New England Hemophilia Association

09/04/2025

With schools now back in session, we are happy to share that Madison DiPrima is a recipient of this year's John W Cavanaugh Adult Education Scholarship!

Madison has hemophilia and grew up attending NEHA events with her twin sister, Morgan, who also has hemophilia. This scholarship will allow her to return to school to study business through the University of Maine. Congratulations, Madison!

09/03/2025

We are thrilled to share that Kate Smethurst has been awarded this year’s Mancini Creative Arts Scholarship!

Kate first connected with NEHA after her son was diagnosed with hemophilia—later discovering the condition actually ran through her family. Since then, she has become a dedicated volunteer, Walk Team Captain, and an active member of our Wicked Strong Family, alongside her entire family. A lifelong art enthusiast and former art major, Kate is eager to use this scholarship to reignite her creative spark by taking oil and watercolor painting classes at an art studio in Marblehead, MA. Congratulations, Kate!

09/02/2025

As a new school year begins, we’re proud to celebrate Bridget Edwards as one of two recipients of this year’s John W. Cavanaugh Adult Education Scholarship.

Bridget lives with a rare factor deficiency called Afibrinogenemia and dedicates her career to supporting students who face barriers to success in college. With the help of this scholarship, she will further her expertise by pursuing a Graduate Certificate in Higher Education Leadership for Student Success through Walden University. Congratulations, Bridget!

08/28/2025

The Hemophilia Foundation of Michigan (HFM) is inviting members of our community to attend their National Conference for Women with Hemophilia and Rare Factor Deficiencies from October 3 to October 5 in Detroit.

Women 18 and older with hemophilia A or B, rare factor deficiencies, and symptomatic carriers are invited to attend. Transportation, lodging, and meals are fully covered.

This year’s theme, “Hear Me. See Me. Believe Me,” celebrates the power of women’s voices, stories, and strength. Attendees will learn from national experts and healthcare providers, engage with inspiring speakers, and connect with peers who share similar experiences. Learn more and register: https://bit.ly/hfm-25

08/27/2025

We are exactly one month away from our Unite for Bleeding Disorders Walk. While the Walk is our largest fundraiser of the year, it is also our largest celebration of the year—and we hope to see you there!

In this video, you’ll catch a glimpse of the fun, family-friendly activities we have in store for this year’s Walk. Bring your friends, family, coworkers, and neighbors to Prowse Farm in Canton, MA, and be part of this incredible event.

Register, make a team, or place a donation at: www.nehawalk.org.

08/21/2025

On Thursday, September 18, Maurice Walsh will kick-off his six-hour swim across Lake Winnipesaukee to support NEHA!

Since 2020, Maurice has been swimming for causes nationwide—including in the San Francisco Bay and Lake Sunapee; and this year, he will be swimming to benefit our Wicked Strong Family. This partnership began through Maurice’s friendship with Bill Verner, whose grandson has hemophilia. Learn more about Maurice and support his swimming journey by clicking below.

On Thursday, September 18, Maurice Walsh will kick-off his six-hour swim across Lake Winnipesaukee to support NEHA.

08/19/2025

This weekend, we hosted two Family Fun Days--one in Northern New England and one in Southern New England. Both days began with educational and rap sessions. After lunch, families in Connecticut spent the afternoon together at Lake Compounce Amusement Park, while families in Maine enjoyed an outing to the DEW Haven Zoo.

Events like these help our community come together to learn, share and connect with each other in a fun and laid back environment. Join us at an upcoming event: www.nehaevents.org

08/18/2025

Yesterday, Team NEHA took on the seven-mile Falmouth Road Race! Congratulations and thank you to the ten dedicated runners who trained for months and fundraised in support of our Wicked Strong Family!

Our team included individuals with bleeding disorders, parents, caregivers, and new friends who stepped up to make a difference for our community. Thanks to their efforts, we’re 79% of the way toward our $15,000 fundraising goal. With your help, we can cross the finish line together! Can you help us get there?

Place a donation and learn more about our runners: bit.ly/neha-frr25

08/14/2025

Applications are closing soon for the Generation IX Leadership Project, taking place from Friday, November 7 to Sunday, November 9 in Northern California.

This transformative program invites young adults with hemophilia B to step up, challenge themselves, and grow through an immersive leadership experience. Selected participants will receive a full travel scholarship covering airfare or mileage, lodging, and meals throughout the event, courtesy of the Coalition for Hemophilia B. Learn more below.

The Generation IX Leadership Project is a call to action for young adults that live with hemophilia B who want to put their skills to the test in an immersive leadership program.

08/12/2025

It's August, and that means kids will soon be heading back to school. This is a big transition for any family, and it can come with extra challenges for those living with a bleeding disorder. We're here to support you!

Our Bleeding Disorder Back To School Toolkit is packed full of resources to help you prepare for the upcoming school year and ensure your child’s teachers and school staff are well-informed about their condition. Explore the resources at: www.newenglandhemophilia.org/school

08/08/2025

We’re excited to share a new resource, designed specifically for dentists treating patients with bleeding disorders. This guide outlines key precautions and protocols to manage bleeding risks during dental care. By sharing it with your dentist, you can ensure safe, informed treatment.

This was developed with the expertise of Drs. Alan & Missy Kennell, dental professionals from New Hampshire and parents of a son with hemophilia. Their unique combination of professional knowledge and personal experience make this an invaluable tool for patients in our community. Click below to explore the resource.

We’re excited to share a vital new resource designed specifically for dentists treating patients with bleeding disorders. This comprehensive guide provides essential precautions and protocols to effectively manage bleeding risks during dental procedures. By completing your personal information and...

08/06/2025

On Monday, we hosted our 35th Annual Golf Tournament. In addition to enjoying a beautiful summer day on the greens and a delicious lunch, we were thrilled to raise more than $75,000 to support our programs and services!

Congratulations to our tournament winners, raffle prize recipients and the winners of our silent auction items! Thank you to the nearly 30 volunteers who made the day run smoothly, and to the 20+ local businesses and industry partners who sponsored the event—including our Platinum Sponsor, Novo Nordisk, and Gold Sponsors Wells Fargo and Allan Crudale, CVS Specialty, and CSL Behring.

We’re especially grateful to volunteer chair Dot Sparrow, who has led this event, with the help of her incredible family, for eight years in honor of her late husband, Charlie. View the full list of supporters and learn more about the tournament at www.nehagolf.org.