19/04/2025
A quick refute to RFK Jr. Press Conference on 4/16/2025 regarding the rise in the autism diagnosis. (Backed by science and data of course!)
by Dr. Kristin M. Kosmerl, Ed.D., BCBA-D, BCASE, IBA, CTRT-E, CTRT-C, ACAS, ADHD-CE, LBS, LBA
(Note: Dr. Kosmerl is a BCBA-D, and an advanced specialist in autism, ADHD and trauma. She is also a certified educator and administrator. However, she is not able to diagnose.)
Last night, I expressed my inability to find words in response to RFK Jr.’s statements. Let me clarify I had plenty of words, but none that I could use on social media without risking my professional integrity and certainly ones I did not want to testify to as an expert witness.
As a former public school special education administrator and clinic staff leader, I always advised my team to "sleep on your written response overnight" if reacting viscerally or with frustration. That is precisely what I did. I slept on it or tried to.
Autism rates have been climbing for the past 30 years. In 2000, 1 in 150 children were diagnosed with autism spectrum disorder. As of April 2025, 1 in 31 eight-year-olds are diagnosed with autism spectrum disorder. This increase has been rigorously researched by leading scientists and doctors worldwide for over three decades.
My Thoughts on the Increase:
- Increased Awareness: Greater public and professional awareness has contributed to higher diagnosis rates.
Improved Diagnostic Criteria: The DSM-III, introduced in 1980, first separated childhood schizophrenia from autism, leading to more accurate diagnoses.
- Access to Better Diagnosis and Specialists: Enhanced access to diagnostic services has played a significant role.
- More Specialists: The rise in specialists focusing on autism and related behaviors has improved diagnosis and treatment.
- Insurance Coverage: Insurance coverage for ABA therapy requires a confirmed autism diagnosis, which has led to more diagnoses.
Autism is NOT:
A disease
Preventable
A tragedy
Something “we are doing this to your children”.
Something “we need to put an end to”.
Caused by:
Vaccines
Environmental toxins
“Maternal activation so that something happens in the womb.”
Age of parents
Or obesity of the parents
Risk factors
Ultrasounds
Diabetes from parents
Autism DOES NOT
-“destroy” children.
-“destroy” families.
People with autism are valuable members of society and should be treated with respect: They
- Pay taxes.
- Work.
- Play sports.
- Write poems.
- Date. (Hello Love on the Spectrum!)
- Use the bathroom unassisted.
- Are 71 years old.
Some with profound autism may never do some of the things above, but all neurotypical people do not do these things as well.
The causes of autism will not be identified by September. However, the changes in diagnostic criteria in the DSM-III and DSM-V are often overlooked when discussing the rise in autism rates. Improved recognition and diagnostic criteria are significant factors, not just 25%.
What people with autism, their caregivers and advocates need:
- Respect: They are human beings deserving of respect, not pity.
- Access to Free Healthcare: This includes medical, behavioral, mental health, diagnostic, and assessment services.
- Funding and Availability of Services: Especially at the adult level.
- Better Oversight and Qualifications: Ensuring those who work with individuals with autism are properly trained and qualified.
- Better Education: Providing quality education tailored to the needs of individuals with autism.
- Support Without Daily Struggles: Access to necessary supports without constant battles with doctors, insurance, and educational or behavioral/mental health systems.
Acceptance and Respect: Embracing individuals with autism with acceptance and love, not pity.
I am including the link of the full transcript here- https://www.rev.com/transcripts/autism-survey-results
Reading RFK Jr.'s statements was even more horrifying than hearing them the first time. His remarks lacked regard and respect for individuals with autism or their families.
These remarks from a US government official are insufferable.
Dr. Kosmerl