Sarcoma Foundation of America, Inc.

Sarcoma Foundation of America, Inc. The official page for the Sarcoma Foundation of America located in Bethesda, Maryland. SFA is the first line resource for all things sarcoma.

SFA’s mission is to improve outcomes for people diagnosed with sarcoma to increase the number of survivors. We do this by funding and advancing research, educating and providing resources for people diagnosed with sarcoma, advocating on behalf of the sarcoma community, bringing together the collective sarcoma voice, and growing awareness about the disease.

Big news for the pediatric cancer community! The Mikaela Naylon Give Kids a Chance Act is now law, accelerating the dev...
02/05/2026

Big news for the pediatric cancer community! The Mikaela Naylon Give Kids a Chance Act is now law, accelerating the development of treatments for children with cancer and other rare diseases. This legislation is named in honor of Mikaela Naylon, a passionate advocate for childhood cancer who was diagnosed with osteosarcoma.

For too long, children have had limited access to clinical trials and therapies designed specifically for them. This law advances pediatric-focused research, encourages innovation, and helps ensure kids are no longer left behind in drug development.

SFA has proudly supported this bill through various sign-on letters and advocacy efforts, and we are thrilled to see this critical legislation finally cross the finish line. Thank you to everyone in the sarcoma community who helped make this possible!

https://www.congress.gov/bill/119th-congress/house-bill/1262/text

Today is World Cancer Day, an international awareness day that brings the global community together to advance progress ...
02/04/2026

Today is World Cancer Day, an international awareness day that brings the global community together to advance progress against cancer.

Sarcoma is rare, complex, and often overlooked, yet it affects hundreds of thousands of people around the world each year. Meaningful progress against sarcoma depends on sustained research, funding, and global collaboration. Since 2000, SFA has invested more than $27 million in sarcoma research in the United States and across 13 countries to help improve outcomes for people affected by sarcoma.

On World Cancer Day, and every day, SFA continues to be guided by a bold and unwavering vision: a world where no one dies from sarcoma.

February may be the shortest month of the year, but it’s filled with important days that help recognize and raise awaren...
02/03/2026

February may be the shortest month of the year, but it’s filled with important days that help recognize and raise awareness for .

February 4 –
A global day to raise awareness about cancer and highlight the importance of prevention, early detection, and treatment.

February 6 –
A day to raise awareness about chondrosarcoma, a rare and often aggressive bone cancer. It also honors the legacy of Shayna Elise Kramer, whose wish was to support patients and families affected by this disease.

February 15 –
A day to uplift and support children living with sarcoma and other cancers. We honor their experiences, share their stories, and advocate for increased research and better care.

February 28 –
Sarcoma represents only about 1% of adult cancers, placing it in the rare disease category. Today, we stand together to raise awareness, celebrate the strength of patients and survivors, and support ongoing research.

Together, even in the shortest month, we can make a powerful impact.

One week until RTCS South Florida! Together we raise awareness, provide support, and stand with everyone affected by sar...
01/30/2026

One week until RTCS South Florida! Together we raise awareness, provide support, and stand with everyone affected by sarcoma. We are working toward our goal of $35,000 to fund groundbreaking sarcoma research. Whether you walk, run, or form a team, your participation will make a powerful impact.

Register Here: https://runsignup.com/Race/FL/FortLauderdale/RacetoCureSarcomaSouthFlorida

01/26/2026

The FDA has granted Breakthrough Therapy Designation to bezuclastinib in combination with sunitinib for patients with Gastrointestinal Stromal Tumors (GIST).

What does this mean? It means this new therapy has shown potential for substantial improvement in early trials, and the FDA will work closely with the sponsors to speed up its development.

Learn more about this development: https://investors.cogentbio.com/news-releases/news-release-details/cogent-biosciences-announces-breakthrough-therapy-designation

As the leading private funder of research in the sarcoma community, it is our mission to advance more and less toxic tre...
01/26/2026

As the leading private funder of research in the sarcoma community, it is our mission to advance more and less toxic treatment options for sarcoma patients. Central to this is ensuring patients have access to clinical trials. This program, in partnership with Jordan’s Dream Fund, helps cover out-of-pocket expenses for sarcoma patients participating in clinical trials.

Jordan’s Dream Fund was established in 2017 in memory of 28-year-old Jordan Andrew Singer, a patient with epithelioid sarcoma. Singer befriended other sarcoma patients, many who did not have the financial resources to participate in clinical trials. This realization led to the formation of Jordan’s Dream Fund.

For more information: https://curesarcoma.org/support-resources/jordans-dream-fund-for-clinical-trials/

Good luck today to John Franklin-Myers and the Denver Broncos as they take on the Patriots in the AFC Championship! John...
01/25/2026

Good luck today to John Franklin-Myers and the Denver Broncos as they take on the Patriots in the AFC Championship!

John has served as an awareness ambassador for SFA since 2022, honoring the legacy of his late grandfather, Billy Ray. During the 2025 regular season, he donated $7,500 to SFA—with the Broncos matching his gift—for a total impact of $15,000.

Read more about his commitment here: https://curesarcoma.org/john-franklin-myers-donating-1000-to-the-sarcoma-foundation-of-america-for-every-sack-this-season/

Snowed in this weekend? Stay cozy indoors and catch up on the Sarcoma Stories podcast, where patients and care partners ...
01/23/2026

Snowed in this weekend? Stay cozy indoors and catch up on the Sarcoma Stories podcast, where patients and care partners share their experiences with . Follow and turn on notifications so you don’t miss any episodes!

Listen to our newest episode here: https://rss.com/podcasts/sfasarcomastories/2450075

SFA is proud to launch Sarcoma Match, our new mentorship program powered by Imerman Angels, a nonprofit organization tha...
01/22/2026

SFA is proud to launch Sarcoma Match, our new mentorship program powered by Imerman Angels, a nonprofit organization that connects those affected by cancer for one-on-one support. Through this partnership, we are working to reduce isolation and foster meaningful connections through shared experiences so that every person impacted by sarcoma has someone to turn to. Sarcoma Match is open to anyone affected by sarcoma hoping to connect with someone who has faced a similar diagnosis or circumstance and can offer empathy, guidance, and hope.

We are currently accepting mentor applications, with mentee applications opening soon.

More information: https://curesarcoma.org/support-resources/sarcoma-match/

Address

7700 Wisconsin Avenue, Suite 310
Damascus, MD
20814

Telephone

(301) 253-8687

Website

https://www.facebook.com/RacetoCureSarcoma, https://www.facebook.com/groups/134291333975877

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