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I know that I post about this every year, but that's because it's a major part of Skyler's life...
Today marks 7 years since Skyler's heart condition was discovered.
7 years ago, we woke up expecting to go home from the hospital. Instead, we found that his color was still off and his nail beds were purple. The pediatrician said "I hear a murmur" and took him down to the Special Care Nursery so they could perform an echo.
After a three hour wait, a cardiologist walked in and sat on my bed side, all the while drawing on the back of a business card. He then looked at me and said, without skipping a beat, "Your son has what's called Hypoplastic Left Heart Syndrome. He's going to need a series of 3 open heart surgeries. We're transferring him to Childrens Hospital."
Just like that our world had changed.
Within hours, he was downtown at Children's, which is where he stayed until his first surgery on 4/20. He was finally able to go home for the first time on 4/26.
Skyler is so strong willed... It's, no doubt, what has gotten us to the point we are at.
During his last hospital stay, he was doing so terribly, that the doctors looked at me and said "We can't promise you that he's going to be okay"
Scariest. Words. Ever.
4 Open heart surgeries later, he's still just as strong willed. The battle he fights on a daily basis, the rest of us will be lucky to never know. Not a day goes by that I don't think about what COULD (or could have) happen(ed). I'm just forever grateful that we went with our gut instincts that day 7 years ago.
❤️
I have been trying to find the right words for over three weeks now. We were admitted with our two year old, Kate, on November 4th for a burn. It was by far the most terrifying moment of my life to date. While we were extremely lucky and sent home the next day, I have been forever touched by the souls that were part of our lives for those nerve racking 24 hours. The other parents on the floor were great companionship, the doctors were beyond amazing, and the nurses...I can never say enough about the thoughtfulness, patience, kindness, and love of the nurses. They didn't just care for our terrified daughter, but did all they could to calm this hysterical mommy. Thank you to the entire staff - from the doctors all the way down to the security guards - thank you from the bottom of our hearts.
I have to say what a pleasure it is running into Dr. Zaidi at the hospital when we visit. He seems genuinely pleased to hear how well my son is doing. Having said that, we're pleased with the care from all the doctors and other professionals...I just can't remember all their names!