09/03/2025
At Supported Living Group, we stand with brain injury survivors and their families every day, but stories like Kendra Winner's remind us just how broken the care system remains.
Her son Aidan, now 20, suffered devastating brain injuries in a car crash nearly two years ago, requiring 10 surgeries, 80 days in ICU, and constant 24/7 care. Despite progress, he's been bounced between facilities, denied coverage by insurance like Harvard Pilgrim, and stuck on waitlists for essential rehab. Massachusetts lacks dedicated pediatric options for TBI/ABI, and programs like MassHealth waivers only cover half his needs, leaving families like Kendra's overwhelmed and terrified.
Unfortunately, this isn't just one story or an issue isolated to Massachusetts; it's a systemic failure: gaps in rehabilitation, unreliable private hire personal care assistants, and no coordinated support from day one.
There is a growing and urgent need for change: expanded sub-acute rehab for all ages, more skilled nursing facilities equipped for brain injury recovery and shorter waitlists for community-based brain injury support programs.
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Read Kendra's full plea here: https://commonwealthbeacon.org/opinion/a-mothers-plea-fix-the-broken-continuum-of-care-for-brain-injury-survivors/
As if the agony of his horrific injury weren't enough, I’ve also been forced to wage another relentless battle—this one against a cold, indifferent private health insurance industry that treats my son like a number instead of a life worth fighting for.