New England Hemophilia Association

10/10/2025

October 10 is Factor X Day! Today, we're raising awareness and celebrating the strength of our community members living with this rare bleeding disorder.

Factor X deficiency may be rare, but no one faces it alone. Together, we stand united in support, advocacy, and hope for a future with greater understanding and better treatments.

Today is Factor X Day! Recognize someone who’s supported you, or share a quote or words of encouragement to inspire others affected and their loved ones to keep going.

10/10/2025

We’re proud to join the World Health Organization (WHO) and organizations around the world in recognizing World Mental Health Day today, October 10.

This global observance shines a light on the importance of mental health and the progress made toward breaking stigma and promoting awareness. Take time today to check in with yourself and make your mental well-being a priority. Explore our Mental Health Toolkit for helpful resources, tips, and tools to support your journey toward better mental health: newenglandhemophilia.org/mental-health

10/09/2025

It's that time of year, already! Get a jump start on designing your holiday cards, and do so while also supporting your Wicked Strong Family!

When you use Minted to design your holiday cards, you will receive 20% off your order and Minted will donate 10% to NEHA! All you need to do is enter code "FUNDRAISENEHA" at the end of your purchase at minted.com.

10/09/2025

Last year, Victoria Kuhn received NEHA’s Volunteer of the Year Award. This award recognizes someone who has gone above and beyond with their service to NEHA.

During FallFest every year, we present this award and six others to those in our community who have gone the extra mile in supporting our mission. Explore the full list of awards and nominate someone special by next Wednesday, October 15 at: bit.ly/ff25-awards

10/08/2025

FallFest is one month away! Now is the time to register if you plan to join us. Our discounted room block is nearly full and will be closing this Friday, October 10.

Join us at the beautiful oceanfront Samoset Resort for a weekend filled with community, connection, and education. Session topics include: dental care, mental health, insurance and Medicaid changes, women with bleeding disorders, and more. Learn more and sign up today by clicking below!

FallFest will be held from Saturday, November 8 to Sunday, November 9 at the Samoset Resort in Rockport, ME.

10/07/2025

On Saturday, October 18 at 5 PM, Brands of Portugal in Rumford, RI is hosting a special wine tasting event to benefit NEHA!

Attendees can enjoy a curated tasting of wines from across Portugal, each with its own unique story and perfect for your holiday table or gift list. Guests will also enjoy light snacks, soft music, and the chance to browse a selection of imported goods from Portugal. The event is free to attend, but donations are suggested will be given to NEHA. Learn more and sign up at: bit.ly/neha-wine25

10/06/2025

In our recent newsletter, our Board of Directors shared an update about the work we've done since creating our 2020 Strategic Plan—and how your feedback in our 2024 Needs Assessment is helping us build our plan for the future.

Click below to read their full reflection and see how far we’ve come together.

As we begin drafting NEHA’s next Strategic Plan—guided by the thoughtful feedback so many of you shared in our 2024 Needs Assessment—it feels like the perfect moment to pause and reflect on how far we’ve come. When our last Strategic Plan was drafted in 2020, our goal wasn’t to reinvent NE...

10/03/2025

Last year, Emily Bisson received NEHA’s Champion of Healthcare Award. This award recognizes a healthcare provider who has gone above and beyond in their volunteer work and dedication to NEHA. Eligible candidates include physicians, nurses, and social workers who treat bleeding disorder patients in New England.

Each year at FallFest, we present this award, and six others, to community members who have gone above and beyond in demonstrating commitment to our mission. See a full list of the awards and nominate a leader today before nominations close on Wednesday, October 15 at: bit.ly/ff25-awards

10/02/2025

On Wednesday, October 8, we are hosting an educational dinner and dessert bar at The Tarratine in Bangor, ME.

During the evening, you’ll learn about a new, once-weekly subcutaneous treatment option for patients ages 12 and older with hemophilia A or B. After the presentation, enjoy a delicious selection of desserts while connecting with others in the community. Space is limited. Sign up to join us below!

On Wednesday, October 8, we are hosting an educational dinner with Pfizer and Superior Biologics.

10/01/2025

Last year, Mary and Scott Fitzpatrick received NEHA’s Advocates of the Year Award. This award recognizes individuals who have demonstrated a fierce determination to raise awareness about bleeding disorders, to increase the dialogue between patients and providers, and to encourage change where change is needed.

Annually at FallFest, we give this award, along with six others, to community members who have demonstrated extraordinary dedication to our mission. See the complete list of awards and nominate a leader before Wednesday, October 15 at: bit.ly/ff25-awards

09/30/2025

The National Bleeding Disorders Foundation (NBDF) is hosting a webinar tomorrow, Wednesday, October 1 at 2 PM, to help our community understand what’s ahead for both Marketplace and employer-sponsored health insurance plans in the coming year.

This is an important opportunity to get the information you need before Open Enrollment begins. The webinar will cover a wide range of topics—including research into new therapies and diagnostics, lived experiences from people with bleeding and blood disorders, and the latest updates in advocacy and community initiatives. Register today: bit.ly/4mDYKA7

There are big changes coming to your insurance plans, and it’s a good idea to get prepared. Our experts will walk you through what's on the horizon for Marketplace and employer-sponsored plans, so you're ready for Open Enrollment.

🗓️ Wednesday, October 1

Register here! https://bit.ly/4mDYKA7

09/28/2025

Yesterday, more than 600 participants from 65 teams came together for our 16th Annual Unite Walk. Thanks to your incredible support, we surpassed our goal, raising more than $388,000 to fund vital programs and services for our community!

But the Walk is about so much more than fundraising. It’s a day of connection, celebration, and support—where families and friends can meet others who share similar experiences while enjoying activities like a 40-foot obstacle course, dunk tank, petting zoo, face painting, balloon art, “crazy critters,” delicious food and sweet treats, and so much more.

Though the Walk is over, donations are still welcome at www.nehawalk.org. Thank you for all your amazing support. We couldn’t have done this without you!