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I LIVE LUPUS

I am a LUPUS WARRIOR! I fight an ugly war inside my body every single day... I may not win this battle, but I will NOT go down without a FIGHT

Having lupus makes my everyday life challenging. When my lupus is active, symptoms of joint stiffness, pain, extreme fatigue, confusion, or depression can make simple tasks difficult, and sometimes impossible. It's not easy to describe a disease with symptoms that are so varied and yet often not visible, whose effects can range from manageable to life-threatening, and whose course is sporadic, alt

ernating between periods of wellness and flare. Explaining lupus is made even more difficult because the causes of lupus are unknown. People around me may not realize how much discomfort and pain I'm experiencing, or may not know that I am sick at all because I don't have visible signs of disease...but it's hard living with LUPUS!

04/04/2025

04/01/2025

LUPUS.ORG

We recognize that losing a loved one to is an unimaginable pain and deserves a special space to find encouragement and solace.
Join our first virtual support group for those who are grieving. Connect with others who understand - and share, reflect, and honor your journey.

03/07/2025

Lupusorg - We're conducting a global survey to understand how affects the body, especially the kidneys. If you have lupus or care for someone who does, share your experience to help advance research and awareness

• www.lupus.org/instagram

01/21/2025

Lupusorg
•January is
O, a good reminder about the importance of blood donation and how affects the blood. Blood disorders are common with lupus, often impacting platelets and red and white blood cells. Click the link in our bio to learn more.

01/15/2025

Lupus.org 🚨
We've updated our guide
with new resources to support people with impacted by the . It includes tips for building an emergency lupus kit, guidance on obtaining medications, disaster preparedness and recovery resources, and safety considerations for poor air quality (LINK IN BIO). New resources will be added as they become available.

11/15/2024

A heartfelt thank you to my kids for loving & supporting me through my battles. I especially want to thank my caregiver, my daughter. I know it’s hard to care for someone fighting lupus & cancer. Know that I appreciate you so much. You deserve your flowers 💐 for National Caregivers month 😘
I love💜love you babygirl

💜. 🥰. 🙏🏽.

09/21/2024

When you finally learn that a persons behavior has to do with their own internal struggle that it ever did with you... learn grace or try walking in my shoes

-Don't assume or act like you know my story, because you have no idea

. &Cancer.
.
. 🙏🏽

03/21/2024

Today, we honor those lost to lupus, like Beryl, whose resilience and love touched many lives. Her daughter, Ashleigh, keeps her memory alive by raising awareness about lupus and supporting those affected by this relentless disease.

Join us in honoring Beryl's memory by reading her inspiring journey and learn how to create a tribute page for your loved one: https://buff.ly/43nucdC

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