National Jewish Health Adult Cystic Fibrosis Clinic

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Denver, CO
National Jewish Health Adult Cystic Fibrosis Clinic

The National Jewish Health Adult Cystic Fibrosis Clinic is the largest CF center in the United States, following nearly 300 adults.

The National Jewish Health Adult Cystic Fibrosis page is intended to provide our patients, their families and support systems, updates about our clinic and other helpful information. We are part of the National Therapeutics Development Network (TDN), a network of nearly 80 CF clinical research centers dedicated to conducting clinical trials in order to evaluate the safety and effectivenes

s of new CF therapies. As CF is a multi-organ system disease affecting the lives of both the patient and his/her family, our CF team includes the following healthcare professionals: Pulmonary Physicians, Nurse Coordinators, Respiratory Therapist, Endocrinologist, Registered Dietitian, Social Workers, and Research Coordinators. Description
Social Media Guidelines & Comment Policy: http://www.nationaljewish.org/about/mediacenter/social-media/

General Information
National Jewish Health is an Affirmative Action/Equal Opportunity Employer, and we are committed to hiring a diverse and talented workforce. EOE/AA/M/F/Disabled/Vet/ Tobacco Free Campus.

05/07/2025

Our care team is proud to wear purple in honor of Cystic Fibrosis Awareness Month this May. Together, we stand with the CF community in support, strength and hope. 💜

03/17/2025

Here's an opportunity for CF patients to provide input.

01/08/2025

Happy New Year!
As many of you have heard, there is a new combination CFTR modulator drug recently approved by the FDA called ALYFTREK (TM). For those of you who were not previously eligible for a modulator, but now are eligible, we will reach out to you individually to schedule an appointment to discuss initiating therapy.

For those of you who are already on TRIKAFTA®, the new drug is expected to be very similar in benefit as TRIKAFTA (e.g. based on the clinical trials, we do not expect your lung function to improve further), but ALYFTREK will be dosed once daily. In the clinical trials, side effects for ALYFTREK were similar to the ones reported in the TRIKAFTA trials. It is not yet known if people who did not tolerate TRIKAFTA will be able to tolerate ALYFTREK better.

ALYFTREK will be available in some pharmacies in the next few weeks but may take longer in other cases. ALYFTREK is expected to be more expensive than TRIKAFTA, and we do not yet know which insurance plans will allow patients to switch if they are currently doing well on TRIKAFTA. We expect that many people with CF that are doing well on TRIKAFTA will wish to continue their current therapy, and that others would be interested in trying ALYFTREK. We are happy to discuss these options with you at your next visit.

For those of you who are not eligible for any CFTR modulators, we are continuing to do research to find a drug that will help you. Please reach out to your doctor or to the research team if you would like to participate in a clinical trial.

Best wishes
The Colorado Adult CF Program Team

12/18/2024

Happy Holidays 🎄🎄! Wishing you peace and health.
❤️ your CF team

05/08/2024

The adult CF careteam bringing awareness to cystic fibrosis this month. Today and everyday we honor our patients and their families 💜

12/20/2023

Happy Holidays from your CF Team! 🎄

08/08/2023

❤️❤️❤️

07/31/2023

Public testimony for today's meeting has been cancelled. Public testimony will occur on Aug. 4. You may register here. https://fal.cn/3AkQ7

More in this Colorado Newsline story: https://coloradonewsline.com/2023/07/31/colorado-patients-rare-diseases-lifesaving-medications/

Colorado officials are using bad math and making risky assumptions that could put my access to my lifesaving treatment at risk.

07/19/2023

CF nurse - patient reunion after 7 years! 💜

05/10/2023

In May we wear Purple 💜.
Happy Cystic Fibrosis Month!

04/19/2023

Just a reminder that next Wednesday, April 26, at 4:55 p.m., CJ Bathgate, PhD, will be the keynote speaker for ResearchCon! The topic is: Mental Health Has Entered the Chat. Here is the link for registration.

Get tickets to ResearchCon 2023, taking place 26/04/2023 to 28/04/2023. Hopin is your source for engaging events and experiences.

03/30/2023

Our own CJ Bathgate, PhD, is one of the opening keynote speakers at the 2023 Cystic Fibrosis Foundation ResearchCon — Mental Health has Entered the Chat. Learn how integrating mental health changed multidisciplinary care, shaped current and future research priorities, and more. This discussion will touch on how CF impacts mental health among family members and what's next in mental health research and care.
https://hopin.com/events/researchcon-2023/registration

Address

1400 Jackson Street
Denver, CO
80206

Telephone

+13032702333

Website

http://www.nationaljewish.org/programs/directory/cystic-fibrosis/

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