National Scleroderma Foundation Tri-State Chapter

09/05/2025

The Connecticut Scleroderma Support Group invites you to join them IN PERSON for the next support group meeting

Date: Saturday, October 18, 2025 at 9:30am EST

GUEST SPEAKER: Dr. David Leader of Tufts University
TOPIC: Scleroderma related oral and dental complications.

We look forward to you joining us!

09/05/2025

The Greater Rochester Scleroderma Support Group invite you to their next VIRTUAL Support Group Meeting

Date: Saturday, September 20, 2025

Time: 1:00 pm ~ 3:00 pm

TOPIC: “Pamper Yourself, Pamper Your Health"

Register in advance at

https://us02web.zoom.us/meeting/register/IXMQehGXSRyNqKYH6-Tekw

For more information contact:
Greater Rochester Support Group Facilitator
Marilyn A. Sibley
(585) 723-1026 or (585) 406-9858
Email: msibley@scleroderma.org

09/05/2025

TOMORROW IS THE BIG DAY!!!
Come walk with us, enjoy some treats, win great prizes and support the National Scleroderma Foundation Tri-State Chapter! 💙
September 6, 2025
Rockland Lake State Park
Registration Time: 9:00am
Walk Time: 10:00am

Register now or just show up!

https://national.scleroderma.org/site/TR?fr_id=5616&pg=entry

09/03/2025

Missed it live? Catch the replay! 💻

At our recent National Scleroderma Conference, Dr. Virginia Steen shared crucial insights on Pulmonary Hypertension in Scleroderma.

This session covered early signs, risk factors, and strategies for managing this condition.

Watch the full session here: https://ow.ly/XYXj50WQtLT

09/03/2025

METRO 5 Support Group Meeting tomorrow night, September 3rd from 7 pm to 8:30 pm EST. There’s still time to join us. Register in advance.

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you to our next Support Group Meeting!

Date: Wednesday, September 3, 2025 at 7:00 to 8:30 pm EST

Topic: Open Discussion

Register in Advance

https://us02web.zoom.us/meeting/register/9GjP7a07S-W2P_y4dYMnPg

All are welcome from any location! Join us!

National Scleroderma Foundation

08/29/2025

✨ Finding calm in the midst of scleroderma ✨

At our 2025 National Conference, Dr. Sundar Balasubramanian shared powerful insights on the Importance of Meditation and Breathing with Scleroderma. 🧘‍♀️

Watch this session to learn how breathing and mindfulness practices can support relaxation and become a valuable tool in daily life with scleroderma.

🎥 Watch here: https://www.youtube.com/watch?v=dXT_JQB-PXc

08/28/2025

🩵TRI-STATE IN PERSON EDUCATION FORUM AT THE HOSPITAL FOR SPECIAL SURGERY IS BACK THIS FALL!🩵

This Educational Forum’s is on Saturday, November 22, 2025 at 11:00 am and the topic will be Let’s Talk Scleroderma Research with Scleroderma experts! The experts speaking are Dr. Robert Spiera, Dr. Elena Bernstein, Dr. Kimberly Larkin and Dr. Monique Hinchcliff.

This is a MUST attend and we hope to see you! It is the perfect opportunity to learn and meet other members of the community!

Registration begins at 10:30 am or register in advance using the QR code or at https://host.nxt.blackbaud.com/registration-form/?formId=be338672-fd76-4e12-8632-93add9aa31ad&envId=p-JWRarjDScUO0zGLKk5a83g&zone=usa

✨⭐️Anyone who registers in advance, will get an extra raffle ticket for the door prize!✨⭐️

🔵Volunteer recruiting is closed! Thank you to everyone who reached out to volunteer!🔵

National Scleroderma Foundation

08/28/2025

Join us for our September 3 Metro Support Group Meeting!
All are welcome!

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you to our next Support Group Meeting!

Date: Wednesday, September 3, 2025 at 7:00 to 8:30 pm EST

Topic: Open Discussion

Register in Advance

https://us02web.zoom.us/meeting/register/9GjP7a07S-W2P_y4dYMnPg

All are welcome from any location! Join us!

National Scleroderma Foundation

08/26/2025

💙 Sundays are the perfect reset - a chance to recharge, refocus, and prepare for the week ahead.

At the National Scleroderma Foundation, we believe connection, knowledge, and community fuel strength.

Whether it’s joining a support group, exploring educational resources, connecting through Inspire, or watching videos on our YouTube channel - there are so many ways to take a positive step forward.

Which one of these will YOU do to start your week off right? ✨