Hope for Savi

Hope for Savi My name is Cevanah (pronounced Savannah) but people call me Savi for short. I am the only one in my family who has it. Here is my story...

I was diagnosed with Neurofibromatosis, Type 1, a genetic condition at nine months old.

12/21/2025
Fly high sweet girl!! 💛 😭 Abby passed way to young. She was a beautiful young soul with a personality that lit up the ro...
12/18/2025

Fly high sweet girl!! 💛 😭 Abby passed way to young. She was a beautiful young soul with a personality that lit up the room. I was very lucky to have met her and her family several years ago. My heart goes out to her family. If you can help, please follow the link below!

In Loving Memory of 9-Year-Old Abigail Bergman After a long and c… Shallon Rempfher needs your support for Support for Abigail’s Family in Their Grief

Love this!
12/18/2025

Love this!

Drew Sinclair, an equipment manager for the Washington Commanders, seized the opportunity on Sunday, November 30, to raise awareness for a cause close to his heart: neurofibromatosis (NF). Diagnosed with NF Type 1 at a young age, Drew is determined to use his position with the NFL to spotlight this genetic condition, which affects members of his family and 4 million people worldwide.

As part of the Commander's annual initiative that allows players and staff to wear customized footwear representing causes they are passionate about, Drew proudly wore shoes adorned with the NF Network's logo during the game. “My whole family has NF, and I would love to represent the NF Network on the NFL sidelines,” Drewshared. He collaborated with the NF Network to design these special shoes.

Read more: https://www.nfnetwork.org/pages-news/nfl-equipment-manager-raises-awareness-for-neurofibromatosis/?lang=en

This week has been an emotional one for me. Two beautiful, full of light young ladies became angels in Heaven!  Out of r...
12/14/2025

This week has been an emotional one for me. Two beautiful, full of light young ladies became angels in Heaven! Out of respect to the first kiddo who left us Tuesday morning, I will not mention her name until it had been released by her parents. The other sweet child, Brielle, left this world Thursday. I have been following Brielle for awhile now and the other kiddo, I had the pleasure of meeting a few years ago. For both of these young ladies; to say they fought hard is an understatement!! I feel for both of these families knowing what they have been through and for what lies ahead. My heart is broken for each of these families. The only comfort I have to share is that our sweet Savi has made two new friends this week. 😭 It is so difficult when you are left here on earth to navigate a now different and difficult life without your child. Please say a few extra prayers for these families who are going through the unthinkable. 🙏💛😇

Brielle Nicole Bird (February 1, 2016 - December 11th, 2025)

You are the miracle! Your purpose on earth was fulfilled, and it was the most sacred privilege to es**rt you home. You brought people to Christ, you showed the world that God is good, and your light shined to all corners of the earth. We love you for eternity!

We will look for you in all the details, especially the dragonfly’s. We will never stop sharing your story. Please come visit us often. Your bedroom door is always open, and we’ll leave the playroom light on.

You did it Brielle, you did everything with grace! I can only imagine the incredible reunion, and I’m so jealous; but I know you ran straight to Jesus. 😭

Thank you for being an inspiration to so many.

12/05/2025

Happy Thursday 🩷

Happy 12th Birthday to our Savi girl!  Miss you more than words can say! Wonder what your likes & dislikes would be. Wha...
10/28/2025

Happy 12th Birthday to our Savi girl! Miss you more than words can say! Wonder what your likes & dislikes would be. What would you be for Halloween? What would you have wanted to do for your birthday - skate party? Sleep over? 🤔 Would you be playing sports like Cody or a musical instrument? Or maybe horses like Cierra? Would you be as tall as dad or short like me? We will remember the sweet, kind and loveable girl we once had here with us. Smiling and laughing. Happy Birthday in Heaven, sweet pea! Dave Williams Cody Williams Cierra Williams Michelle Klem Williams

I have been following Brie and the Bird family for weeks now and they need a miracle! Praying for sweet Brie and the Bir...
10/12/2025

I have been following Brie and the Bird family for weeks now and they need a miracle! Praying for sweet Brie and the Bird family! She is an amazing little girl! 🎗❤️🙏

09/04/2025
Ten years ago, your battle with brain cancer started. Five years later you were gone. Life has not been the same since. ...
08/26/2025

Ten years ago, your battle with brain cancer started. Five years later you were gone. Life has not been the same since. We should be getting ready to start a new school year with back to school shopping and hair cuts, excitement of new friends and teachers , and taking the last camping trip of the summer with smores and boat rides. The fun we use to have has slipped away, just like you did. Why couldn't we have been "normal"? Then we would still have you and our family would be complete again. 😭

✨️Today is Glioblastoma Awareness Day!✨️ Remembering our girl and the battle she had against this ugly beast ! 💛
07/16/2025

✨️Today is Glioblastoma Awareness Day!✨️ Remembering our girl and the battle she had against this ugly beast ! 💛

Happy 4th of July, especially to our sweet girl in Heaven! Miss you tons! ❤️🤍💙🇺🇲
07/04/2025

Happy 4th of July, especially to our sweet girl in Heaven! Miss you tons! ❤️🤍💙🇺🇲

06/01/2025

Today is National Cancer Survivor Day and June is National Cancer Survivor Month!

People with Li-Fraumeni syndrome are known for multiple cancer diagnosis. Survivors, sometimes are fighting more than one cancer at the same time.

Let's take time to celebrate how far you have survived and thrived! Recognize those who supported us along the way & give hope and inspiration to other cancer patients.

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Dalton Gardens, ID

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+15097685986

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