Huntington's Disease

Huntington's Disease This is a group created by Tiffany Cochran to inform people what disease I have...

09/01/2022

Read updates from clinical trials and scientific research on Huntington’s disease from Day 3 of the 2022 HDF Milton Wexler Biennial Symposium

https://rarepatientvoice.com/melanie/
04/12/2022

https://rarepatientvoice.com/melanie/

Rare Patient Voice helps patients and caregivers voice their opinions through surveys and interviews to improve medical products and services.

https://en.hdbuzz.net/317
03/25/2022

https://en.hdbuzz.net/317

Researchers with PTC Therapeutics recently published exciting new findings - a promising new huntingtin lowering drug that can be taken as a pill. Will this change how we move forward with huntingtin lowering?

02/10/2022

Interested in Huntingtons Disease Research Studies? Click the Link in our profile to find a study near you!

03/26/2021

A Chinese research team developed a new way to lower huntingtin protein indirectly, by targeting a protein called GPR52. The molecules they designed were protective in cells and in mice with HD.

12/23/2020

A gene called MSH3 helps to repair our DNA, but in HD it can slip up and cause CAG repeats to lengthen. Researchers have uncovered new information about how MSH3 activity is controlled, opening the door to new therapeutic avenues.

11/22/2020

The 2020 virtual HSG conference HD in Focus continues on Day 2 with a focus on clinical trials and drugs in development.

11/02/2020
10/22/2020

While developing a drug called branaplam for patients with SMA, the pharmaceutical company Novartis discovered that it could hold promise for people with HD. The FDA has granted a special status called Orphan Drug Designation.

08/27/2020

The latest from HDBuzz: https://en.hdbuzz.net/291
CAG repeats expand in some parts of the body and brain as people with HD get older, a phenomenon known as somatic instability. Learn more about how researchers are exploring somatic instability and DNA repair to design therapies for .

07/16/2020

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Desloge, MO

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