New England Hemophilia Association

12/05/2025

This year’s Advocate of the Year Award was presented to Waylon Page, shown here speaking at a press conference with Connecticut lawmakers. This award honors community members who push for greater awareness, stronger patient–provider dialogue, and meaningful change at both the local and federal levels.

Though only a teenager, Waylon recognized the lifesaving impact of Stop the Bleed kits—and took action. He worked with legislators, partnered with StopTheBleed.org, testified before the CT Public Safety Committee, held press conferences, taught public classes, and helped lead legislation that passed both chambers and was ultimately signed into law. Waylon has also attended Washington Days to share his story on Capitol Hill and remains an active participant in NEHA events. We’re so proud of all he has achieved so far, and we can’t wait to see what the future has in store for him.

12/04/2025

Next Thursday, December 11 at 7 PM, we’re hosting a virtual educational presentation to explain recent changes to health insurance, along with an update on federal and state policy changes in New England.

Matt Delaney, Government Relations Manager at the National Bleeding Disorders Foundation (NBDF), will break down the latest health insurance developments and what they mean for people with bleeding disorders. With major policy decisions unfolding in Washington, including the potential expiration of key insurance subsidies, staying informed is crucial. Join us to learn more about recent federal and New England–specific updates and have your questions answered. Register: bit.ly/ins-web25

12/03/2025

Since launching our 2026 Membership Campaign on Giving Tuesday, 52 individuals and families have already renewed their NEHA Membership or joined as new members for the year ahead! We’re deeply grateful for your belief in our mission and your commitment to this community. Your support fuels the programs, services, and advocacy work we deliver every day.

Although Giving Tuesday has passed, you can become a member anytime. Learn more and invest in our community at: www.nehamembership.org.

12/02/2025

Just over eight hours after left on Giving Tuesday is almost over. So far today, 18 individuals and families in our community have signed up to be 2026 NEHA Members! Can you help us reach our goal of 30 memberships before midnight?

Our work each year is made possible by the support we receive through initiatives like our annual membership drive. Your generosity allows us to continue fostering an inclusive community that uplifts and empowers families through education, advocacy, and support. Together, we can create lasting impact! Learn more and become a member at: www.nehamembership.org.

12/02/2025

For fifteen years, Emily Bisson—pictured here at Family Camp helping a teenager infuse on a kayak in the middle of Lake Winnipesaukee—has been a vital member of our medical team. This morning, as we kicked off Giving Tuesday and launched our Annual Membership Campaign, she shared how she has seen Family Camp change lives and why your membership makes this program possible.

"In my time on NEHA’s Family Camp medical team, I’ve watched children’s faces brighten as they take their first steps toward managing their own care. I’ve seen parents who once felt overwhelmed gain hope as they watch their children grow in confidence and independence, discovering that life with a bleeding disorder can still be full of possibility and joy. NEHA makes these transformative moments possible."

Read Emily’s full story and learn more about becoming a 2026 NEHA Member at bit.ly/eb-membership (or visit www.nehamembership.org).

12/02/2025

Giving Tuesday is a day focused on giving back and supporting organizations that you care about. Today, we are asking you to invest in our community by renewing your yearly NEHA Membership or joining as a new member!

With your support, we can continue on our mission of fostering an inclusive community that uplifts and empowers families through education, advocacy, and support.

Can you help us reach our goal of getting 30 memberships today before midnight? Learn more and invest in our community at: www.nehamembership.org.

12/01/2025

Fritz is loving his Wicked Strong Family mug. Today, on Cyber Monday, you can grab one for yourself or a loved one from our online store! You’ll also find aprons, blankets, hats, shirts, and plenty of other great gifts for everyone on your holiday list.

Explore all our available items and place your order at www.nehastore.org.

12/01/2025

Today is Cyber Monday! Looking for the perfect gift? Our online store is filled with great options for everyone in your family, from cozy sweatshirts and blankets to mugs, aprons, and more.

When you shop at www.nehastore.org, you’re not just checking a gift off of your list, you’re supporting your Wicked Strong Family. Click below to explore all our newest items and find something special today!

When you purchase one of the items from the NEHA Store, you are supporting the New England bleeding disorders community. A portion of all sales support our programs and services like our Emergency Assistance Program and Family Camp.

12/01/2025

Today is , a time to honor and remember those in our bleeding disorders community who contracted HIV/AIDS from contaminated clotting factor.

We invite you to explore this interactive timeline, which highlights the tireless advocacy that helped strengthen the safety of our nation’s blood supply and ensure that a tragedy like this is never repeated. Learn more: bit.ly/HFATimeline

11/28/2025

The National Bleeding Disorders Foundation (NBDF) is hosting their first-ever Unite For Bleeding Disorders Walk T-shirt Design Contest!

All are welcome to submit their ideas by this Sunday, November 30. View the contest guidelines and submit a design at: www.uniteforbleedingdisorders.org/tshirtcontest

11/27/2025

Over the past year, your dedication and support have been at the heart of our growth and success. Your passion, resilience, and commitment continue to inspire us every step of the way.

Thank you for standing by our mission of education, support, and advocacy. The progress we’ve made together is something to be proud of, and it wouldn’t have been possible without you.

We are truly grateful to have you as part of our Wicked Strong Family. Wishing you and your loved ones a very Happy Thanksgiving!

11/26/2025

Applications to attend Washington Days with the National Bleeding Disorders Foundation (NBDF) are now being accepted! This year, we are happy to provide travel scholarships for six families to attend—one from each state in New England.

Join us to represent New England as you share your story about living with a bleeding disorder with your elected officials, while also asking them to support programs that the bleeding disorder community relies on. Training will be provided, and new advocates will be paired with seasoned advocates or staff members for their meetings. Learn more and register below!

NBDF is hosting their Annual Washington Days program in Washington, DC from Wednesday, March 4 to Friday, March 6.