Asking Prayers for Cade and Updates

09/26/2025

09/26/2025

09/24/2025

Chiari Awareness Fact 24,
September is Chiari Malformation Awareness Month, Please help us spread awareness! For more information about Chiari, Please visit https://www.facebook.com/groups/1878097775807738 https://bobbyjonescsf.org/ https://conquerchiari.org/index.asp

09/24/2025

September is Chiari Malformation Awareness Month, Please help us spread awareness! For more information about Chiari, Please visit https://www.facebook.com/groups/1878097775807738 https://bobbyjonescsf.org/ https://conquerchiari.org/index.asp

09/23/2025

September is Month Day 23

09/22/2025

Chiari Fact 21:
September is Chiari Malformation Awareness Month, Please help us spread awareness! For more information about Chiari, Please visit https://www.facebook.com/groups/1878097775807738 https://bobbyjonescsf.org/ https://conquerchiari.org/index.asp

09/20/2025

Chiari Fact 20:
September is Chiari Malformation Awareness Month, Please help us spread awareness! For more information about Chiari, Please visit https://www.facebook.com/groups/1878097775807738 https://bobbyjonescsf.org/ https://conquerchiari.org/index.asp

09/19/2025

Chiari Fact 19: Advocating and following your own instincts as a Chiari patient or parent is the best advice I was ever given! Educate yourself as much as you can so that you're able to advocate, seek numerous opinions from Chiari neurosurgeons, trust your gut instincts and follow the symptoms. Chiari is known to impact symptoms throughout the body due to compression on various parts of the brain, brainstem, cranial nerves and CSF flow throughout. Believe in yourself and your child and advocate for proper help and answers. Remember that most doctors are not very educated in Chiari Malformation and the complexities of the brain. Get more opinions as needed. Never, ever give up!
September is Chiari Malformation Awareness Month, Please help us spread awareness! For more information about Chiari, Please visit https://www.facebook.com/groups/1878097775807738 https://bobbyjonescsf.org/ https://conquerchiari.org/index.asp

09/18/2025

Chiari Fact #18

One common theme that you will hear from us at Chiari Bridges is, "Don't rush into decompression. Make sure all possible etiological/pathological cofactors and comorbid conditions are known FIRST!" And these two conditions help demonstrate why, probably more than any others...

Craniocervical Instability (CCI) and Atlantoaxial Instability (AAI) are two conditions of the craniocervical junction that make a Chiari Malformation "complex."

CCI is a structural defect and vertical hypermobility (back and forth sliding) of the craniocervical junction (interface between the occipital bone and the 1st and 2nd vertebrae) which can lead to a deformation of the brainstem, upper spinal cord and cerebellum (and associated neurological symptoms) due to compression.

AAI is a ligamentous defect in which there is excessive movement between the C1 and C2 vertebrae (usually rotational) and can result in neurological symptoms and deficits.

Both CCI and AAI can be "comorbid" to Chiari (conditions which are commonly seen together), but both CCI and AAI can also be "pathological" to Chiari, meaning they can cause or attribute to an Acquired Chiari malformation. All three conditions share one distinct etiology (root cause), Heritable Disorders of Connective Tissues (HDCTs), the most common of which are Ehlers-Danlos syndromes (EDS).

To learn more about Etiological/Pathological cofactors and comorbidities: https://chiaribridges.org/overview-chiari-comorbidities-etiological-pathological-cofactors/

To learn more on CCI:
https://chiaribridges.org/craniocervical-instability-related-disorders/







www.ChiariBridges.org

09/17/2025

Chiari Fact 17:
September is Chiari Malformation Awareness Month, Please help us spread awareness! For more information about Chiari, Please visit https://www.facebook.com/groups/1878097775807738 https://bobbyjonescsf.org/ https://conquerchiari.org/index.asp

09/16/2025

Chiari Fact #16

As discussed in our last fact on Syringomyelia, syrinxes (syringes) are caused by a blockage of cerebrospinal fluid (such as is seen with a Chiari Malformation). When the brainstem is also herniated (like it is with a Chiari 1.5, which we will discuss later this month), it makes the brainstem even more susceptible to a syrinx within the medulla oblongata (the lowest part of the brainstem). When a syrinx forms in or reaches up to the brainstem, it is known as Syringobulbia. This line between the medulla and the spinal cord is called the Cervicomedullary Junction.

The severity of symptoms depends on how much of the medulla is damaged by the syrinx. Symptoms of Syringobulbia are much different than those associated with the Syringomyelia because the function of the brainstem (especially the medulla oblongata) is much different than that of the spinal cord. The medulla controls the Autonomic Nervous System (which controls most of the actions that happen automatically - without requiring cognitive thought). Symptoms associated with Syringobulbia are what are generally called Dysautonomia.

For more information on Syringobulbia: https://chiaribridges.org/from-the-inside-out-understanding-syringomyelia-syringobulbia/

Medullary Injury and Dysautonomia: http://www.dysautonomiainternational.org/page.php?ID=122







www.ChiariBridges.org