Peer to Peer Health Care Support,Tips & Hints . Weekly Podcast posts with patient interviews or forum interactions to help you navigate various diagnoses.
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Why are so many of us with POTS chronically dehydrated?
It is not just about how much water we drink.
For some of us, we are meeting our intake goals.
We are carrying the water bottle.
We are adding electrolytes.
We are doing everything “right.”
And our bodies still show signs of dehydration.
Here is why.
When we stand up, blood shifts downward.
In POTS, the autonomic nervous system does not regulate blood vessel tone properly. So blood pools in the lower half of the body.
For those of us with hEDS too, the veins themselves can be more stretchy. They expand more than they should under normal pressure, which makes pooling even worse.
POTS can have different root causes.
Same end result.
Less blood returns to the heart while upright.
Less filling pressure.
Lower stroke volume.
Less effective circulation to the brain.
Now here is the part most people do not realize.
Your kidneys sit in the lower half of your body.
When blood pools there, your kidneys can interpret that as too much volume.
So instead of conserving fluid, they increase urine production.
Your body is eliminating fluid
when what you actually need
is more central blood volume.
Some researchers call this the aldosterone paradox.
So yes, some of us are drinking enough.
We just cannot hold onto it well.
But there is another side to this.
Some of us do not get strong thirst signals at all.
Autonomic dysfunction can blunt normal thirst cues.
And if you add chronic nausea, gastroparesis, or GI discomfort into the mix, you may never feel thirsty in the first place.
So now we have two different problems in the same community:
Some of us cannot retain fluid properly.
Some of us do not get the signal to drink it.
Some of us are dealing with both.
Add in heat intolerance.
Sympathetic overactivation.
Frequent urination.
Mast cell related fluid shifts in those with MCAS.
Low baseline blood volume in many patients with dysautonomia.
And hydration becomes a full time management plan.
This is not you failing at self care.
This is autonomic dysfunction.
And it is hard.
If you feel like you are constantly chasing hydration
or you never feel thirsty until you crash
you are not alone.
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Together we have 60 + combined years of successfully navigating various medical fields, including the Veteran's Administration (VA).
After hundreds of hours in doctors' offices, dozens of tests, and scores of hospitalizations, we have become extremely knowledgeable. We have often been asked for our support and have provided valuable healthcare insight to friends and family. We have a passion for helping others find the very best healthcare possible. It only seemed logical to take this passion to the next level and create a website and podcast to share with others.
Based in Downers Grove, Illinois, USA, PodcastDX aims to provide insightful interviews regarding health and wellness concerns. New PodcastDX episodes are released every Tuesday, and are available for subscription or download at Apple iTunes, Stitcher, Soundcloud, and Google+. PodcastDX was recently nominated for three WEGO Health Awards: Rookie of the Year, Advocating for Another, and Best in Show (Podcast)!
PodcastDX, LLC, allows patients to provide experience based medical insight to the world, in a peer to peer format. The hosts of PodcastDx believe that everyone has a story to tell, and we can all learn something from another’s journey.
To make our team stand above the rest we also have a Medical Caregiver, a former Army Medic and a Certified Recreational Therapist.
Recreational therapy, also known as therapeutic recreation, is a systematic process that utilizes recreation and other activity-based interventions to address the assessed needs of individuals with illnesses and/or disabling conditions, as a means to psychological and physical health, recovery and well-being.
The purpose of the RT process is to improve or maintain physical, cognitive, social, emotional and spiritual functioning in order to facilitate full participation in life. Services are provided or directly supervised by a “Certified Therapeutic Recreation Specialist” (CTRS). From developmental to physical disabilities, Ron can custom tailor leisure and travel to fit those needs