New England Hemophilia Association

03/17/2026

Earlier this month, Governor Phil Scott issued a proclamation to declare March as Bleeding Disorders Awareness Month in the Green Mountain State!

Thank you for helping us raise awareness in Vermont, Governor!

03/17/2026

One month from today is World Hemophilia Day! Join us on Friday, April 17 at 6 PM at Stockyard Restaurant in Brighton, MA for a special evening of dinner and family-friendly, hands-on activities.

Together, we’ll celebrate the strength of our community and the bold choices and shared support that are helping reshape what life with a bleeding disorder can look like. Enjoy a creative goal-setting craft, take part in a fun photo activity, and connect with others who share the journey.

On Friday, April 17 at 6 PM, we are coming together to celebrate World Hemophilia Day! Wear something red and join us at Stockyard Restaurant in Brighton, MA for dinner and family-friendly, hands-on activities.

03/16/2026

Applications are now open for the 2026–2027 Joe Pugliese Educational Award from the Hemophilia Alliance Foundation. This scholarship supports individuals diagnosed with an inherited bleeding or thrombotic disorder who are pursuing post-secondary education, including technical or vocational school, undergraduate study, or graduate programs.

Four recipients will each receive $12,500 to use toward tuition or other qualified educational expenses within one academic year. Apply before April 10 by clicking below.

HEMOPHILIA ALLIANCE JOE PUGLIESE EDUCATIONAL AWARD APPLICATION Description: The Hemophilia Alliance, The Alliance Pharmacy, and the Hemophilia Alliance Foundation are pleased to support the 2026-2027 Joe Pugliese Educational Award. This award is a scholarship provided annually to individuals diagnos...

03/14/2026

Applications to attend Family Camp are now being accepted!

For more than thirty years, this vital program has helped families in the New England bleeding disorders community increase acceptance and management of their diagnosis while also building strong connections with others who are in similar situations.

Read our email announcement to learn more about the activities we have planned for this year, and to see an update about our registration process: bit.ly/nehacamp26

For more information about Family Camp, visit: www.nehafamilycamp.org.

03/13/2026

Governor Maura Healey has officially declared March as Bleeding Disorders Awareness Month in the Bay State!

As the month continues, advocates from across the six New England states are working with their governors and state legislatures to secure resolutions and proclamations that help raise awareness about our community and its unique history. We’ll continue to share updates as additional resolutions are announced.

03/13/2026

The National Bleeding Disorders Foundation (NBDF) is helping us launch our Annual Unite For Bleeding Disorders Walk during Bleeding Disorders Awareness Month!

Before the end of this month, register for the Walk, place or receive a $25 donation, and be entered to win one of ten $100 Amazon Gift Cards. Get started today at www.nehawalk.org.

03/12/2026

On Thursday, April 9 at 6 PM, we are hosting an educational dinner at Timber Kitchen and Bar in Bangor, ME with CSL Behring. Here, patients will learn about a long-term treatment option for patients with hemophilia B.

In addition to enjoying a delicious meal, attendees will receive resources from Dr. Richard Lemons, MD, and have a chance to ask questions in this relaxed environment. Dr. Lemons is the medical director and professor of pediatrics in the Division of Pediatric Hematology/Oncology at the University of Utah. Sign up to join us below.

On Thursday, April 9 at 6 PM, we are hosting an educational dinner in Bangor, ME with CSL Behring.

03/12/2026

The UConn Huskies Honorary Kid Captain program partners with Connecticut Children's to highlight courageous patients facing serious medical challenges. For one unforgettable evening, each child is welcomed as an honored guest at a UConn game as they watch the game up-close and personal and even get to meet star players on the team.

Jack, who has hemophilia and lives in Connecticut, recently had his moment on the court as the Honorary Kid Captain during a women’s basketball game! Thank you to Connecticut Children's and the UConn Women's Basketball for creating experiences that remind kids like Jack, and so many in our community, just how special they are.

Meet tonight's honorary kid captain, Jack!

Jack was diagnosed with Severe Hemophilia A six years ago, but he refuses to let his condition define him or stop him from doing the things he loves. 💪

He practices karate, is a Cub Scout, loves to build Legos, and play with his sister. He started playing basketball in January and tonight is his first UConn Women's Basketball game!

03/12/2026

Kids and teens are in for an unforgettable experience at the Vinci STEAM Lab during our Consumer Medical Symposium later this month! They’ll dive into hands-on learning, hear directly from the students who became the 2025 VEX Robotics World Champions, and take part in fun, age-appropriate STEAM activities, like building, coding, and even operating their own robots!

Watch the video below for a sneak peek, and be sure to register at: bit.ly/neha-cms26

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

03/11/2026

The National Bleeding Disorders Foundation (NBDF) has launched a refreshed look for the nationwide Unite for Bleeding Disorders Walk, featuring a new logo and a new registration and donation platform.

While things may look different, our mission remains the same, and we’re here to support you every step of the way. Learn more and get involved at www.nehawalk.org.

03/11/2026

Earlier this month, Governor Kelly Ayotte issued a proclamation recognizing March as Bleeding Disorders Awareness Month in the Granite State.

On Wednesday, March 18 at 5:30 PM, New Hampshire patients and families are invited to gather at the New Hampshire State House to celebrate together. We’ll take a group photo with the proclamation and then head to 110 Grill for dinner, courtesy of NEHA. Sign up below to join us!

On Thursday, March 18 at 5:30 PM, New Hampshire patients and families are invited to celebrate Bleeding Disorders Awareness Month with us.

03/11/2026

Our Consumer Medical Symposium is just over two weeks away, and our discounted hotel room block closes this Friday, March 13. Register today to save on your room and join us March 28–29 in Burlington, MA for a weekend of learning, connection, and fun.

Hear from local providers about the latest treatment options, gain insight into emerging insurance trends, and listen to patients share their mental health journeys. You’ll also have the opportunity to participate in infusion training and enjoy a Saturday night casino event with a DJ and games for kids. Hotel scholarships are still available!

See photos from last year’s Symposium below and sign up to join us this year at: bit.ly/neha-cms26