maintains Refusal of Aradigm’s Bronchiectasis Bacteria Therapy and Recommends Further Study https://buff.ly/2Xn7Er4
Non-CF Bronchiectasis Therapy Apulmiq Needs Further Study, FDA Says The U.S. FDA has stood by its initial refusal to approve Apulmiq for treating non-CF bronchiectasis associated with chronic P. aeruginosa lung infection.
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