Kayven’s Helping Hands

04/11/2026

What an amazing offer from the The Mark Shaparin Foundation! EpiWatch is a seizure detection app used with your Apple Watch and is FDA cleared. Check out this amazing offer and follow Mark Shaparin Foundation to take part in the Ramen Challenge 🍜

04/08/2026

Did you know April is ?

Our friends at Golden Plains Credit Union in Haysville have definitely helped reduce our stress this week 💜

They stepped up in a BIG way to help us pack 200 epilepsy education folders!

These folders will go directly to individuals and families who need support, resources, and guidance and will also be included in our Kayven’s Care Kits.

We are so grateful for a community that shows up and makes a difference like this. It truly means more than we can put into words.

Thank you, Golden Plains team, for helping us make adventures possible for all 💛❤️💜

04/08/2026

We are so close to a big milestone 🎉

Kayven’s Helping Hands is currently at 473 followers, and our first goal is 500… this week 🙌

Kayven had his own private YouTube channel where we shared videos with close friends and family. One of his favorite things was checking how many people were following and liking his videos. No matter the number of followers or likes he just liked knowing people were watching something he created 💛

In a way, this feels like continuing that for him.

Every follow helps us share Kayven’s story, give away more books, grow our Little Free Libraries, and expand Kayven’s Care Kits for kids going through seizure testing. Most importantly, it helps us keep his spirit, kindness, and love for adventure alive.

If you’ve ever wanted to support us, this is such an easy way to make a big impact.

Here’s how you can help
• Follow our page
• Like this post
• Share it with your friends and family
• Invite others to follow along

Let’s hit 500 this week for Kayven… and then keep going to 1000 together. And as Kayven's would sign off on his videos, thank you for following, and liking our page ❤️💜

04/07/2026

We are looking for sponsors for Celebrate Kayven Dino Mite Adventures 🦖💛 and we would love to partner with you!

This free family event helps us bring books to kids, support children’s enrichment, and grow our epilepsy awareness and Kayven's Care Kit programs 💜

We have several ways to get involved-whether you're an individual or family that wants to give back or a business that wants to support our community.

We are also looking for raffle sponsors 🎁 with fun family themed items like game nights 🎲, outdoor adventures 🏕️, sports ⚽, and more

This event is all about bringing families together 👨‍👩‍👧‍👦 and making sure every child leaves with a book 📚

If you would like to sponsor or learn more, reach out to us at CelebrateKayven@gmail.com or follow this link: https://www.zeffy.com/en-US/donation-form/celebrate-kayven-sponsorship
💛

04/06/2026

So important for families to understand the difference between a neurologist and an epileptologist. Thank you to the The Cameron Boyce Foundation for continuing to educate and advocate for the epilepsy community.

If you or a loved one is navigating seizures, finding the right specialist matters. To locate an epileptologist, visit their website and search for Level 4 epilepsy centers.

04/06/2026

We have some fun and exciting things planned for 🦖🎉 Celebrate Kayven 2026: Dino-Mite Adventures! 🎉🦖 this year!

One big update we are so excited to share is that our friends at HTeaO Derby are donating FREE tea coupons to the first 75 guests through the gate on May 30.

Not only is the Field Station: Dinosaurs open for free from 6 to 8 pm, but you can also join us to:
-Meet amazing children focused organizations
--Enjoy fun activities around the park
-Join our raffle with great prizes
-And the first 250 kids will receive a FREE book

We are so grateful the generous donations and support from our community.

Be sure to stop by HTeaO Derby, grab a delicious drink, and check out their super cute merch.

Come celebrate, connect, and make some memories with us!

03/31/2026

Wow. What a fantastic evening.

We had some amazing Cub Scouts from Pack 683 stop by and jump right in to help us fill 100 Kayven’s Care Kit bags. They also helped add stickers to a couple hundred books that will soon make their way into the hands of kids in our community.

Their kindness, energy, and willingness to serve made such a big impact. This is what community looks like.

We are so grateful for their help and so proud to see young leaders giving back in such a meaningful way.

Thank you Derby Pack 683. You made a difference tonight.

❤️💛

03/30/2026

We encourage all our friends and followers to support the by clicking the attached link and contacting your members of congress.

While this is a national bill not state it will help coordinate better outcomes nationwide and hopefully encourage future statewide efforts. And please share with your networks! ❤️💜

150 epilepsy organizations are united behind the bipartisan Act (S.494/H.R. 1189). We need your help to keep building momentum to move this legislation forward. This bill will enable necessary federal coordination to facilitate better outcomes for people with epilepsy and prioritize the development of more effective treatments. Take 5 minutes to contact your members of Congress and ask them to sign on here👉 https://bit.ly/NP4E

03/27/2026

🐰💜 SAVE THE DATE 💜🐰

We love seeing inclusive events in our community and this one is extra special

Sandbox at Derby Annual Easter Egg Hunt is coming up on Saturday, April 4

✨ 10:00 to 11:00 AM
A private Easter Egg Hunt for kids in the community with special needs

🥞 Pancakes will be available for purchase during this time

✨ 11:00 AM
The Easter Egg Hunt opens to the public

Events like this create space for every child to feel included, supported, and celebrated and we are so here for it 💜

Mark your calendars and help us spread the word to families who would benefit from this amazing opportunity

Spring is in the air, which can only mean it’s time for Sandbox’s annual Easter Egg Hunt! Get those baskets ready for the ultimate family egg hunt at Sandbox on Saturday, April 4, 2026! And once all those eggs are found, stick around for a delicious brunch at Sandbox! Parents! Please make sure t...

03/27/2026

💜⛳ MINI GOLF FOR A PURPOSE ⛳💜

Join Seize Your Future for a fun, purple themed fundraiser supporting epilepsy awareness!

📍 Mega Pines Mini Golf
📅 March 28
⏰ 11:00 AM to 4:00 PM

Mini golf, raffles, face painting, food, and more 🎉

💛 Kayven’s Helping Hands will be there with FREE books and epilepsy resources

Come out, wear purple, and support a great cause 💜