National Scleroderma Foundation Tri-State Chapter

National Scleroderma Foundation Tri-State Chapter National Scleroderma Foundation Tri-State Chapter We enhance the public’s awareness of this autoimmune disease.

We provide educational and emotional support to people with scleroderma and their families.We stimulate and support research designed to identify the cause of and cure for scleroderma as well as to improve methods of treatment.

10/11/2025

Did you know more than 3,000 lung transplants are performed each year in the U.S.?

Join us today as we bring awareness to this important treatment option for Lung Transplant Awareness Day.

https://lungtransplantawarenessday.org/

10/11/2025

Finding the right care matters. 💙

Scleroderma is a complex disease and having a care team that understands it makes all the difference.

That’s why the National Scleroderma Foundation designates specialized Scleroderma Treatment and Research Centers across the country.

At these centers, you’ll find healthcare professionals who are deeply familiar with the disease and can tailor treatment plans to each individual’s needs.

🌐 Explore the full list of Scleroderma Treatment Centers: https://scleroderma.org/treatment-centers/

10/11/2025

🎉 Headed to ACR Convergence in Chicago? We can’t wait to see you there!

📍 Visit the National Scleroderma Foundation at Booth #2106 to connect with our team and learn about our mission to advance research and accelerate progress toward a cure.

Are you presenting on scleroderma this year?

We’d love to hear about it and show our support - stop by and say hello!

Learn more at https://www.acrconvergencetoday.org/

10/11/2025

Fall is a season of change - and sometimes change can feel overwhelming.

Our virtual support groups provide a safe space to share, listen, and find encouragement.

Whether you want to talk, ask questions, or simply hear from others who understand, our groups make it easy to join from anywhere.

Curl up with a blanket, sip your favorite warm drink, and take a moment for yourself this autumn.

See all available groups and join one today: https://ow.ly/353P50X5HXr

Because support is always in season. 💙

⭐️TRI-STATE IN PERSON EDUCATION FORUM AT THE HOSPITAL FOR SPECIAL SURGERY IS BACK THIS FALL⭐️and THERE IS STILL TIME TO ...
10/08/2025

⭐️TRI-STATE IN PERSON EDUCATION FORUM AT THE HOSPITAL FOR SPECIAL SURGERY IS BACK THIS FALL⭐️and THERE IS STILL TIME TO REGISTER⭐️

This Educational Forum’s is on Saturday, November 22, 2025 at 11:00 am and the topic will be Let’s Talk Scleroderma Research with Scleroderma experts! The experts speaking are Dr. Robert Spiera, Dr. Elena Bernstein, Dr. Kimberly Larkin and Dr. Monique Hinchcliff.

This is a MUST attend and we hope to see you! It is the perfect opportunity to learn and meet other members of the community!

Registration begins at 10:30 am or register in advance using the QR code or at https://host.nxt.blackbaud.com/registration-form/?formId=be338672-fd76-4e12-8632-93add9aa31ad&envId=p-JWRarjDScUO0zGLKk5a83g&zone=usa

✨⭐️Anyone who registers in advance, will get an extra raffle ticket for the door prize!✨⭐️

National Scleroderma Foundation

The Orange County Support Group encourages you to attend their next IN PERSON meeting at their NEW location!When: Tuesda...
10/08/2025

The Orange County Support Group encourages you to attend their next IN PERSON meeting at their NEW location!

When: Tuesday, October 28, 2025 @ 1:00 PM EST

Where: Josephine-Louise Public Library, 5 Scofield Street, Walden, NY (Walden's Municipal Building and the community room is on the second floor)

Topic: Open Discussion

We hope many of our local people can join us on that day!

For more information or to join the group, contact the Support Group Facilitator, Jodi Lynn at jo.lynn78@gmail.com

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you ...
10/08/2025

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you to our next Support Group Meeting!

Date: Wednesday, November 5, 2025

Time: 7:00 pm - 8:30 pm EST

Topic: Open Discussion

Scan the QR code or Register at

https://us02web.zoom.us/meeting/register/t_91XLGAS6Kpq9a8cPFe0g #/registration

All are welcome from any location! Join us!

National Scleroderma Foundation

TOMMORROW IS THE ROCHESTER EDUCATION FORUM……THERES STILL TIME TO REGISTER! Hope to see you tomorrow! ...
10/03/2025

TOMMORROW IS THE ROCHESTER EDUCATION FORUM……THERES STILL TIME TO REGISTER! Hope to see you tomorrow!
****************
The Annual Rochester Patient Educational Forum will take place this Saturday, October 4, 2025, at 9:00 am, featuring Dr. Karen Kruzner, and Dr. Roberta Goncalves- Marangoni, both Rheumatologist at the University of Rochester Medical Center.

The doctors will present topics such as "Cold Truths: Understanding Raynaud's Phenomenon" and "Interstitial Lung Disease (ILD): Types, Causes, and Treatments."

This is a must-attend event and a tremendous opportunity to learn about Raynaud's Disease, Interstitial Lung Disease (ILD), and their effects.

This event is free. A complimentary light breakfast and parking passes will be available. Check the attached flyer for more details. Register scanning the QR code or at the following link:

https://host.nxt.blackbaud.com/registration-form/?formId=6c94e280-a591-4db9-b1ab-fa598ed801e8&envId=p-JWRarjDScUO0zGLKk5a83g&zone=usa&fbclid=IwZXh0bgNhZW0CMTEAAR6cTXe26zRBWqRf5Uu67aMemi53KivIpU10GcT9CjhCs9O-FyeLBlr11TeSWQ_aem_sTmggt4ZoHS6RzHqGJQjdg

We look forward to your participation.

10/03/2025

Digital ulcers, also known as digital ischemia, can cause pitting or sores on the fingers and can be a sign of severe Raynaud’s.

These sores occur when blood flow to the fingers is significantly restricted, often triggered by cold or stress, and they can increase the risk of infection or other complications if not treated promptly.

Raynaud’s Awareness Month is a great reminder to stay informed about the signs and symptoms of this condition.

💡 Want to learn more about Raynaud’s and how to manage it? Join our upcoming webinar with the Raynaud’s Association.

https://ow.ly/CpFC50X5HzE

10/03/2025

Our CEO, Mary J. Wheatley, IOM, CAE, recently joined the Chronic Pain Reset Podcast to discuss the complexities of chronic pain and scleroderma.

With host Afton Hassett, Mary dives into the challenges faced by those living with scleroderma and the National Scleroderma Foundation's commitment to advancing research, education, and support.

Tune in to hear firsthand about our Foundation's mission and the impact of scleroderma on individuals and communities.

🎙️ Listen now at https://ow.ly/9jfp50X4VLp

Welcome to the family! 👋 We're excited to bring back our Newsletter! Find out what is happening in Tri-State! Get to k...
10/01/2025

Welcome to the family! 👋 We're excited to bring back our Newsletter! Find out what is happening in Tri-State! Get to know our CAC, Support Group Meetings, Educational Forums, Health Fairs, Advocacy and more…..oh my!

If you would like to join our e-mail mailing list, send your contact information to TriStateChapter@scleroderma.org

Address

300 Rosewood Drive, Suite 105
Danvers, MA
01923

Opening Hours

Monday 8am - 4:30pm
Tuesday 8am - 4:30pm
Wednesday 8am - 4:30pm
Thursday 8am - 4:30pm
Friday 8am - 4:30pm

Telephone

+18007224673

Website

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