Sarcoma Foundation of America, Inc.

Sarcoma Foundation of America, Inc. The official page for the Sarcoma Foundation of America located in Bethesda, Maryland. SFA is the first line resource for all things sarcoma.

SFA’s mission is to improve outcomes for people diagnosed with sarcoma to increase the number of survivors. We do this by funding and advancing research, educating and providing resources for people diagnosed with sarcoma, advocating on behalf of the sarcoma community, bringing together the collective sarcoma voice, and growing awareness about the disease.

RTCS Boston is just one week away!Join us on May 17 at Boston Common (Perimeter Pathway + Parkman Bandstand) for a meani...
05/10/2026

RTCS Boston is just one week away!

Join us on May 17 at Boston Common (Perimeter Pathway + Parkman Bandstand) for a meaningful morning of connection, remembrance, and support. Together, we’ll honor loved ones, share stories, and come together as a community.

Every step helps raise awareness and work toward better outcomes for people diagnosed with sarcoma.

Register or show your support: https://curesarcoma.org/race-to-cure-sarcoma/

A new study has shown encouraging results for people living with tenosynovial giant cell tumor (TGCT), a rare tumor that...
05/08/2026

A new study has shown encouraging results for people living with tenosynovial giant cell tumor (TGCT), a rare tumor that can cause pain, limit movement, and damage joints. SynOx Therapeutics announced that its investigational treatment, emactuzumab, helped shrink tumors and improve symptoms in patients whose tumors could not be removed with surgery. Patients in the study also reported improvements in physical function and other quality-of-life measures.

Unlike some currently available treatments that require ongoing therapy, emactuzumab is being studied as a short-course treatment designed to provide lasting benefit. These results are especially meaningful because TGCT is often described as “benign,” even though it can have a serious impact on daily life. For many people, surgery is not possible or may not fully resolve the problem.

The company plans to seek regulatory approval in 2026. If approved, emactuzumab could become a new treatment option for people living with TGCT.

New episode out now!On today’s episode we’re the sarcoma story of one of our Sarcoma Stories hosts, Tasha. Tasha has bee...
05/07/2026

New episode out now!

On today’s episode we’re the sarcoma story of one of our Sarcoma Stories hosts, Tasha. Tasha has been hosting Sarcoma Stories since its inception in November 2024 and she’s now sharing her story about her Embryonal Rhabdomyosarcoma diagnosis.

We also talk about some of the transitions happening at SFA with Tasha’s role as she embarks on a new endeavor, starting her program - Move Anyway - while welcoming Katie Wintergerst to the podcast as co-host.

Listen where you get podcasts!

Colleen Forbes, RN, BSN, ONC of Duke University Hospital will be honored with the Compassionate Care Award at this year’...
05/06/2026

Colleen Forbes, RN, BSN, ONC of Duke University Hospital will be honored with the Compassionate Care Award at this year’s Stand Up to Sarcoma Gala. She brings both expertise and genuine compassion to her work by providing thoughtful care coordination, clear education, and steady support for patients throughout their sarcoma journey.

Colleen is committed to improving access to care, strengthening communication across multidisciplinary teams, and ensuring patients and families feel informed, supported, and cared for every step of the way,

Over the years, she has been actively involved in creating, planning and implementing sarcoma awareness events, including golf tournaments, walk/runs, and patient appreciation tables, helping foster connection, support, and advocacy within the sarcoma community.

Join us in celebrating Colleen and our other honorees:https://standuptosarcoma.curesarcoma.org/

Duke Orthopedics Duke Cancer Institute

At Race to Cure Sarcoma events, we unite to honor those impacted by sarcoma and transform remembrance into meaningful ac...
05/05/2026

At Race to Cure Sarcoma events, we unite to honor those impacted by sarcoma and transform remembrance into meaningful action. Every participant, every team, and every dollar raised helps move us closer to better treatments and improved outcomes. Find a race near you and be part of the progress.

Clear Cell Sarcoma (CCS) is an ultra-rare and challenging cancer, and finding effective treatments has been an ongoing a...
05/04/2026

Clear Cell Sarcoma (CCS) is an ultra-rare and challenging cancer, and finding effective treatments has been an ongoing area of research. A recent Phase II clinical trial published as part of the IMMUNOSARC II Master Trial tested a combination of sunitinib and nivolumab in patients ages 12–80 with confirmed CCS:

What they found:
• 50.1% of patients were progression-free at 6 months
• 14.3% of evaluable patients had tumors shrink (partial response)
• 66.7% achieved stable disease
• 6.2 month median progression-free survival
• 17.0 month median overall survival

The researchers also found that certain features in a patient's tumor may help predict who is most likely to respond well to this treatment. This could one day help doctors choose the best therapy for each patient.

While further studies are needed, these results are a meaningful step forward for patients and families affected by this rare disease.

Just one week until RTCS San Francisco!Join us next Saturday at the Music Concourse Bandshell in Golden Gate Park for a ...
05/02/2026

Just one week until RTCS San Francisco!

Join us next Saturday at the Music Concourse Bandshell in Golden Gate Park for a morning filled with hope, remembrance, and celebration. Together, we’ll bring the sarcoma community together to raise awareness, honor every journey, and build meaningful, lasting connections.

Register or show your support: https://runsignup.com/Race/CA/SanFrancisco/RaceToCureSarcomaSanFrancisco

May is National Nurses Month.Nurses are the unsung heroes in every sarcoma story, walking beside patients and families t...
05/01/2026

May is National Nurses Month.

Nurses are the unsung heroes in every sarcoma story, walking beside patients and families through their hardest, most uncertain moments, offering comfort and a steady presence so no one ever has to face sarcoma alone.

Honor a nurse who has touched your life with a tribute gift this month. It’s a heartfelt way to say thank you and recognize the compassion and love they pour into our community every single day.

Give a gift: https://curesarcoma.org/nurse-appreciation

04/30/2026

Tickets for the 2026 Stand Up to Sarcoma Gala are now available! Now in its 24th year, this special evening brings together the sarcoma community from across the country and around the world to celebrate progress, honor loved ones and stand in solidarity with sarcoma patients and survivors.

More information: https://standuptosarcoma.curesarcoma.org/

Did you know there’s more than one way to be part of Race to Cure Sarcoma?Our volunteers are truly the heart of SFA, hel...
04/29/2026

Did you know there’s more than one way to be part of Race to Cure Sarcoma?

Our volunteers are truly the heart of SFA, helping bring each event to life while raising awareness and supporting the entire sarcoma community.

Whether it’s your first time or you’re looking for a new way to give back, we’ll help you find something that feels meaningful. You’ll meet amazing people, be part of something bigger, and make a real difference along the way.

We’d love to see you at an upcoming event!

Find more information here: https://curesarcoma.org/race-to-cure-sarcoma/volunteer/

Address

7700 Wisconsin Avenue, Suite 310
Damascus, MD
20814

Telephone

(301) 253-8687

Website

https://www.facebook.com/RacetoCureSarcoma, https://www.facebook.com/groups/134291333975877

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